Brain Health Registry

Brain Health Registry

A groundbreaking online project developed by UCSF researchers to speed up clinical trials seeking treatments for Alzheimer's, Parkinson's, PTSD and other brain diseases and disorders.

The Brain Health Registry - led by top medical researchers at UCSF and other leading scientific institutions - is a groundbreaking web-based project designed to accelerate clinical trials seeking treatments for Alzheimer’s, Parkinson's, depression, PTSD, and other brain disorders. Participation is safe, easy and free. Go to www.brainhealthregistry.org to sign up today.

Operating as usual

Brain Health Registry Newsletter - October 2021 - UCSF Brain Health Registry 10/14/2021

Brain Health Registry Newsletter - October 2021 - UCSF Brain Health Registry

We’re excited to announce that the Brain Health Registry is available entirely in Spanish!

Read more in our October newsletter:

Brain Health Registry Newsletter - October 2021 - UCSF Brain Health Registry Haga clic aquí para leer este boletín en español. As National Hispanic Heritage Month draws to a close, the Brain Health Registry (BHR) is proud to announce the official launch...

New brain maps could help the search for Alzheimer's treatments 10/06/2021

New brain maps could help the search for Alzheimer's treatments

A large team of researchers has produced highly detailed maps of the brain region controlling movement in mice, marmoset monkeys, and humans.

These maps could help researchers more accurately model brain diseases like Alzheimer’s and ALS, and could accelerate the search for new treatments.

New brain maps could help the search for Alzheimer's treatments Scientists have created detailed maps of the brain area that controls movement in mice, monkeys and people. The maps could help explain human ailments like Alzheimer's and Lou Gehrig's disease.

On World Alzheimer’s Day, the Black doctor who helped decode the disease 09/27/2021

On World Alzheimer’s Day, the Black doctor who helped decode the disease

Dr. Solomon Carter Fuller, a Liberian-born neurologist and the first US psychiatrist of African descent, made pioneering strides in the Alzheimer’s field over 100 years ago!

Read more here:

On World Alzheimer’s Day, the Black doctor who helped decode the disease Solomon Carter Fuller was a neurologist, the first U.S. psychiatrist of African descent and the person who, in the early stages of Alzheimer’s research, arguably did the most to reveal the true nature of the disease.

09/23/2021

Este grupo es un lugar seguro para quienes tienen seres queridos con Alzheimer y otras demencias. Por favor, comparte este grupo con tus familiares y amigos que hablan español, ya que publicaremos información y datos actualizados sobre la salud del cerebro. Para participar, visita nuestro sitio web https://www.facebook.com/groups/604458450522707/

Este grupo es un lugar seguro para quienes tienen seres queridos con Alzheimer y otras demencias. Por favor, comparte este grupo con tus familiares y amigos que hablan español, ya que publicaremos información y datos actualizados sobre la salud del cerebro. Para participar, visita nuestro sitio web https://www.facebook.com/groups/604458450522707/

Getting Too Little Sleep? You May Be Accumulating Amyloid. | ALZFORUM 09/16/2021

Getting Too Little Sleep? You May Be Accumulating Amyloid. | ALZFORUM

Recent findings from Stanford University suggest that 7-8 hours of sleep per night is associated with better performance on memory tests and lower levels of amyloid protein in the brain, compared with fewer than 6 hours per night.

This study adds to a growing body of literature on the importance of sleep for brain health.

Getting Too Little Sleep? You May Be Accumulating Amyloid. | ALZFORUM Getting Too Little Sleep? You May Be Accumulating Amyloid. Quick Links Article Comments References Further Reading Tools Add to my Library Follow Comments Email With annotations Without annotations Share How would you like to share? Facebook Twitter LinkedIn Back to the Top 10 Sep 2021 People who lo...

09/15/2021

Happy Hispanic Heritage Month! Habla Espanol? Únete a nuestro grupo de facebook!

https://www.facebook.com/groups/604458450522707

Happy Hispanic Heritage Month! Habla Espanol? Únete a nuestro grupo de facebook!

https://www.facebook.com/groups/604458450522707

How Vision Loss Can Affect the Brain 09/07/2021

How Vision Loss Can Affect the Brain

New research is shedding light on the relationship between brain health and eyesight:

How Vision Loss Can Affect the Brain A growing body of evidence suggests that when older people’s brains have to work harder to see, declines in language, memory, attention and more could follow.

09/03/2021

Signing up for Alzheimer's research is great, but only if you are consistent in your participation.

Completing follow-up sessions helps researchers gather better data, and strengthens the fight against Alzheimer's disease.

You can learn more about the benefits of research and how you can join a study on our website:
https://la.brainhealthregistry.org/

Signing up for Alzheimer's research is great, but only if you are consistent in your participation.

Completing follow-up sessions helps researchers gather better data, and strengthens the fight against Alzheimer's disease.

You can learn more about the benefits of research and how you can join a study on our website:
https://la.brainhealthregistry.org/

Brain Health Registry Newsletter - September 2, 2021 | UCSF Brain Health Registry 09/02/2021

Brain Health Registry Newsletter - September 2, 2021 | UCSF Brain Health Registry

Check out the Brain Health Registry’s latest newsletter to learn about exciting developments in the Alzheimer’s field!

Brain Health Registry Newsletter - September 2, 2021 | UCSF Brain Health Registry Researchers presented findings at the forefront of the field during the Alzheimer's Association International Conference.

Alzheimer’s Association Honors Michael Weiner, M.D., with a Lifetime Achievement Award | UCSF Brain Health Registry 08/31/2021

Alzheimer’s Association Honors Michael Weiner, M.D., with a Lifetime Achievement Award | UCSF Brain Health Registry

Read more about Dr. Weiner's recent Lifetime Achievement Award from the
Alzheimer's Association!


Leerlo en español: https://es.brainhealthregistry.org/noticias/el-doctor-michael-weiner-recibio-el-premio-a-la-trayectoria-profesional/

Alzheimer’s Association Honors Michael Weiner, M.D., with a Lifetime Achievement Award | UCSF Brain Health Registry Dr. Michael Weiner, the PI of the Brain Health Registry, received a lifetime achievement award from the Alzheimer's Association

Global dementia cases forecasted to triple by 2050: New analysis shows a decrease in prevalence due to education countered by increase due to heart health risk factors 08/19/2021

Global dementia cases forecasted to triple by 2050: New analysis shows a decrease in prevalence due to education countered by increase due to heart health risk factors

Research presented at the Alzheimer’s Association International Conference last month suggests that the number of dementia cases globally could triple to more than 152 million by 2050.

This increased prevalence is in part due to risk factors like smoking, sedentary lifestyles, high blood sugar, and high body mass index.

https://www.sciencedaily.com/releases/2021/07/210727171713.htm

Global dementia cases forecasted to triple by 2050: New analysis shows a decrease in prevalence due to education countered by increase due to heart health risk factors Positive trends in global education access are expected to decrease dementia prevalence worldwide by 6.2 million cases by the year 2050. Meanwhile, anticipated trends in smoking, high body mass index and high blood sugar are predicted to increase prevalence by nearly the same number: 6.8 million cas...

08/16/2021

According to the Alzheimer’s Association 2021 Facts & Figures special report, non-white Hispanic individuals are 1.5 times likelier to develop dementia than their white counterparts. The Brain Health Registry is working to fight Alzheimer’s in the Latino community through research and discovery.
https://www.alz.org/news/2021/alzheimers-association-partners-with-national-hisp

Learn how you can get involved on our website:https://la.brainhealthregistry.org/.

According to the Alzheimer’s Association 2021 Facts & Figures special report, non-white Hispanic individuals are 1.5 times likelier to develop dementia than their white counterparts. The Brain Health Registry is working to fight Alzheimer’s in the Latino community through research and discovery.
https://www.alz.org/news/2021/alzheimers-association-partners-with-national-hisp

Learn how you can get involved on our website:https://la.brainhealthregistry.org/.

Future Alzheimer's Treatments Aim To Do More Than Clear Plaques From The Brain 08/11/2021

Future Alzheimer's Treatments Aim To Do More Than Clear Plaques From The Brain

Researchers are exploring Alzheimer’s treatments beyond those that target amyloid plaques in the brain.

Another protein called tau, immune cells, and electrical pulses in the brain called gamma waves are all potential therapeutic targets.

Future Alzheimer's Treatments Aim To Do More Than Clear Plaques From The Brain Alzheimer's researchers are trying new treatment approaches, including trying to boost the immune system, remove toxic tangles of protein and stimulate brain waves with light and sound.

Covid-19 could lead to cognitive decline, especially among older adults, new research suggests 08/04/2021

Covid-19 could lead to cognitive decline, especially among older adults, new research suggests

A slew of new research is investigating the relationship between Covid-19 and cognitive impairment, and the complex ways the virus impacts the brain.

However, it remains uncertain whether Covid can accelerate symptoms of Alzheimer’s disease, and more studies are needed.

Covid-19 could lead to cognitive decline, especially among older adults, new research suggests Studies presented at an Alzheimer’s Association conference this week, not yet peer-reviewed, emphasize the need for vaccination, an association vice president said. “The best advice is don’t get covid.”

Michael Weiner, MD Receives an AAIC Lifetime Achievement Award 08/02/2021

Michael Weiner, MD Receives an AAIC Lifetime Achievement Award

Congratulations to Dr. Michael Weiner, the Principal Investigator of the Brain Health Registry, for his Lifetime Achievement Award!

Dr. Weiner has been honored for his outstanding contributions to the Alzheimer's field.

#AAIC21

Michael Weiner, MD Receives an AAIC Lifetime Achievement Award Exciting news from the 2021 Alzheimer’s Association International Conference (AAIC)! UCSF Radiology is pleased to announce that Michael Weiner, MD, professor in residence, received the Henry Wisniewski Lifetime Achievement Award.

Brain Health Registry Newsletter - July 2021 | UCSF Brain Health Registry 07/29/2021

Brain Health Registry Newsletter - July 2021 | UCSF Brain Health Registry

Technological advancements are transforming Alzheimer’s research. Learn more in our July 2021 newsletter!

Brain Health Registry Newsletter - July 2021 | UCSF Brain Health Registry Researchers are using technology to better monitor and diagnose Alzheimer's and other neurodegenerative diseases.

07/22/2021

Learning more about Alzheimer's and dementia can allow you to spot symptoms earlier in yourself or loved ones. Be sure to consult with your health care provider if you think you are experiencing memory issues. Learn more about Alzheimer's on our website: https://brainhealthregistry.org/

Learning more about Alzheimer's and dementia can allow you to spot symptoms earlier in yourself or loved ones. Be sure to consult with your health care provider if you think you are experiencing memory issues. Learn more about Alzheimer's on our website: https://brainhealthregistry.org/

The Big Number: Staying mentally active as you grow older may delay onset of Alzheimer’s by up to 5 years 07/20/2021

The Big Number: Staying mentally active as you grow older may delay onset of Alzheimer’s by up to 5 years

A recent longitudinal study of about 1,900 older adults found that maintaining a cognitively active lifestyle, such as by reading or playing board games, could delay the onset of dementia by as many as five years.

The Big Number: Staying mentally active as you grow older may delay onset of Alzheimer’s by up to 5 years Reading books, playing games or doing puzzles added dementia-free time to older people’s lives, researchers say.

F.D.A. Seeks Investigation of Its Own Alzheimer’s Drug Approval 07/13/2021

F.D.A. Seeks Investigation of Its Own Alzheimer’s Drug Approval

The FDA is calling for an investigation of its own controversial decision to approve the drug Aduhelm for the treatment of Alzheimer’s disease.

F.D.A. Seeks Investigation of Its Own Alzheimer’s Drug Approval The agency’s acting head said a review should look into whether any interactions between agency staff and the drug developer, Biogen, broke F.D.A. rules.

07/08/2021

Alzheimer's disease affects people from all walks of life. It's important that we educate ourselves and empower one another to participate in research. Learn more about our research to fight Alzheimer's on our website: https://www.brainhealthregistry.org/

Alzheimer's disease affects people from all walks of life. It's important that we educate ourselves and empower one another to participate in research. Learn more about our research to fight Alzheimer's on our website: https://www.brainhealthregistry.org/

Controversial Alzheimer’s drug approval could affect other diseases 07/01/2021

Controversial Alzheimer’s drug approval could affect other diseases

The FDA’s recent approval of the Alzheimer’s drug aducanumab was contentious. But how could this decision impact drug development for other neurodegenerative diseases like Parkinson’s and Huntington’s?

Controversial Alzheimer’s drug approval could affect other diseases Aducanumab’s fast-tracking has researchers both worried and hopeful about the future of drugs for neurodegenerative diseases such as Huntington’s and Parkinson’s.

06/29/2021

Learning about Alzheimer's and other forms of dementia will allow you to proactively spot the symptoms in yourself or in loved ones. You can learn more on our website: www.brainhealthregistry.org

Learning about Alzheimer's and other forms of dementia will allow you to proactively spot the symptoms in yourself or in loved ones. You can learn more on our website: www.brainhealthregistry.org

Brain Health Registry Newsletter - June 2021 | UCSF Brain Health Registry 06/24/2021

Brain Health Registry Newsletter - June 2021 | UCSF Brain Health Registry

Why was the FDA’s recent approval of the Alzheimer’s drug aducanumab so controversial? Check out the June 2021 Brain Health Registry newsletter to learn more:

https://www.brainhealthregistry.org/news/brain-health-registry-newsletter-june-2021/

Brain Health Registry Newsletter - June 2021 | UCSF Brain Health Registry On June 7, 2021 the FDA approved aducanumab for the treatment of Alzheimer's disease. This decision was a controversial one.

Registration Page - Enriched | UCSF Brain Health Registry 06/23/2021

Registration Page - Enriched | UCSF Brain Health Registry

Learn more about how research helps your community in the fight against Alzheimer's!
https://www.brainhealthregistry.org/about-the-registry/why-it-matters/

Registration Page - Enriched | UCSF Brain Health Registry Your participation will help speed up the discovery of treatments for Alzheimer’s, Parkinson’s,depression, PTSD, and other brain disorders.

The Secrets of ‘Cognitive Super-Agers’ 06/22/2021

The Secrets of ‘Cognitive Super-Agers’

Researchers in the Netherlands are studying centenarian “cognitive super-agers” to identify characteristics associated with healthy cognitive aging. This type of research could inform strategies for delaying the onset of diseases like Alzheimer’s.

The Secrets of ‘Cognitive Super-Agers’ By studying centenarians, researchers hope to develop strategies to ward off Alzheimer’s disease and slow brain aging for all of us.

Unpaid Caregivers Were Already Struggling. It's Only Gotten Worse During The Pandemic 06/17/2021

Unpaid Caregivers Were Already Struggling. It's Only Gotten Worse During The Pandemic

The Covid-19 pandemic has taken a particular toll on unpaid caregivers of adults.

A recent CDC survey of 10,000 people found that 2/3 of respondents who identified as unpaid caregivers reported mental health challenges like depression and anxiety, versus 1/3 of respondents who did not identify as such.

These findings demonstrate the urgent need for greater support systems and resources for caregivers.

Unpaid Caregivers Were Already Struggling. It's Only Gotten Worse During The Pandemic A new CDC study finds that people who provide unpaid care for their children or adult loved ones are twice as likely as noncaregivers to have experienced depression or anxiety, or thoughts of su***de.

Study identifies how COVID-19 linked to Alzheimer's disease-like cognitive impairment: Research team used artificial intelligence to uncover association between COVID-19 and brain changes 06/15/2021

Study identifies how COVID-19 linked to Alzheimer's disease-like cognitive impairment: Research team used artificial intelligence to uncover association between COVID-19 and brain changes

Using genetic analyses and artificial intelligence, researchers at the Cleveland Clinic examined mechanisms by which Covid-19 infection may cause Alzheimers-like cognitive impairment.

Next, the researchers hope to identify therapeutic targets to help individuals with neurological issues following Covid infection.

Study identifies how COVID-19 linked to Alzheimer's disease-like cognitive impairment: Research team used artificial intelligence to uncover association between COVID-19 and brain changes A new study has identified mechanisms by which COVID-19 can lead to Alzheimer's disease-like dementia. The findings indicate an overlap between COVID-19 and brain changes common in Alzheimer's, and may help inform risk management and therapeutic strategies for COVID-19-associated cognitive impairmen...

06/11/2021

We are thrilled to be partnering with CANTAB Connect!

Today, Cambridge Cognition has been named cognitive assessment partner for the Brain Health Registry.

One of the key barriers facing treatment development for neurological and psychiatric conditions is difficulty recruiting the right patients.

In efforts to address this issue researchers at UCSF established the Brain Health Registry: an online enrolment platform for adults who are interested in participating in brain research.

Find out more about this partnership: https://www.cambridgecognition.com/news/entry/cambridge-cognition-partners-with-UCSF-brain-health-registry

Home | UCSF Brain Health Registry 06/10/2021

Home | UCSF Brain Health Registry

Knowing the difference between natural signs of aging and dementia is crucial for identifying and treating dementia early! Be sure to consult with your health care provider if you think you are experiencing memory issues. Learn more about brain health on our website: www.brainhealthregistry.org.

Home | UCSF Brain Health Registry Your participation will help speed up the discovery of treatments for Alzheimer’s, Parkinson’s, depression, PTSD, and other brain disorders.

F.D.A. Approves Alzheimer’s Drug Despite Fierce Debate Over Whether It Works 06/07/2021

F.D.A. Approves Alzheimer’s Drug Despite Fierce Debate Over Whether It Works

Despite controversy surrounding the drug’s effectiveness, the FDA has approved the use of aducanumab for the treatment of Alzheimer’s disease. The drug targets toxic beta-amyloid protein in the brain, and is intended to slow cognitive decline.

F.D.A. Approves Alzheimer’s Drug Despite Fierce Debate Over Whether It Works Aducanumab, or Aduhelm, is the first new Alzheimer’s treatment in 18 years and the first to attack the disease process. But some prominent experts say there’s not enough evidence it can address cognitive symptoms.

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