Scleroderma Atlantic

Exciting News for Make a Move for Scleroderma Participants in Bedford! 🌟
We’re happy to share that we’re welcoming back special guests from the HalCon Community Squad!

Come meet these amazing characters, enjoy the festivities, and take home some great photos. We can’t wait to see you there—join us for a fun day supporting Scleroderma Atlantic! 📸✨

Hal-Con Sci-Fi Fantasy Association

The weather’s looking a little dreary, but that’s not stopping us! ☔️💙 Make a Move for Scleroderma in Moncton is going ahead tomorrow as scheduled—rain or shine.

If we need to, we’ll move inside. Either way, come enjoy cake and coffee, meet up with friends, and support an amazing cause.

See you tomorrow! 💙

🎉Make a Move for Scleroderma kicks off this week in Moncton, NB!
We will be taking a loop around Mapleton Trail to celebrate the important funds raised for Make a Move for Scleroderma! Thank you for your support! 💙

Donate and register here ➡️ www.makeamoveatlantic.ca

If you’re in New Brunswick, Nova Scotia, or Prince Edward Island, grab your Scleroderma Awareness Month yard sign for just $5 at any of our Make a Move for Scleroderma events this June! 🌟

💙 Bringing awareness to the forefront 💛
Scleroderma Atlantic was featured on CTV Your Morning Atlantic, with President Jason Doucette alongside advocate Tya Broussard, who bravely lives with the disease.
Together, they shared powerful insights on Scleroderma Awareness Month and highlighted our upcoming Make A Move events across the region.
🎥 Watch the segment here: https://www.youtube.com/watch?v=Y59Z-fzOyn8&list=PLLzHOgGvydCnkG0Y_xcFIy2pfnQ53mRpd&index=1
👟 Then join us—sign up for a Make A Move event in your community and help make an impact. www.makeamoveatlantic.ca

We're off to a fantastic start!

This weekend marks the first of our five Atlantic Make a Move for Scleroderma events, and together, we can make an even bigger impact. Let’s keep the momentum going! 💙

Ready to register or donate? ➡️ www.makeamoveatlantic.ca

For the past 24 years, Claudine has been living with scleroderma—a disease that’s unpredictable and can affect nearly every part of daily life. Her journey includes chronic pain, fatigue, joint stiffness, and skin tightening, along with major adaptations over time, including the loss of many fingers.

But beyond the physical challenges, Claudine shares the emotional weight of feeling misunderstood and overwhelmed by limitations others may not notice. Despite it all, she writes about resilience, self-compassion, and the belief that difficult days don’t define the future.

💙 Read more about Claudine’s story, and explore more real stories from our community on our website.
➡️ https://sclerodermaatlantic.ca/personal-stories/

Breathing can get harder. Movement can become painful. This is the daily reality for many living with scleroderma.

Ready to learn how scleroderma runs deep? Watch: https://sclerodermaatlantic.ca/scleroderma-runs-deep/

Thanks for sharing your story Ken!

I was diagnosed with Diffuse Systemic Scleroderma in April of 2016, just over ten years ago now.

The effects of Scleroderma and Raynaud’s has been life altering.

Raynaud’s is constantly with us all day and night and varies with intensity depending on many conditions, like temperature of the weather, how well we are feeling and intensity of stress internally or externally.

There are certain relaxation and stress techniques to help stress like yoga and exercise, which can help some.

I personally have found heated gloves in the winter is a must and I could not be without them. Extra coats, lined pants, wool sweaters and warm hats and boots are also very helpful. I now take extra clothes everywhere, all year, as things can change in a minute. Some of the extra things I use are heated bean bags and electric charged hand warmers.

Someone looking at me would not have any idea that just going in to a grocery store or a
building in the summer can be difficult because of air conditioning.

Raynaud’s is just one of a list of conditions we may have at the same time with Scleroderma.

Ken.

Thank you to CTV Atlantic for their generous contribution to Scleroderma Atlantic. Their support helps us in our mission to enrich the lives of those living with scleroderma in Atlantic Canada. Watch for the public service announcements that showcase the Make a Move for Scleroderma events and raise awareness for Scleroderma Awareness Month in June.