SaltyCreative

The Art of Spoon Juggling: Navigating Life with POTS Living with Postural Orthostatic Tachycardia Syndrome (POTS) is nothing short of a balancing act. Each day, we manage an invisible but very real juggling act that can leave even the most skilled performer feeling drained. Enter the metaphor of the "spoons," a concept many in the chronic illness community know well....

The Art of Spoon Juggling The Art of Spoon Juggling: Navigating Life with POTS Living with Postural Orthostatic Tachycardia Syndrome (POTS) is nothing short of a balancing act. Each day, we manage an invisible but very real…

Pumpkin time!

Living with POTS often means navigating an unexpected balancing act, one that reaches beyond the realm of health and spills into daily life—including fashion. For many, dressing up is an exciting part of the day, a form of self-expression, and a chance to feel confident. But for those of us with Postural Orthostatic Tachycardia Syndrome, the intersection of comfort and style becomes a daily challenge....

POTS and the Fashion Dilemma: Comfort vs. Style Living with POTS often means navigating an unexpected balancing act, one that reaches beyond the realm of health and spills into daily life—including fashion. For many, dressing up is an exciting p…

Living with POTS (Postural Orthostatic Tachycardia Syndrome) feels like being on a perpetual quest for balance—and one of the biggest battles is staying hydrated. Hydration plays a crucial role in managing POTS symptoms, yet it can sometimes feel like you're in an endless cycle of guzzling water, electrolytes, and salt, all while trying not to overdo it. It’s a delicate dance that often leaves you feeling like you might float away!...

POTS and the Great Hydration Quest: Staying Quenched Without Floating Away” Living with POTS (Postural Orthostatic Tachycardia Syndrome) feels like being on a perpetual quest for balance—and one of the biggest battles is staying hydrated. Hydration plays a crucial role in …

*not my image* taken from another person living with POTs. But this is sooo important. POTs is actually neurological which then affects everything else

Living with Postural Orthostatic Tachycardia Syndrome (POTS) often feels like an unpredictable journey. Every day can bring a new set of challenges, from sudden dizziness to overwhelming fatigue. But in the midst of these struggles lies a hidden superpower: adaptability. Those of us with POTS have learned, often out of necessity, how to adjust, cope, and thrive in a world that demands flexibility....

Adapting to Life with POTS: A Journey of Resilience Living with Postural Orthostatic Tachycardia Syndrome (POTS) often feels like an unpredictable journey. Every day can bring a new set of challenges, from sudden dizziness to overwhelming fatigue. B…

Today, something really hit home for me. I received this comment from a family member who hasn’t spoken to me in years. This is the reality that people with invisible disabilities like POTS are facing. We constantly encounter judgments from those who have no understanding of our struggles, yet they feel entitled to speak about our conditions and treatments.

This comment broke my heart. Not only did this person feel it was appropriate to speak to me in such a harsh and uninformed way, but they also assumed they could dictate how I should manage my illness without knowing a single detail about what I endure daily.

Living with an invisible illness is hard enough. Facing ignorance from people who should care about us makes it even harder. This is why education and awareness around chronic illnesses are so important — so that people can understand that every experience is different, and no one has the right to invalidate what we’re going through.
Be kind. It takes no effort to be kind or to just ignore someone else’s post that you don’t agree with.

Check out my newest post on (mis) adventures of a POTSie

Living with Postural Orthostatic Tachycardia Syndrome (POTS) is often like fighting a battle no one can see. It’s a condition that affects the autonomic nervous system, causing dizziness, lightheadedness, fatigue, and a rapid heart rate when standing up. But these symptoms are often invisible, leaving those who live with POTS to face skepticism and misunderstanding from the world around them....

POTS and the Invisible Battle: Advocacy and Awareness Living with Postural Orthostatic Tachycardia Syndrome (POTS) is often like fighting a battle no one can see. It’s a condition that affects the autonomic nervous system, causing dizziness, lighthead…

Living with Postural Orthostatic Tachycardia Syndrome (POTS) is a journey filled with unpredictability. The days can feel like a constant battle with your own body, where standing up becomes an exhausting task and fatigue is your daily companion. It’s easy to get caught up in the frustration of what POTS takes from you. But in this journey, I’ve learned that one of the most powerful things you can do is celebrate the little victories....

POTS and the Joy of Small Victories Living with Postural Orthostatic Tachycardia Syndrome (POTS) is a journey filled with unpredictability. The days can feel like a constant battle with your own body, where standing up becomes an exh…

New post every Saturday! Check out (Mis)Adventures of a POTSie today for more information about POTS.

Megan, why do you always have a bag with you? Why are you always drinking something? What are you putting in your water? So many questions, and if they don't say it out-loud, they stare. So, let's demystify the infamous "POTS Bag". Why Do I Keep a Bag With Me? I always carry a bag with me because I never know when a symptom will hit....

“POTS Survival Kit: What’s in My Bag?” Megan, why do you always have a bag with you? Why are you always drinking something? What are you putting in your water? So many questions, and if they don’t say it out-loud, they stare. So, …