Our Amazing Owen - The Giving Train

Our Amazing Owen - The Giving Train

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The Benson 5k color run raised over $3,000 for the foundation!! We were so excited to receive the Benson HS student council donation check this week. They greatly exceeded our expectations and have made such an impact. Thank you to the Manzo family for selecting us as the recipient in honor of Chase🎗. This was such a fun event with some really awesome teens. Btw, check out our article in today's paper. 📰
We made another comfort kit delivery to the Diamond Children's Hospital in Tucson today. Sadly, that means there are new diagnosis of pediatric cancer, new families beginning their journey. But our hope is that the work we do brings them comfort, reminds them that they are not alone and gives them hope that they can defy the odds. Recently we added these collapsible carts to our contributions as well. They provide families a convenient way to travel and move their belongings from the parking garage to the unit each stay.

We cannot THANK YOU enough for your support, encouragement and contributions. YOU make this possible. 🚂🎗💙 #ouramazingowen #theGivingTrain
Live everyday like Chase! 💙🎗

What a beautiful morning to honor Chase Manzo while raising funds for a good cause. Thank you Benson HS Student Council, Amanda Goss, the Manzo/East families and the wonderful Benson community for your generous donations . Your support enables us to continue our work for families and children diagnosed with cancer throughout Southern Arizona.
THANK YOU!!

#5KCOLORFUNRUN #OurAmazingOwen
We had such a great evening at the Kartchner Wonderland event in Benson. Thank you to everyone who came out to support The Manzo family and the Our Amazing Owen Foundation. We are proud to be part of the Benson community. Thanks to you, this fundraiser was a huge success. 💙❤😇#ouramazingowen
AZ friends and family, come check out this local, "winterhaven" style Christmas light event in Benson across from the Loves gas station off Hwy 90. We will be there along with Santa spreading some Christmas cheer. Happy Holidays! #ouramazingowen
To make electronic donations directly to the Our Amazing Owen please use the PayPal link below or make checks payable to:
Our Amazing Owen
2444 Central Park Dr.
Sierra Vista, AZ 85635

https://www.paypal.me/OurAmazingOwen.

Your contributions are tax deductible. An email confirmation and receipt are available for tax purposes. Thank you.
Thanks to your continued support and generous contributions we were able to send Chase and the Manzo family to the Great Wolf Lodge in Scottsdale for a few days of fun and laughter after his last relapse.
And, today as we said our final goodbyes to this incredible young man we are motivated to do MORE. To give MORE, to comfort MORE in honor of these amazing young warriors. Our journey continues. We push forward despite our pain and our grief. Because love conquers all and where there is love there is light. Let your light shine!

Thank you Ryan and Rachel for allowing us to be part of Chases journey. God made sure our paths would cross and I find some comfort in knowing our boys are united again in heaven.
Chase's Battle Against Ewing Sarcoma
A sweet thank you from our Banner family. These three ladies are incredible. They keep us connected to our families in need. We couldn't do what we do without them. 🥰
Update 😃 We are still delivering caregiver comfort kits to Diamond Children's Hospital in Tucson (quarterly).

Thanks to the San Pedro Kiwanis and Just Kids, Inc. the kits have grown to include the air mattress with built in pumps, sheet sets, blankets, travel toiletries, water bottles, masks, notepads, dry erase markers, kleenex, ear plugs and window coverings.

We continue to receive wonderful feedback from the social workers that the kits are a great benefit and truly appreciated by the families during their extended stay. 🥰

We look forward to being able to resume our fundraiser activities this fall and appreciate your continued support. 🎗#ouramazingowen🌈 #thegivingtrain🚂
"Awareness is like the sun. When it shines on things they are transformed." TN Hahn
To make electronic donations visit:
https://www.paypal.me/OurAmazingOwen

Our Amazing Owen is a 501c3 non-profit foundation dedicated to providing support to local Southern Arizona children and families that have been diagnosed with Pediatric Cancer.

The "Giving Train" is a platform designed to give back and pay it forward.

Operating as usual

Photos from Our Amazing Owen - The Giving Train's post 03/23/2022

The Benson 5k color run raised over $3,000 for the foundation!! We were so excited to receive the Benson HS student council donation check this week. They greatly exceeded our expectations and have made such an impact. Thank you to the Manzo family for selecting us as the recipient in honor of Chase🎗. This was such a fun event with some really awesome teens. Btw, check out our article in today's paper. 📰

Photos from Our Amazing Owen - The Giving Train's post 03/18/2022

We made another comfort kit delivery to the Diamond Children's Hospital in Tucson today. Sadly, that means there are new diagnosis of pediatric cancer, new families beginning their journey. But our hope is that the work we do brings them comfort, reminds them that they are not alone and gives them hope that they can defy the odds. Recently we added these collapsible carts to our contributions as well. They provide families a convenient way to travel and move their belongings from the parking garage to the unit each stay.

We cannot THANK YOU enough for your support, encouragement and contributions. YOU make this possible. 🚂🎗💙 #ouramazingowen #theGivingTrain

Photos from Our Amazing Owen - The Giving Train's post 03/06/2022

Live everyday like Chase! 💙🎗

What a beautiful morning to honor Chase Manzo while raising funds for a good cause. Thank you Benson HS Student Council, Amanda Goss, the Manzo/East families and the wonderful Benson community for your generous donations . Your support enables us to continue our work for families and children diagnosed with cancer throughout Southern Arizona.
THANK YOU!!

#5KCOLORFUNRUN #OurAmazingOwen

Benson to host color run Saturday honoring Chase Manzo 03/02/2022

Benson to host color run Saturday honoring Chase Manzo

https://www.myheraldreview.com/a/socoactive/sports/benson-to-host-color-run-saturday-honoring-chase-manzo/article_abe4c178-9980-11ec-a7d8-03dcb748dc8b.html?utm_medium=social&utm_source=email&utm_campaign=user-share

Benson to host color run Saturday honoring Chase Manzo BENSON — The Benson High School student council and the Family, Career and Community Leaders of America are sponsoring a color run, the “#CM24 Color Run – Live Everyday Like

Photos from Our Amazing Owen - The Giving Train's post 12/19/2021

We had such a great evening at the Kartchner Wonderland event in Benson. Thank you to everyone who came out to support The Manzo family and the Our Amazing Owen Foundation. We are proud to be part of the Benson community. Thanks to you, this fundraiser was a huge success. 💙❤😇#ouramazingowen

Photos from Our Amazing Owen - The Giving Train's post 12/01/2021

AZ friends and family, come check out this local, "winterhaven" style Christmas light event in Benson across from the Loves gas station off Hwy 90. We will be there along with Santa spreading some Christmas cheer. Happy Holidays! #ouramazingowen

Pay Rachael Taillie using PayPal.Me 11/06/2021

Pay Rachael Taillie using PayPal.Me

To make electronic donations directly to the Our Amazing Owen please use the PayPal link below or make checks payable to:
Our Amazing Owen
2444 Central Park Dr.
Sierra Vista, AZ 85635

https://www.paypal.me/OurAmazingOwen.

Your contributions are tax deductible. An email confirmation and receipt are available for tax purposes. Thank you.

Pay Rachael Taillie using PayPal.Me Go to paypal.me/OurAmazingOwen and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.

Photos from Our Amazing Owen - The Giving Train's post 11/06/2021

Thanks to your continued support and generous contributions we were able to send Chase and the Manzo family to the Great Wolf Lodge in Scottsdale for a few days of fun and laughter after his last relapse.
And, today as we said our final goodbyes to this incredible young man we are motivated to do MORE. To give MORE, to comfort MORE in honor of these amazing young warriors. Our journey continues. We push forward despite our pain and our grief. Because love conquers all and where there is love there is light. Let your light shine!

Thank you Ryan and Rachel for allowing us to be part of Chases journey. God made sure our paths would cross and I find some comfort in knowing our boys are united again in heaven.
Chase's Battle Against Ewing Sarcoma

07/15/2021

A sweet thank you from our Banner family. These three ladies are incredible. They keep us connected to our families in need. We couldn't do what we do without them. 🥰

07/02/2021

Update 😃 We are still delivering caregiver comfort kits to Diamond Children's Hospital in Tucson (quarterly).

Thanks to the San Pedro Kiwanis and Just Kids, Inc. the kits have grown to include the air mattress with built in pumps, sheet sets, blankets, travel toiletries, water bottles, masks, notepads, dry erase markers, kleenex, ear plugs and window coverings.

We continue to receive wonderful feedback from the social workers that the kits are a great benefit and truly appreciated by the families during their extended stay. 🥰

We look forward to being able to resume our fundraiser activities this fall and appreciate your continued support. 🎗#ouramazingowen🌈 #thegivingtrain🚂

05/02/2021

"Awareness is like the sun. When it shines on things they are transformed." TN Hahn

10/29/2020

To make electronic donations visit:
https://www.paypal.me/OurAmazingOwen

Photos from Our Amazing Owen - The Giving Train's post 04/13/2020

Thank you to everyone who participated in the OAO Easter FUNraiser! We had a such a great response and the EB had so much fun visiting all the kids. What a beautiful gift it was to see the joy and excitement in their faces. Thanks for all your support SV friends! 💗

Please feel free to share your EB pics below. We'd love to see them!

Photos from Our Amazing Owen - The Giving Train's post 03/29/2020

Thank you Butterfield RV Resort campers for your continued support of the Our Amazing Owen Foundation. Your donations of over $2500 and the dozens of beautiful homemade blankets helps us provide assistance to many pediatric cancer families currently in treatment. We are incredibly grateful for your kindness, friendship and generosity. Thank you!! #ouramazingowen

Pay Rachael Taillie using PayPal.Me 11/14/2019

Pay Rachael Taillie using PayPal.Me

PayPal.me/OurAmazingOwen

Pay Rachael Taillie using PayPal.Me Go to paypal.me/OurAmazingOwen and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.

10/19/2019

Took little Owen😇💙 to see the "Big Boy" locomotive today in Tucson. It was incredible.
#ouramazingowen #thegivingtrain

Photos from Our Amazing Owen - The Giving Train's post 10/13/2019

"Our Amazing Owen" delivered the first round of (caregiver) Comfort Kits to Diamond Children's Hemo/Oncology unit today💙 Thank you to everyone who contributed to this wonderful cause.
When Owen was first diagnosed in Mesa we were gifted an air mattress to sleep on while we were inpatient for his initial diagnosis, surgery and recovery. This simple gesture made an enormous difference in the quality of rest we were able to get. We are so thankful to be able to pay it forward to other families in need.
In addition to the air mattress w/ pump, sheet set and blanket we also included a small notebook, pen and dry erase marker for parents to use to write down thoughts, questions and concerns for their medical team. We are putting together more kits to be delivered to the PICU next weekend.
Although it can be tough going back to the unit Owen was on. We're always greeted with so much love, warmth and kindness from the nurses and staff. That makes it so much easier. We will always have a special place in our hearts for all of those who cared for our Obo. 💙🌈 #ouramazingowen #thegivingtrain 🚂

Photos from Our Amazing Owen - The Giving Train's post 09/22/2019

Our first official fundraiser was a success! We are incredibly thankful to all the wonderful friends, family and community members that came out to participate in our Sip and Paint.

We hope you had as much fun as we did😄 The paintings turned out great and we are thrilled to be able to put together many more comfort kits thanks to your generosity. 💙

#ouramazingowen #fortheloveofObo 🌈

Group's portraits of families dealing with children's cancer bring hope 09/17/2019

Group's portraits of families dealing with children's cancer bring hope

https://tucson.com/news/local/group-s-portraits-of-families-dealing-with-children-s-cancer/article_2c01e2fa-2a11-5fcb-963b-7dd84711cd30.html

Group's portraits of families dealing with children's cancer bring hope A picture paints a thousand words, but each portrait from the Bald Beauties Project embodies enough courage, hope, love, loss, memories, triumphs and tears to fill an entire book.

09/13/2019

Only ONE week left to buy tickets to this amazing fundraising event. Come Sip and Paint with us next Saturday, Sept 21st. See details by clicking on the link below. And be sure to buy your ticket before the event sells out! You won't want to miss it!

https://www.eventbrite.com/e/sip-and-paint-fundraiser-tickets-69653548639

Our Amazing Owen - The Giving Train updated their business hours. 08/22/2019

Our Amazing Owen - The Giving Train updated their business hours.

Our Amazing Owen - The Giving Train updated their business hours.

08/21/2019

In honor of National Childhood Cancer Awareness month(September) and Owens 3rd Birthday (9/28). Please consider attending this wonderful fundraiser hosted by OAO Giving Train. Please message us with any questions. The two paintings we will be doing are shown in the flyer below. Seats are limited. To purchase tickets click on the event tab. Tickets are only available online from Evenbrite. Click on link below. Thanks!

https://www.eventbrite.com/e/sip-and-paint-fundraiser-tickets-69653548639?aff=ebdssbdestsearch

Custom Ink T-shirt Fundraising - Raise Money. Awareness. Spirits. 08/19/2019

Custom Ink T-shirt Fundraising - Raise Money. Awareness. Spirits.

All aboard! Welcome to "Our Amazing Owen", a Childhood Cancer Foundation. This is our new official public page. We appreciate you stopping by to take a look and give us a "Like". Please check out our newest T-shirt design below (youth and adult sizes available). Shirts are only $20 each and can be shipped directly to you! Place your order as soon as possible, this fundraiser ends Sept 2nd.

Custom Ink T-shirt Fundraising - Raise Money. Awareness. Spirits. The purpose of this fundraiser is to sell our new OAO Foundation t-shirts to family, friends and supporters in order to fund the "C...

Our Amazing Owen

As the baby of our family, Owen was born at 37 weeks gestation along side twin sister Kate. He was a sweet, gentle and loving baby with a beautiful smile and infectious laugh. Most of his early months were spent at home growing, learning and playing with his older siblings. Owen loved being part of his family. Whether it was playing Legos with his big brother Nathan, dress-up with big sister Harper or dancing to the Wiggles with Kate he just wanted to be included.

Two months prior to his 2nd birthday Owen started showing signs of concern. High unexplained fevers, absent gazing, trouble balancing and eventually daily throwing up led us to an early Monday morning check up with our pediatrician. After a short evaluation she could see that something was definitely wrong. She suspected intercranial pressure and sent us directly to our local hospital. After blood work and a CT scan the results revealed a large mass in the center of Owens brain. He was air lifted to a children's hospital 3 hours from home. Additional testing, MRIs and biopsies would identify his brain cancer as Pineal Blastoma. This extremely rare and aggressive tumor was already stage 4. A resection to remove the mass was our first plan of action. But, we almost lost our son the day of his surgery. This incredibly vascular tumor bled and bled as it was removed piece by piece. The blood loss could not be stopped. The resection to remove the tumor was successful but the operation almost cost Owen his life.

Weeks of recovery and rehabilitation led us to the next phase of his protocol, chemotherapy. Whatever cancer was left behind had to be dealt with, or at the very least slowed down. For the next 3 months Owen was inpatient every 3 weeks for treatment. During this time his stem cells were harvested and another central line placed in his chest. After the holidays Owen began another series of high dose chemotherapy treatments followed by three rescue stem cell transplants meant to boost his immune system and help his counts to recover. These high dose, toxic chemicals would prove effective against his cancer but only for a little while. Only 7 weeks after Owen was declared “no evidence of disease” following a clear MRI, his cancer came BACK. What began as one solid mass tumor in his brain, was now 10-12 small and large tumors throughout his brain and spine. This, just 48 hours after our son, an ambassador for the Relay for Life (an American Cancer Society fundraiser) had been honored and celebrated as a “survivor”. Owen had relapsed.

The morning the cancer revealed itself to us again was just like any other. Coffee, news, breakfast, cartoons.... But Owen had slept in. He was tired we thought from playing at the park the day before. But when he finally awoke and got out of bed, he couldn't walk. He was shaky and unstable. I remember my husband calling out to me from the bedroom. The sound of worry and urgency in his voice. I stopped what I was doing in the kitchen and headed towards the hall. That's when I saw him. Owen was struggling to stand. I stopped there in the doorway and sat down on the floor and sobbed. I knew what had happened. My instincts hadn't failed me before although, I prayed desperately that this time I was wrong. We called the hospital to report his symptoms to his doctors, they told us to come in immediately. We packed in slow motion. We didn't want to go back. We knew what this meant. Couldn't we have just one more day of innocent optimism? But the testing began again. ID bracelets, white sheets, lines accessed and fluids started. Weight and height measured, blood drawn and vitals recorded. It had only been 7 weeks? The news of our admission started to travel. At first down the halls and out the doors but then to our hometown to neighbors, family and friends all across the country. We had always kept everyone “in the loop”. It was a careful but conscious decision we made early on in Owens diagnosis to share his journey with the everyone. To share our good days and our bad. What started off as just a few followers quickly grew. We knew we would need their prayers and they would need our updates. But no one was prepared for this news. We had all fought so hard to beat this awful disease, especially Owen. And now it was back.

Telephone

Website

OurAmazingOwen.org

Address

Sierra Vista, AZ

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