Passage Bio

We’re excited to be part of The Association for Frontotemporal Degeneration Education Conference! This event brings together the FTD community, care partners, families, and researchers to learn more about the latest in research and approaches to care.

Meet our team and explore resources and support for the community. Register for free: https://bit.ly/3NC20QX

Genetics play an important role in many cases of FTD, and access to trusted, expert information can make a meaningful difference for individuals and families navigating questions about risk, testing, and what it may mean for the future.

Tomorrow, The Association for Frontotemporal Degeneration will host a webinar offering the FTD community the chance to hear directly from an expert and gain clear, reliable insights.
We’re proud to support opportunities like this one that connect the community with trusted information and resources. Learn more and register here: https://loom.ly/WLz5IAU

Do you know the early signs of frontotemporal dementia (FTD)? Swipe through to learn more.

FTD affects areas of the brain responsible for behavior, personality, and decision-making, so early symptoms often appear as behavioral changes rather than memory loss. Some people may experience social withdrawal or apathy, develop ritualistic or compulsive behaviors, act with reduced inhibition, or show hyperorality, such as mouthing of objects or changes in eating habits.

For many individuals and families affected by FTD, questions about genetics, testing, and inherited risk can feel overwhelming. Conversations with genetic counselors can help provide clarity, education, and guidance during what is often a complex journey.

We’re proud to support initiatives like this that connect the FTD community with trusted experts and meaningful resources.

Learn more and register: https://loom.ly/DeTHvmM

Ask a Genetic Counselor

Huntington's disease is caused by a genetic mutation in the huntingtin (HTT) gene and affects families across generations. In the United States, more than 200,000 people are estimated to be at risk.

Increasing awareness is an important step toward advancing research, supporting patients and caregivers, and driving progress toward meaningful treatment options.

Thank you to The Association for Frontotemporal Degeneration for bringing together advocates, researchers, families, and industry partners united by a shared commitment to progress at the Hope Rising Benefit! We are so proud to stand alongside this community.

The Passage Bio team recognizes that recent news regarding the discontinuation of a gene therapy clinical study in FTD caused by GRN mutations may feel discouraging for individuals and families who have been closely following this research.

Research in FTD-GRN is ongoing, and opportunities for participation remain. We encourage families to explore trusted resources such as Cure GRN-FTD and The Association for Frontotemporal Degeneration for up-to-date information. We remain deeply committed to the FTD community — to listening, learning, and supporting patients and families while advancing research with urgency and care.

Read more here: https://loom.ly/ZSK9cU8

A Message for the FTD-GRN Community | CureGRN Passage Bio affirms its commitment to the FTD-GRN community and highlights ongoing research and clinical trial options through trusted resources.

In recognition of Rare Disease Day, Passage Bio employees are wearing stripes to show our support for patients and families impacted by rare CNS disorders, including frontotemporal dementia and Huntington’s disease.

FTD Research: What It Is, What It Isn’t, and Why It Matters | CureGRN Learn how frontotemporal degeneration (FTD) research—from observational studies to clinical trials—drives understanding, treatments, and future cures.

Caregivers are essential every day. This , we thank you for your unwavering dedication, compassion, and strength.