Phoenix Rising with Dr. G

🌍💜 Today we stand with the 300 million people living with a rare disease. We are united with their families, friends, caregivers, advocates, and the medical professionals, researchers and organisations that working tirelessly to build a more equitable future for our community.

Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.

Thank you to everyone who’s taken part, whether you’ve lit up your home, shared your story, joined an event, or supported someone you love. By standing together we’re proving that our community is strong, united, and truly more than anyone can imagine. ✨

👉 Learn more and discover ways you can still get involved: https://go.rarediseaseday.org/NEWS

A quieter year online — by design.

In 2025, I didn’t engage as much on social media as I have in the past. That wasn’t from a lack of purpose, it was because my focus was elsewhere.

This past year, my work as a psychologist with the DoD centered on supporting well-being, resilience, and readiness during periods of sustained change and complexity. Much of that work happens quietly, behind the scenes, and in moments that don’t translate easily to posts or metrics — but it matters deeply.

I spent 2025 doing work that helps people show up when it matters most:
• Helping individuals and teams navigate uncertainty
• Strengthening psychological resilience
• Supporting mission readiness through sustainable well-being

As we continue to move into a new year, I’m grateful for the people who understand that impact isn’t always visible, and that sometimes the most meaningful work is the least public.

Looking ahead, I’m excited to continue contributing to conversations that strengthen both people and organizations.

Thank you to those who stayed connected, even during the quieter moments.

The conference starts tomorrow. Don't miss out!

Register here: https://www.awarenessforpotsies.org/

Awareness for POTSies

Excited to join the Awareness for POTSies virtual conference this Saturday! Honored to be part of a powerful lineup raising awareness and advocating for those with chronic conditions.

Register here: https://www.awarenessforpotsies.org/

Join Chronic Migraine Awareness, Inc. this Friday!

Get ready! 🎉 CoMorbidityCon 2025 is almost here — and it’s completely FREE to attend!

Join Chronic Migraine Awareness, Inc. (CMA) for a powerful day of learning, connection, and advocacy as we explore chronic migraine and the comorbid conditions that impact millions.

💜 Open to anyone living with these conditions—or those who support them. Please share widely with your community!

📅 Register now: https://chronicmigraineawareness.org/comorbiditycon-2025

Happy 3rd Birthday, Queen Cirilla of Puggington! 👑

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Five years and counting for me. C-19 Longhauler Advocacy Project

Hello everyone!

I created this video in 2023. Since then, I have been diagnosed with numerous rare diseases and now have over 50 medical conditions. I felt it was fitting to share a part of my journey for so people new to this world know that they are not alone.

Rare Disease Day Video Feb 2023 Just a short video for to let all of my fellow rare patients know you are not alone. ❤️🦓❤️ ...

"How to Keep Up with the News Without Getting Overwhelmed"

by Rebecca Knight

How to Keep Up with the News Without Getting Overwhelmed Studies suggest that increased exposure to news, whether through traditional media or social media platforms, can negatively impact mental health. In other words, more news correlates with higher anxiety. But the answer is not to check out altogether. In this article, the author shares advice from t...