Move to Learn-Learn-To Move

Celebrating 5 years of EDS-ECHO and being a Co-Facilitator of the Australasia MDT program!

So Excited to be announcing next year's EDS ECHO Courses-2024 here we come......
https://www.ehlers-danlos.com/eds-echo-multidisciplinary.../
A NEW PROGRAM COMMENCING APRIL 2024
The Ehlers-Danlos Society is delighted to be launching an
EDS ECHO Multidisciplinary Team Practice Australasia program commencing April 2024.
The EDS ECHO Multidisciplinary Team Practice (MDTP) Australasia program offers a unique educational experience and networking opportunity for healthcare professionals worldwide. It is designed for those currently involved in clinical work or planning to work with clients suffering from Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD), with the aim of improving their ability to care for people with EDS, HSD, and associated symptoms and conditions.
Through a comprehensive series of modules, the program will explore patient care in EDS and HSD across the breadth of medicine, surgery, psychiatry, and allied healthcare practice.
The program aims to equip participants with the knowledge, skills, and confidence needed to enhance the assessment and management of EDS and HSD while also promoting collaboration and networking for clinical support.
The program is structured into five themed modules over two years. Each module is facilitated and supported by a team of core colleagues and specialists, ensuring a wide range of expertise to foster discussions and promote multidisciplinary networking. The facilitators for this program are Dr. Fraser Burling and Anita Crawshaw from New Zealand and Nicole Frost, Pauline Slater and Jacqui Main from Australia.
Modules Include:
Introduction to EDS and HSD
Physical and Mental Well-Being
Neuro-Musculoskeletal Concerns - Peripheral
Systemic Comorbidities
Neuro-Musculoskeletal Concerns - Axial

The association between hypermobility and ADHD and ASD I refer to the below article. There is definitely an association but further work is needed to understand why. This is the article that says that people with EDS are 7.4 times more likely to have ASD and 5.6 times more likely to have ADHD. At this point we can say that there is an association but not sure that we can call it a comorbidity yet.

Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain ObjectivesAutism, attention deficit hyperactivity disorder (ADHD), and tic disorder (Tourette syndrome; TS) are neurodevelopmental conditions that frequently co-occur and impact psychological, social, and emotional processes. Increased likelihood of chronic physical symptoms, including fatigue and p...

Today is Rare Disease Day!

For a disorder/disease to be considered rare it has to impact 1 per 2000 people or fewer. Ehlers-Danlos syndromes as a whole impacts around 1 per 5000. So we share our stripes/colours today to make people aware of the many MANY different rare diseases out there and the over 300million people living with some type of rare disease.

https://www.rarediseaseday.org/

Ehlers Danlos Support South Australia
EDS HAS A NEW FACE

Why Sia's Reveal of Chronic Pain from Ehlers-Danlos Is So Important Australian singer Sia tweeted that she has Ehlers-Danlos syndrome. The condition, which is rare, affects the connective tissue within the body.

https://australian.physio/inmotion/five-facts-about%E2%80%A6-physiotherapy-and-autism-spectrum-disorder?elqTrackId=1782E5B1A6D4925F275848F9E31C2782&elq=6851cca6d2d6455e83ad855f438ad706&elqaid=725&elqat=1&elqCampaignId=556

APA | Five facts about… physiotherapy and autism spectrum disorder APA Paediatric group members Sarah Reedman and Lisa Truscott create five discussion points about physiotherapy in children and young people with autism spectrum disorder (ASD). 1. Movement difficulties are highly prevalent in children with ASD ASD is defined by deficits in social communication and t...

This is a huge step for all the children with HSD and hEDS out there! AT LAST!

Pediatric Concerns in EDS and HSD: Exploring The Impact of Misdiagnosis Online registration for Pediatric Concerns in EDS and HSD: Exploring The Impact of Misdiagnosis.

Amazing resource for all in therapy or working with children!

Fine Motor Toys - The OT Toolbox These fine motor toys are the best developmental toys to help kids build hand strength, precision, dexterity, and motor control in the hands.

Google review of MOVE TO LEARN-LEARN TO MOVE-PAEDITRIC PHYSIOTHERAPY by Pauline ★★★★★ "In honor of National Physical Therapy Month I would like to give a shout-out to my Physio, Pauline Slater from Move to Learn-Learn-To Move. She is originally from Sydney, and she specialises in many areas; one of these being Hypermobility Ehlers Danlos Syndrome and Autism. I have st...

Google review of Move To Learn-Learn To Move -ADELAIDE by Pauline ★★★★★ "If you're looking for a physio and all rounder Pauline Slater is amazing we have her employed as a Physio but utilise her other expertise (OT , Teaching, SPELD) to help our 11 year old daughter along her journey .. Share her page around please. Hayley Hughes"

Loving this statement!😉😀

We say this EVERY DAY.