Surf

10 years since we lost you dad. I remember the morning you passed in hospice at home very clearly. A sad day, but forever grateful it was at home and not in a hospital. We love you and I know you are looking down on us. Im forever grateful for the 14 years we spent together. Love you dad

6 years of treatment. A journey that seems never ending at times. And with chronic GVHD my biggest complaint is fatigue. It seems to be something that holds me back from fully living. I live as much as I can with my illness but no matter how healthy I eat, how much I exercise and rest I cannot shake the chronic fatigue this illness causes me. I’m extremely grateful to be alive and I push through as much as I can and I don’t allow this disease to define me, but there are times when it’s rough. Times when the last 6 years starts to catch up to me. The daily immunosuppressant and re occurring treatments are tiring, and it’s an odd in between life I live. Some people look at me and assume I’m back to normal and fine, but the struggles are still very real. However I won’t give up on my health, fitness, advocacy and training journey. I will continue to push through because this is the life I was given. And even though it’s a struggle, it’s still beautiful. Like I always say, I won’t let myself be a victim of this disease or my circumstances❤️🙏🏼😌