ASH Research Collaborative

Officer updates from ASH RC!

Dr. Gary Schiller now serves as Chair, with Dr. Roy L. Silverstein stepping into the role of Secretary-Treasurer and Dr. Andrew M. Evens continuing as Vice Chair. Dr. Mark Crowther transitions from Chair to Director, where he will continue supporting ASH RC’s mission with his leadership and expertise.

Learn more: https://ow.ly/upco50YQMMx

ASH RC is thrilled to announce the publication of a new paper in Blood Advances: “The ASH Research Collaborative Sickle Cell Disease Research Network: past, present, and future.” The manuscript highlights how the Network is transforming sickle cell disease research through real-world data analytics, multicenter collaboration, and meaningful community engagement.

This paper summarizes the progress and future direction of the ASH Research Collaborative’s Network, which is designed to overcome research barriers and accelerate progress toward better care and new treatments for individuals living with sickle cell disease.

Your support helps move the science forward.

Read the full article: https://ow.ly/AupP50YJ2OU

Exciting leadership update from the ASH Research Collaborative (ASH RC)!

The ASH RC Board of Directors welcomes three new directors: Margaret Anderson, MA; Adama Ibrahim, EMBA; and DB Kartik, MBA, CFA. Their expertise in patient-centered research, large-scale clinical research and digital transformation, and healthcare data and real-world evidence will help advance collaborative hematology research.

Learn more: https://ow.ly/G3gA50YCV9I

From the first idea to study results: what exactly happens during a clinical study?

Our new ASH RC video, shaped by NCAB member input, walks through each stage of the clinical trial lifecycle in clear, accessible language.

🔄 Discover how research turns ideas into impact — now on the Clinical Trials E-Library: https://ow.ly/On2A50XwSUJ

Every clinical trial goes through rigorous checks and balances to keep participants safe, but what does that really look like?

Our latest ASH RC video, created with input from NCAB members, explains the safeguards and review processes that protect individuals throughout SCD research.

🔒 Learn more in the Clinical Trials E-Library: https://ow.ly/jx8450XwRPH

From EHR-based phenotyping to real world voxelotor outcomes, today’s abstracts from the ASH Research Collaborative offer fresh insights into improving care of patients.

Explore the studies: https://ow.ly/w98e50XBVIl

This evening at , see how the ASH Research Collaborative is advancing research with technology and community engagement. Highlights include AI-based kidney disease prediction, experiential learning to boost clinical trial literacy, and new approaches to defining high-risk myeloma. Check them out today from 6 PM to 8 PM! https://ow.ly/XTpA50XBToj

Don’t miss the ASH Research Collaborative’s special interest session at , spotlighting how real-world data is being applied in multiple myeloma to support regulatory work. See how findings from the everyday care of patients can strengthen reviews and influence therapy decisions. https://ow.ly/Y8Pl50XBVAz

Which abstract presentations are you most excited to see today? The ASH Research Collaborative is sharing new real-world data on myeloma, kidney health, and sickle cell disease. From social influences on outcomes to thrombotic risk, privacy preserving identifiers, and iron overload. Discover what’s shaping the field! https://ow.ly/8UrK50XExuY

Join the ASH Research Collaborative at for a special interest session on real-world data in sickle cell disease. Learn how targeted cohort studies reveal new trends, inform care strategies, and drive innovative research approaches. https://ow.ly/A9Wh50XExve

is here and 10 accepted abstracts from the ASH Research Collaborative will be presented! The research highlights kidney health in sickle cell disease, treatment outcomes and high-risk disease in multiple myeloma, and innovative approaches to strengthening real-world data.

See you then! https://ow.ly/m3EQ50XBuSI