Running4stevienick
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visit https.//www.pmdfoundation.org PMD Leukodystrophy
(Pelizaeus Merzbacher Disease) is a horrible-cruel disease with no cure, no treatment.
#running4stevienick started with a simple mission, run for those that can’t.My nephew was born with PMD-Leukodystopphy (Pelizaeus-Merzbacher) which is a genetic disease of the central nervous system and spinal cord. Running4stevienick was created in honor of my nephew Steven Nick, diagnosed with PMD at an early age, advised his life expectancy would be short this December we will celebrate his 30t
Help me wish a happy birthday to the one and only Steven Nick - love you
12/09/2020
Holiday cheers are being mailed today !! Thank you PMD Family Support for all you do in supporting families all over the world. Check out this cool word cloud representing locations of those being supported
11/23/2020
Leukodystrophy Awareness month will hold a live drawing for the original new Running Bag 11:00AM PST 2:00PM EST. You still have time go like Running4stevienick check out the bag
09/07/2020
During Luekodystrophy Awareness month wants 1 lucky individual to own 1 of 3 race day running bags. Personal embroidery included. This awesome backpack has a separate compartment for shoes, glasses and cloths.
To win simply post:
“I support “
Remember, we run 4 those that can’t.
09/07/2020
It’s week 2 of Luekodystrophy Awareness month !! Don’t forgot the awesome chance to win a new pair of Apple AirPods AirPod Pros !! That right PROS.
HOW:
1. Simply make a minimum $5.00 donation to www.PMDFAMILYSUPPORT.COM each additional $5.00 is an additional entry.
2. Like page comment done and share - that simple
Happy Labor Day - lets share some love for Stevie Nick !!
PMD Family Support We strive to provide support for families whose child/children have been diagnosed with Pelizaeus-Merzbacher Disease. We do this by offering an internet support group as well as hosting an annual family support conference for these families.
09/02/2020
Who’s ready for those AirPods 🤪 here’s a link to make that minimum donation of $5 .. We are feeling great this week SO, each additional $5 is an additional entry ... LETS GO
Amanda
https://paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=Z6VV8NFK3AXC4&source=url
Here’s your chance to win Apple AirPods
09/02/2020
Leukodystrophy 101, presented by Dr. Paul Watkins: https://www.youtube.com/watch?v=vVfTfBo5qMk&t=227s
Click here to claim your Sponsored Listing.
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