Moira's Mission

Last call!! ☘️☘️☘️☘️☘️☘️☘️☘️☘️

Moira’s Mission Merch is available now thru this Friday (11/22).

These orders will be fulfilled by the first weekend of December for pick up and shipping.

My passion- ALL of our hard work!

https://search.app/6cd5XUPdoE6K3kFw8

Stiffperson.org for your end of year giving!
Moira's Mission
The Stiff Person Syndrome Research Foundation
☘️☘️☘️☘️☘️☘️☘️☘️☘️☘️☘️☘️☘️☘️

Home | The SPSRF The Stiff Person Syndrome Research Foundation envisions a world where all people with Stiff Person Syndrome (SPS) receive a prompt diagnosis, compassionate care, effective treatments, and a cure.

Last call!!

Moira’s Merch is available now thru this Friday (11/22).

These orders will be fulfilled by the first weekend of December for pick up and shipping.

My passion- ALL of our hard work!

https://search.app/6cd5XUPdoE6K3kFw8

Stiffperson.org for your end of year giving!

☘️☘️☘️☘️☘️☘️☘️☘️☘️☘️

Angel Fancy Design Studio Angel Fancy Design Studio

You asked for more merch and we are delivering!
Your support is amazing and let’s do it!! Moira's Mission is powerful!

SPS Awareness Campaign:
Please find this opportunity to bring awareness and support those with SPS thru our merchandise. There is a website for your convenience : live now until November 22nd!

If you would like to give to The Stiff Person Syndrome Research Foundation please do. It’s such a pivotal moment in the process of the Patient Registry. This has been my passion and always will be.

Merch app-
https://search.app/6cd5XUPdoE6K3kFw8

https://www.stiffperson.org/

Thank you for all of your support and love,
Moira

Home | The SPSRF The Stiff Person Syndrome Research Foundation envisions a world where all people with Stiff Person Syndrome (SPS) receive a prompt diagnosis, compassionate care, effective treatments, and a cure.

From Start to Finish!!

Marine Corps Marathon!!! Let’s go!!

So lucky to have Moira's Mission at this marathon last weekend.

The reach and support is truly amazing.
Thank you and congratulations Kathy Wartner!
ICGS /ND/SMC love!

And to our very darling Marine-Thank you for your service!!!

If you want to make a difference today- please consider supporting Type 1 Diabetes!! We have a very special person in our lives with this disease and we appreciate your support to help find a cure.

Exciting News! 💸

A generous donor has pledged to match donations up to $15,000 for our Cellmates on the Run Chicago Marathon team! This means every dollar you donate will be doubled—making twice the impact in our fight to cure type 1 diabetes.

Now is the perfect time to support our mission! 🙌

💥 Donate today and make your contribution count twice as much: https://www.classy.org/team/605356
📣 Share with your community and help us reach our goal!

Together, we can make a real difference!

www.classy.org

The Moira's Mission hat crew was on a roll today, making local deliveries and spreading joy wherever they went! I am so grateful for these wonderful women who have been my support system. The Carol and Michael Fox family have been our dear friends as we raised our kids together, and now our kids are excelling at Marquette University! Good times ahead, Claire and Jackie! Carol, your kindness and encouragement know no bounds. You prepared all the donations for the silent auction in March with such care. If you know Carol and Mike, you are blessed to have them in your life. They make my SPS journey more manageable. Love you both! Moira's Mission Michael Fox The Stiff

Moira's Mission hats are in and will mail them out- and if you live in Elmhurst- I will drop off this week. Thank you for waiting! If you emailed me - you are on the list.

Another hat order (48) was placed today.
If you would like to spread awareness of SPS, please email me at [email protected]
The hats are $20 and they are great quality! I’ll respond with my Venmo or Zelle.
Keep the pictures coming! You are making an incredible impact on this very rare disease!

Let’s go!!

PS- The other merch will be worked on as soon as my college girls head back to Marquette University and Saint Mary's College, Notre Dame, IN. I’ll be in touch!❤️
🍀🍀🍀🍀🍀🍀

Well- this is AMAZING!

I challenge all the Moira's Mission crew to share this and add a note how you are a supporter of those who have SPS.

We had over 700 people at the Moira Scully Papp/Moira’s Mission event on March 3rd.

Let’s blow this up!!

Share and invite others to support !

We're honored to have the support of four Celine Dion tribute artists as they've joined together to create a medley of songs to raise awareness of SPS and funding to support critical awareness. This is a great way to bring those outside the SPS community into our battle against SPS and we're proud to have their support!

Thank you to:






You can listen to their newly released medley here:
https://www.youtube.com/watch?v=pPN4MwY0Q5I

Credits:
Crystal Cimaglia - USA
Lead Vocalist, Arranger
https://www.crystalcimaglia.com
https://www.celineinvegastribute.com/
Social Media:

Alexandra Darby - UK
Lead Vocalist
IG:

Sébastien Costic - France
Lead Vocalist
https://www.costicevents.com/
IG

Courtney Bassett - USA
Lead Vocalist
IG
https://www.courtneybassett.com/

David Cordeiro - Brazil
Arranger, Producer, Guitarist
IG
https://www.davidcordeiromusic.com/

Shane Hampsheir - UK
Vocal Engineer, Backing Vocalist, Video Editor
IG
https://www.shanehampsheir.com/

Featured Celine Dion songs:
Because You Loved Me - Diane Warren
Recovering - Alecia Moore, Allen Shamblin, Tom Douglas
My Heart Will Go On - James Horner, Will Jennings

A family can look very different at times in your life. And for the GOOD.
My Farrell Family goes back early day of Saint Catherine’s, Joe Farrell and I then went to sister schools for high school together, then Joe went Notre Dame and I went to Saint Mary's College, Notre Dame, IN. And if that wasn’t enough time together, we started our first jobs together and worked for roughly 2/3 years at the same company. Then- we both settled in the media business. Throw in our first Triathlon togther and both of our families in tow for all of these life events and you have family.
The Farrell family is my family. How blessed am I. Joan Farrell was a dear pal of my mothers and always a special gift to me after my mom went to Heaven. Special- very special and took me even to buy my wedding dress! Joe Sr. (✝️)gave the best hugs and he and Joan treated me like their own.
Jodi Farrell was very instrumental in Moira's Mission as she was The Fantastic Sponsor Fulfillment Leader.Joe worked hard on the MM committee.. All this beautiful crew came to Moira’s Mission to support and they were very fun!
Shown wearing MM hats is Joe and Jodi! Then we have Aunt Jodi with all of her nieces and nephews!
Best Aunt!
Last pictures shows us all together!
❤️🍀❤️🍀
John Farrell Colleen Fannon Farrell Jodi Farrell Rebecca Trantowski Farrell Gina OC
Joe Farrell Joan Farrell
(Will add in Colleen and Magen)

We have this traveling duo headed from Bethesda, MD to take Cameron Zier to school at The University of Colorado! Current pit stop shown in Pittsburgh. Tara Zier and Cam are wearing their SPSRF 2024 Symposium hats! This Symposium gathered patients, doctors and researchers which was hosted by The Stiff Person Syndrome Research Foundation to communicate how everyone is working on a cure for SPS. What an incredible weekend last May for all those who have SPS!
It’s a very special week for our family because Elmhurst, Illinois is one of their stops and The Papps get to spend time with them. Safe travels west and can’t wait to see you when you arrive!!
Tara Zier is the incredible Founder of the SPSRF! Tara and her team work tirelessly to move SPS forward to a cure. We are all so lucky to have her at the helm!🍀🍀
Moira's Mission

My extremely loyal highschool friend, Katie Tyson, is Walking Lake Geneva lake path with her Moira's Mission sweatshirt.
Gorgeous morning on the lake!
Katie Rauen Tyson rounded up a hell of a crew to attend Moira's Mission in March. And let’s give a nod to another layer of our friendship- my lovely mom and Katie’s sweet mother in law were dearest friends. The Rauen, Tyson and Scully love continues on!❤️🍀❤️🍀

Meg Rauen Jan Rauen Julie Tyson
The Stiff Person Syndrome Research Foundation Mother McAuley Liberal Arts High School

Unleashing the power of kindness: Marty Falkenberg ND'90 dons a Moira's Mission hat in Raymond, Maine, creating a ripple effect of compassion. Thank you Marty!!
Martin Ellis Falkenberg Moira's Mission 🍀🍀🍀🍀 ❤️❤️❤️❤️

The Big Shoulders Golf Tournament at Olympia Fields Country Club will be filled with golf, love,laughter and Moira's Mission🍀🍀🍀 Thank you to Bill Lagoni!! I am proud to be part of an extraordinary family that values giving to others.This crew has been a great support for those who have SPS. Many generations of the Scully and Lagoni friendships! Annie Lagoni Richardson Carrie Lagoni Cathy Scully
The Stiff Person Syndrome Research Foundation

What a glorious day for golf! This remarkable mother-son duo is proudly representing Moira's Mission on the course. Tracey Uruba and Liam Uruba are relishing their final rounds together before Liam embarks on his collegiate journey at Purdue. Trac and I share a rich history, having grown up together at Lauderdale Lakes, Wisconsin, where my parents and Trac’s grandparents were close friends. Our friendship blossomed at Saint Mary's College, Notre Dame, IN. The most heartwarming aspect of this image is the towering presence of Tracey, standing tall and proud alongside her accomplished son! Moira's Mission Tracey Uruba Saint Mary's College, Notre Dame, IN Thanks you two!

There is a very special group of people who have truly watched over me for my entire life. These special people are the great pals of my siblings. As the youngest of 6 Scullys, you have an extended family built right in. This crew has known me forever! They all… and there are many… care about me and I love them all! They all made Moira's Mission possible and super strong!!
Today, we have Brian Coughlin and Peter Lawler!!!❤️🍀 playing golf with John Scully. Cathy Scully
Thank you all for support and love!!

Moira's Mission flourished under the guidance of Michele Janc, a true visionary and dedicated ally! Her remarkable foresight and innovative spirit sparked momentous growth, leaving a lasting mark on the world. As Michele and Chris embark on their Icelandic escapade, may they find peace and exhilaration in the untouched beauty of this natural wonderland, creating memories that will forever hold a cherished place in their hearts. Thank you for being you Michele❤️🍀❤️🍀. Moira's Mission Michele Janc The Stiff Person Syndrome Research Foundation

Third time's the charm! Let's make a difference with Jewel Brown, Karen Kuchler, and Tina Schacht with SPS at the Cliffs of Moher. Together, we can spread awareness for Moira's Mission and The Stiff Person Syndrome Research Foundation. 🌟🌟 Moira's Mission The Stiff Person Syndrome Research Foundation
Jewel Brown Karen Kuchler Bassing

The Elmhurst community excels! The Brown and Papp families raised their 20-year-olds at Immaculate Conception Grade School. Inspired by their shared love of Barre Class, Jewel and Moira embarked on a transformative fitness journey together. When we ask, the community answers with support! Wishing Jewel and Dan a wonderful trip to Ireland and an unforgettable experience exploring the Di**le Peninsula.🍀🍀❤️❤️✝️✝️
Jewel Brown Moira's Mission The Stiff Person Syndrome Research Foundation