Reeling It In For Rett

This page is dedicated to promoting Rett awareness through our annual Reeling It In For Rett fishing tournament. In the words of Rett dad Kevin Black, "Rett syndrome (RTT) is a neurological disorder, found primarily in females. The girls progress normally up until about 12 to 18 months of age when the characteristics of Rett start to reveal themselves. All the social skills and motor skills they have obtained slowly cease to progress; starting a process of regression to what is the equivalent of living the rest of their life as an infant. They lose use of their hands, the ability to speak and most are bound to a wheelchair. Parents and siblings become 24-hour caregivers, changing their lives forever as well…"

Thank you for helping us help those who cannot help themselves.