Hannah Crazyhawk
I'm a theoretical neuroscientist studying Developmental Topographical Disorientation and a disabled, chronically ill artist, writer, teacher, and falconer.
10/08/2025
Today is Trigeminal Neuralgia Awareness Day 🎗️
Trigeminal Neuralgia (TN) is an example of neuropathic pain, arising from the trigeminal nerve (the fifth cranial nerve). New cases of TN affect 4 to 5 of every 100,000 people in the United States each year.
TN episodes may start as short, mild attacks and progress and cause longer, more-frequent bouts of searing pain. TN pain is described as sudden and intense, with patient ratings of 9 out of 10, or more, although less severe attacks can occur. TN pain is often describes as stabbing, shooting, sharp, piercing or electrical in nature. Pain can occur almost anywhere between the jaw and forehead, including inside the mouth.
International Trigeminal Neuralgia Awareness Day was first commemorated in 2013 by supporters of the cause. In 2017, a resolution was put forth in the US House of Representatives to officially recognize October 7 as the national day.
This date is recognized and observed around the world, not as a day of celebration, but a day we mark to acknowledge the many members of our community who suffer from debilitating facial pain. You are not alone. 🩵
Learn more about trigeminal neuralgia: https://www.facepain.org/understanding-facial-pain/diagnosis/trigeminal-neuralgia/
05/23/2025
Premature Ovarian Failure, Primary Ovarian Insufficiency - The Silent Grief Poem “The Silent Grief” I am a fallout, a wreckage, a ship once so lovely - now bones upon a forgotten shore.🥀 — Crazyhawk “We had an extensive discussion about the diagnosis of primary ovarian insufficiency/premature ovarian failure. The sequelae of primary ovarian insufficiency include vasom...
Dear feet and legs,
Give me back my blood supply.
Sincerely,
Brain
11/20/2024
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11/20/2024
10/11/2024
Autoimmune diseases, “Here, we got you this fever.”
Me: “Why!”
Autoimmune diseases, “Just because.”
Grief claws its way into my mind, heart, and body each day. Health is a precious thing; how I wish it would come back. It’s in the knowing it won’t that hurts the most. The realization that I will continue to decline stings, and I can’t remember how it feels to feel joy or comfort. 💔
“The loneliest moment in someone’s life is when they are watching their whole world fall apart, and all they can do is stare blankly.”
— F. Scott Fitzgerald
Anemia of Chronic Disease sucks. 🩸
10/01/2024
I’ve waited a year for this book by Ilana Jacqueline to come out! I want to take it to all my doctor’s appointments.
⚔️🦋⚔️
Medical Gaslighting Check out this great listen on Audible.com. Our health-care system is broken. But it doesn’t have to break you. This practical, realistic guide is designed to help women fight medical bias and neglect in order to get the care they need—and deserve. For women, the possibility of experie...
10/01/2024
How to Tell When We Will Die Check out this great listen on Audible.com. The long-awaited essay collection from one of the most influential voices in disability activism that detonates a bomb in our collective understanding of care and illness, showing us that sickness is a fact of life. In the wake of the 2014 Ferguson riots.....
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