PicnicHealth

PicnicHealth

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Hello PA followers: We have a new project that we are recruiting for April. This is for people who have heart failure or been diagnosed with heart failure. You will be required to come to our facility in Carnegie, PA and sit for up to 2 hours wearing a device. At no time will your health be at risk. Compensation for this study is $200. Please click the link below to see if you qualify.
https://www.surveymonkey.com/r/3J3NB2P
Big October Wellness Symposium Presentations via Zoom
• October 11th –Psychosocial Wellbeing, Kathy M. Zackowski, PhD
• October 25th - Diet and MS with Ilana Katz Sands, MD
Register now at https://bit.ly/3kWCy4x.

Starting Oct. 6th - Stop by the MSAA's Exhibit Table at the Virtual MS Community Expo and check out our other events at www.mshopeforacure.org/bigoctober!
Anything for people with crohn's disease
Love this page
I would like to contribute to research in the future if possible.
I have been diagnosed with Charcot Marie Tooth Disease that is been worsened by intentional thoracic damage, but it is worth writing that extra Taurine, acidophilus/other "lactobacillus" strains, bifodobacterium and B-Vitamins (look for purity as with food and prescriptions) helps eliminate problems like healing and white/red blood cell count with iron.
stop spamming my page with your ads! You are blocked!

We help you own your health by compiling all your medical records for you. And we enable you to contribute to research, anonymously and securely.

https://picnichealth.com/about-us

The medical record system is broken. Fragmented, decentralized, difficult-to-track information is out. At PicnicHealth, we believe every person has a right to their own health information. But owning your health starts with access. PicnicHealth collects and securely stores your medical records, doctor’s notes, lab results, imaging, and more—online and all in one

Operating as usual

09/22/2021

Thank you to everyone who joined us for the PicnicHealth PBC Research Info Session Q&A on Sep 21, 2021! If you have any questions about PicnicHealth, please don't hesitate to reach out to us at [email protected].

If you’d like to learn more about participating in PBC real-world data research opportunities from home (takes 5 minutes), you can visit: https://picnichealth.link/PBCweb921. A benefit for those living with PBC who sign up is free lifetime access to PicnicHealth— a service that provides you with all of your medical records from all of your doctors.

09/09/2021

If you are interested in participating in important PBC research from home (takes ~5 minutes), you may be interested in this opportunity!

On Tuesday, Sep 21 at 7pm ET PicnicHealth is hosting a PBC Research Info Session Q&A. This is an opportunity for those living with PBC who are interested in participating to learn more and ask questions. You will hear from a PBC Warrior who decided to join PicnicHealth, as well as Meghan Tierney, PhD, RN, Data Scientist at PicnicHealth. If you are interested, please register here: https://picnichealth.link/PBCinfosessionregistration

PicnicHealth connects patients with researchers to enable them to share parts of their health history anonymously along with hundreds of other patients living with PBC. Without this information, researchers could be missing a critical puzzle piece in discovering better treatments and a cure.

When you sign up, you get free lifetime access to PicnicHealth— a service that provides you with all of your medical records from all of your doctors— and you’ll also get $100.

Learn more: https://picnichealth.link/PBCweb921

Currently, only people who have received medical care in the United States in that last 7 years are eligible.

If you can't make the webinar, please still register as we will be sending out the recording afterward. Thank you!

If you are interested in participating in important PBC research from home (takes ~5 minutes), you may be interested in this opportunity!

On Tuesday, Sep 21 at 7pm ET PicnicHealth is hosting a PBC Research Info Session Q&A. This is an opportunity for those living with PBC who are interested in participating to learn more and ask questions. You will hear from a PBC Warrior who decided to join PicnicHealth, as well as Meghan Tierney, PhD, RN, Data Scientist at PicnicHealth. If you are interested, please register here: https://picnichealth.link/PBCinfosessionregistration

PicnicHealth connects patients with researchers to enable them to share parts of their health history anonymously along with hundreds of other patients living with PBC. Without this information, researchers could be missing a critical puzzle piece in discovering better treatments and a cure.

When you sign up, you get free lifetime access to PicnicHealth— a service that provides you with all of your medical records from all of your doctors— and you’ll also get $100.

Learn more: https://picnichealth.link/PBCweb921

Currently, only people who have received medical care in the United States in that last 7 years are eligible.

If you can't make the webinar, please still register as we will be sending out the recording afterward. Thank you!

06/18/2021

We believe that real-world data can help to improve our understanding of Sickle Cell. This Saturday, June 19th is World Sickle Cell Awareness Day! Join us to celebrate the #sicklecellwarriors in your community at the As One Foundation’s Genotype Jamboree on June 19 at 1 PM CDT https://lnkd.in/dGUZZch. This event is part of the World Sickle Cell Day 24 Hour Celebration— visit runtheworld.today/app/c/wscd for the full schedule of events.

#ShinetheLightOnSickleCell #research #sicklecell #sicklecellawareness

We believe that real-world data can help to improve our understanding of Sickle Cell. This Saturday, June 19th is World Sickle Cell Awareness Day! Join us to celebrate the #sicklecellwarriors in your community at the As One Foundation’s Genotype Jamboree on June 19 at 1 PM CDT https://lnkd.in/dGUZZch. This event is part of the World Sickle Cell Day 24 Hour Celebration— visit runtheworld.today/app/c/wscd for the full schedule of events.

#ShinetheLightOnSickleCell #research #sicklecell #sicklecellawareness

02/26/2021

As we approach #RareDiseaseDay, we're excited to partner with Wylder Nation Foundation to advance medical research on Acid Sphingomyelinase Deficiency (ASMD). Through "ASMD Accelerate", we're creating the most comprehensive real-world dataset on ASMD and centralizing medical records for patients and their families. Our goal is to better understand patient journeys documented in medical record data and translate them into an actionable, de-identified data that can help advance ASMD research. The study is now open and is initially focused on chronic neurovisceral forms of ASMD, commonly referred to as Niemann-Pick Disease Type A (NPA) and Type A/B (NPA/B).
https://www.businesswire.com/news/home/20210226005151/en/PicnicHealth-and-Wylder-Nation-Foundation-Announce-ASMD-Accelerate-to-Contribute-to-Acid-Sphingomyelinase-Deficiency-Research

As we approach #RareDiseaseDay, we're excited to partner with Wylder Nation Foundation to advance medical research on Acid Sphingomyelinase Deficiency (ASMD). Through "ASMD Accelerate", we're creating the most comprehensive real-world dataset on ASMD and centralizing medical records for patients and their families. Our goal is to better understand patient journeys documented in medical record data and translate them into an actionable, de-identified data that can help advance ASMD research. The study is now open and is initially focused on chronic neurovisceral forms of ASMD, commonly referred to as Niemann-Pick Disease Type A (NPA) and Type A/B (NPA/B).
https://www.businesswire.com/news/home/20210226005151/en/PicnicHealth-and-Wylder-Nation-Foundation-Announce-ASMD-Accelerate-to-Contribute-to-Acid-Sphingomyelinase-Deficiency-Research

09/02/2020

WeAreILLmatic Community

PicnicHealth is proud to partner with WeAreILL to support more inclusive MS research. Check out the teaser to Diana's story and stay tuned for the longer video!

Coming soon! We've partnered with @picnichealth to tell a story that we hope inspires MS patients to own their health. The full video drops next week. Subscribe to our posts to be notified. Stay tuned! https://go.pic.nc/weareill #FlyWheelMS #weareillmatic #multiplesclerosis

social.techcrunch.com 09/01/2020

PicnicHealth raises $25 million for its patient health record management service – TechCrunch

Today we’re pleased to announce $35 million in funding, including a $25 million Series B led by Felicis Ventures, and a previously-unannounced $10 million Series A led by Amplify Partners.

These investments will help us expand our work to give patients control of their medical data and ensure they are real partners in advancing scientific research.

https://techcrunch.com/2020/09/01/picnichealth-raises-25-million-for-its-patient-health-record-management-service/

social.techcrunch.com PicnicHealth, the startup that’s looking to give patients a way to manage their care in one place and pharmaceutical companies access to patient records for real world data, has just raised $25 million in financing to grow its business. Founded in 2016 by a former international development wo…

08/31/2020

We're excited to partner with Ultragenyx to advance research on LC-FAOD. The study is now open to volunteers with LC-FAOD!

Announcing a new research study for long-chain fatty acid oxidation disorders: LC-FAOD Odyssey! This study allows you to participate from home and provide de-identified medical information which researchers will use to understand the real-word medical journey of people with LC-FAOD.

Ultragenyx has partnered with PicnicHealth to collect and organize your medical records to help advance research. By participating, you will receive a complimentary PicnicHealth account that allows you to access your entire health history at the click of a button. PicnicHealth does all the work for you. Learn more at https://picnichealth.com/lcfaod

07/17/2020

We’re excited to announce the official launch of our scientific research platform!

Our mission is to empower people to own their health, with better medical data. We’ve always given patients ownership through one-click access to their complete medical records. Another part of giving patients ownership over their medical history is enabling them to use it for the greater good. With the launch of this research platform, we are thrilled to help accelerate breakthroughs in care, too.

The success of our initial research pilots means that we’re expanding to more patients, to help research into more disease areas.

Read more on our blog! https://picnichealth.com/blog/introducing-the-picnichealth-research-platform

nytimes.com 05/11/2020

The New Language of Telehealth

"The federal government has been expanding the use of telemedicine for years — but like so many changes in this pandemic, what used to take years to transform, we are now doing within weeks."

Read more from The New York Times about how telemedicine is evolving during Covid-19 and how it is changing care:

nytimes.com Telemedicine is teaching us new ways to communicate with our patients.

picnichealth.com 05/08/2020

The Benefits of Electronic Health Records (EHRs)

For healthcare providers and patients alike, there are many benefits that come from using electronic health records (EHRs), including fewer medical errors, better communication, and the ability to provide remote care, known as telehealth.

Read more about the benefits of EHRS & how to access them:

picnichealth.com Learn about the benefits of electronic health records (EHRs) and how they can make the medical system more efficient and provide better care for patients.

picnichealth.com 05/07/2020

IBD vs IBS: What's the difference?

Do you know the difference between IBS and IBD? 🤔Despite similar-sounding names, they're very different diseases.

We break down everything from symptoms to causes to diagnosis on the blog:

picnichealth.com Learn about the difference between IBD vs IBS. Inflammatory bowel disease includes diseases like Crohn's disease and ulcerative colitis, whereas irritable bowel syndrome can cause pain but doesn’t lead to life-threatening complications.

mythreesicklers.org 04/25/2020

MTS Sickle Cell Foundation, Inc. – Sickle Cell Awareness and Support

Our partner MTS Sickle Cell Foundation, Inc. has started a COVID-19 financial aid program to help sickle cell families experiencing financial hardship due to the pandemic.

Learn more about the program & eligibility at their website: https://buff.ly/2XRIYtI.

mythreesicklers.org

picnichealth.com 04/23/2020

PicnicHealth

The laws around medical records are tricky. Did you know that although the data in your medical record belongs to you, the patient, the original physical medical record is the property of the physician’s office that generated it?

How does that work, you ask? We broke it down for you on the blog:

picnichealth.com At PicnicHealth, we believe few things are as essential as having complete control over one of the most private and personal forms of information: your medical records.

04/20/2020

picnichealthSCD

We're excited to team up with Jasper House Warriors to provide free health records management for sickle cell patients.

This partnership will help sickle cell patients advocate for themselves by providing the tools and information they need. Email [email protected] to get started!

picnichealth.com 04/18/2020

PicnicHealth

Locating immunization records– AKA which vaccines you've received– isn't always an easy task. If you're trying to locate your past records, try these steps:

- Contact former schools or employers to check if they still have a copy of your immunization record.
- Visit or contact your state’s immunization registry. They often keep thorough records of inoculations, though the process varies state to state.
- Sign up for a personal health record service like PicnicHealth to have the information tracked down for you and stored digitally where you can always access it.

picnichealth.com Immunization and vaccination is a hot-button topic these days, especially in the context of some groups that debate the value of vaccinations. Part of what makes immunization effective is the consistency and regularity of vaccinations and immunizations taken by the different members of the community...

research.picnichealth.com 04/16/2020

Get your electronic health records for IBD (Crohn's or ulcerative colitis)

Make IBD history.

if you're diagnosed with IBD or Crohn's Disease, get access to PicnicHealth for free and contribute toward efforts to power the next wave of new treatments. Learn more:

research.picnichealth.com PicnicHealth gives you secure online access to your medical records. We collect all your records from all your doctors, create a clear, patient-friendly health timeline, and keep your doctors informed.

picnichealth.com 04/16/2020

PicnicHealth

“I’m not going to let this beat me,” Mike says of the multiple sclerosis (MS) diagnosis he received in 2009. In addition to staying active, which he says is key to his ongoing health, Mike also brought his medical records to PicnicHealth so he could keep track of them in one digital timeline.

Read more about Mike's story and see how he uses PicnicHealth to manage MS:

picnichealth.com “I’m not going to let this beat me,” Mike of Denver says of his multiple sclerosis (MS) diagnosis. “Instead, I’m staying active—going to the gym, getting out of the house. I’m just keeping a positive attitude and looking at what I’ve been blessed with—how lucky I really am. I’m j...

04/10/2020

Did you know you can get a preview of what your online health records timeline would look like? Your timeline includes a full history of doctor visits, medications, lab results, and more.

Get a taste of what it's like to have all your information organized and at your fingertips: https://buff.ly/2Ve3nGq

statnews.com 04/08/2020

Covid-19: a huge stress test for electronic health record systems - STAT

"The undeniable fact that electronic health record systems are designed to track and bill procedures rather than provide optimal patient care is likely to be on full display as the health system becomes increasingly saturated with Covid-19 patients."

From functionality to safety concerns, coronavirus will put electronic medical records, and the systems that house them, to the test. Read more about what this means for you as a patient from STAT:

statnews.com Electronic health record systems aren't ready for Covid-19. But because the weaknesses are well-known, health systems can plan for them and around them.

picnichealth.com 04/08/2020

PicnicHealth

There may not be a coronavirus cure yet– or even a fool-proof way to avoid infection– but there are highly effective steps you can take to keep yourself healthy!

Read the top COVID-19 prevention tips according to Dr. Dan Drozd, an infectious disease physician at PicnicHealth:

picnichealth.com While there’s no cure or guaranteed way to prevent catching coronavirus, there are a number of steps that you can take to reduce your risk of exposure. I'm an infectious disease physician at PicnicHealth. As an epidemiologist, I've spent spent my career studying how viruses are transmitted and tre...

research.picnichealth.com 04/06/2020

Hemophilia Medical Records for Research

Chronic illnesses don't go away during a global pandemic. If you, or someone you know, is dealing with hemophilia we can help! PicnicHealth will manage your medical records for free when you sign up for our research study and securely & anonymously donate your data to science.

Learn more and get started:

research.picnichealth.com PicnicHealth gives you secure online access to your medical records. We collect all your records from all your doctors, create a clear, patient-friendly health timeline, and keep your doctors informed.

04/03/2020

From taking care of her three daughters diagnosed with sickle cell to running the non-profit foundation MTS Sickle Cell Foundation, Inc., Mapillar does it all!

Read more on the blog about this PicnicHealth user's journey with sickle cell disease and keeping up with everything: https://buff.ly/2yrgUTa

picnichealth.com 04/02/2020

PicnicHealth

As you're isolating at home, have you found yourself googling coronavirus vaccines? Wondering when we might expect some positive news?

You're in luck! We did the research for you and found 5 of the most promising potential coronavirus treatments and vaccines from around the world. Check out the list on our blog:

picnichealth.com Coronavirus continues to prove it’s here to stay, with cases in all 50 US states and in most countries around the world. Since it has become clear that humans and COVID-19 will coexist for months, if not years, to come, governments and researchers have turned their attention to developing a cure i...

inquirer.com 03/27/2020

Electronic medical records could’ve helped my husband in an emergency | Opinion

"Returning from a work trip in D.C., I received the call that every wife and mother dreads. 'Mom, Dad passed out.' The paramedics peppered me with questions about medications, medical history, recent visits to the doctor, and more. I had virtually no answers and no idea how to get them. I found myself juggling conversations, looking for travel arrangements, and comforting my children, all while trying to track down doctors and records."

Read more from Seema Verma, the administrator of the Centers for Medicare and Medicaid Services, on how well-organized and thorough electronic medical records can literally save lives:

inquirer.com That's why I'm glad the Trump administration is working to streamline this process.

Our Story

The medical record system is broken. Fragmented, decentralized, difficult-to-track information is out. At PicnicHealth, we believe every person has a right to their own health information. But owning your health starts with access. PicnicHealth collects and securely stores your medical records, doctor’s notes, lab results, imaging, and more—online and all in one place for easy reference. No paperwork, no phone calls. Just total visibility into your treatment for better care management. With your information in your hands, you have the ability to see and share what’s already yours.

We also want to empower you to have a bigger impact and advance medicine. The more data that scientists have to work with, the more opportunity there is for discovering breakthroughs and life-changing cures. Which is why, with PicnicHealth, you have the choice to share your de-identified medical data with leading rare disease researchers. And use your information as a force for good—for yourself, family members, and future generations to come.

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picnichealthSCD

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PicnicHealth created a new way for patients and researchers to collect, digitize, and organize medical records to use them for good.

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