Mackenzy Jo's Quest
Hi Everyone! We (Mackenzy Jo's Mom [Becky] and Dad [Dave]) decided to create this page after updating several (12+) posts became a little overwhelming.
From now on, all of Mackenzy Jo's medical update will be posted here #MackenzyJosQuest
07/04/2023
Mackenzy Jo is 6 today!
A very short CAPS update- the Ilaris is still our miracle drug 🩷
As Mackenzy grows it’s an ever evolving process to figure out her best dosage- so she still gets fevers and flares a few days before her dosage is due.
In August we’ll take our yearly trip to Cincinnati to see her Rheumatologist.
Mackenzy is hoping she has made enough progress with her SMO’s and Physical Therapy to correct her hypermobility in her knees and her toe walking (both side effects of autoinflammatory diseases) to get cleared to participate in Ballet- she has been so patient in waiting!
Overall, our CAPS girl is Thriving! And we could not be more blessed 🩷
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