Benign Essential Blepharospasm Research Foundation

Benign Essential Blepharospasm Research Foundation

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BEBRF provides support, education, & research for blepharospasm, Meige, & hemifacial spasm. https://linktr.ee/bebrf

In pursuit of its Mission, the Foundation has established a three-part program:
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* Sponsorship of Research — a commitment to raising monies through charitable donations to be directed toward the research required to discover the cause and cure for blepharospasm, Meige, and other related disorders of the facial musculature.
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* Information and Education — designed to create an awareness of blepharospasm, Meige, hemifacial spasm and other related disorders of the facial musculature in the medical community and the general public and to promote distribution of information and enhancement of continuing medical education regarding these disorders.

* Patient Support — provided through a network of support groups in all parts of the country and internationally, that brings patients together to share experiences, receive encouragement and get direction to centers for treatment.

22/09/2026

Cheap Charlie was SO cheap...

HOW CHEAP WAS HE?!

When his wife asked for something expensive for her birthday, he gave her a ______.

My answer is in the photo. 😂

What would you have said?

👇 Drop your answer AND register to play along with us this Friday night in the comments!

14/09/2026

💙 Are you a caregiver or patient advocate for someone living with blepharospasm?

This survey is for you.

We want to hear from the people who provide care, assistance, encouragement, and support to a loved one. The questions focus on the caregiver experience, including the time and responsibilities involved, relationships, finances, health, and the challenges that can come with caring for someone else.

This is not a survey for patients to complete about themselves. It is specifically for caregivers and patient advocates.

Your experience matters, and your perspective can help us better understand what caregivers and those who support our community are experiencing.

If you care for or advocate for a loved one, please consider taking the survey. 💙

📋 Survey link is below in the comments. 💙

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Opening Hours

Monday 08:00 - 17:00
Tuesday 08:00 - 17:00
Wednesday 08:00 - 17:00
Thursday 08:00 - 17:00
Friday 08:00 - 17:00