Maladiemon

Come visit the Colorado Rare Disease Advisory Council table and grab some trading cards!

Back at it. Filled more envelopes and handing them out tomorrow at the State Capitol. I gave some to a Representative I’ve never met and she was excited to get them! Apparently they are floating around the Capitol and being shown off! It’s working for sure.

Haven’t posted in a bit. These cards were designed as a chronic illness awareness campaign for my work in the community. I’m hopping on the bus to Denver this morning (2 hour ride) to talk to elected officials about protecting access to medications for those with rare diseases. I’m not funded, so all of this is because I feel it’s really just THAT important. I’ve got Tinticular and Spectrol (forgot to order rounded edges because Brain Fogger) to hand out today! I’m also testifying on a medical debt protection bill.

New card came in! I did forget to order curved edges, but 🤷‍♀️. It still works! I will be carrying this with me to the State Capitol for the Colorado SB26-140 PDAB Rare Disease Exemption bill hearings!

causes loss of coordination and balance. It can manifest as a primary illness like in or as part of a condition like , ,
, or . Frequent falls, dropping things, wobbly
walking, and slurred speech could be signs
you need to be tested for ataxia!


National Ataxia Foundation
National Ataxia Foundation:
https://www.ataxia.org

This represents neurological symptoms. and can contribute to things like ,
, , , and
. , , and are
just a few of the conditions that can experience these symptoms.

Often the medications we use come with . medications like
gabapentin, can make you feel dazed and forgetful. Neuropathy happens in multiple conditions from
to to .
MS Society UK

is a genetic where the muscles don’t receive messages from the nervous system. The earlier symptoms arise, the greater impact can have. This causes extreme of the muscles used for ,
, , and .


Read more here:
https://www.mda.org