Surviving CRPS & Chronic Pain, Our Personal Journeys

Surviving CRPS & Chronic Pain, Our Personal Journeys

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I contracted HIV in 2020, I was told by my doctor that there's no possible cure for HIV. I started taking my ARV's, My CD4 was 77 and viral load was 112,450. I saw a website of Dr. OFURE, also I saw a lot of testimonials about him on how he uses herbal medicine to cure HIV. I contacted him and told him my problems, He sent me the herbal medicine and I took it for some week after then I went for check-up and I was cured. The medicine has NO SIDE EFFECT, there's no special diet when taking the medicine. He also cure ALS, HEPATITIS B, CANCER, HERPES, DIABETES, STD. And lots more. You can reach him on [email protected] or WhatsApp [+2348073818653] good luck.
https://www.facebook.com/Dr-Ofure-herbal-cure-109328651402324/
Please delete if not allowed to post it here but I hope to be a help for some of you.

I work for physical therapy clinic in Mount Prospect, Illinois. We use a groundbreaking manual therapy technique called Counterstrain that provides substantial promise for reducing the symptoms of CRPS. Here is the link to our website: https://pdrehab.com/what-we-treat/complex-regional-pain-syndrome-crps/
Here is a story of one of our patients. Dorothy was diagnosed with type 2: https://pdrehab.com/blog/crps/
We offer free screens so you can meet one of our therapists to see if we could help. Feel free to call us or message me for more information.
Happy Hanukkah!

#friendsofsfm #fsfmmusicfundamentals @robynsol @marksoldevilla #hanukkah #channukah #holiday #celebration @drjoygalliford #havanagila The Fish House Miami At the Bench with Dr. Joy Friends of South Florida Music RSD/CRPS Research and Developements Burning Nights CRPS Support CRPS Surviving CRPS & Chronic Pain, Our Personal Journeys Women's Chamber of Commerce of Miami-Dade County CoconutGrove ChamberofCommerce
Hi all. So, the last few days I’ve had constant bladder pain. I can’t sit, sleep…that kind of pain. Do any of you crps’s have this? It feels like Interstitial cystitis? It’s so awful, I can’t stand it.
Thank you.
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🖊 History of #neuromodulation - 2001!
🖊 #Complexregionalpainsyndrome (#CRPS): causes, symptoms & management

Credit: Medtronic

#neuromodulation #SCS #spinalcordstimulation #chronicpain #chronicillness #chronicpainmanagement #Sudeck #reflexsympatheticdystrophy #RSD #causalgia #neuroscience #neurotech #medtech #chronischeschmerzen #Uniklinik #Köln

CRPS Netzwerk gemeinsam stark. Bundesverband Burning Nights CRPS Support CRPS Forum CRPS Awareness - The Purple Bucket Foundation Inc. RSD/CRPS Research and Developements Rsd/CRPS Awarenesss Surviving CRPS & Chronic Pain, Our Personal Journeys RSD/CRPS Doesn't Own Me Deutsche Schmerzgesellschaft e.V Deutsche Gesellschaft für Schmerzmedizin e.V.
We would like to invite YOU to be part of our Global #CRPS Community Awareness Photo in honor of CRPS Awareness Month in November! Please submit your photo as soon as you can if you would like to be included!

If you would like to participate, please follow these instructions:

1.) Prepare to take your photo. We invite and prefer you use one of our Facebook frames. Here are the links: https://bit.ly/2OLqghs or https://bit.ly/3hpDFIc Please also feel free to include the flag for the country you are from. We do not allow use of profanity or promotion of businesses or groups.

2.) Say cheese and have fun! Please wear orange or order a customizable CRPS awareness package which can include a soft CRPS awareness t-shirt, temporary tattoos, and stickers: https://crpsforum.com/shop/ Take a clear photo and make sure you are happy with how it looks.

3.) Resize your photo to 1000x1000 pixels, we find Adobe helpful. Here is the link: https://adobe.ly/2OJ6CCz We can not accept photos that are not resized.

4.) Submit your photo to [email protected] with the subject heading “Global CRPS Community Awareness Photo” and state what country you are from.

Our Global CRPS Community Awareness Photo will be revealed on November 1st and will be released through our monthly virtual newsletter and social media. We hope you choose to participate and share this photo on November 1st and help us raise awareness together, globally! We are one and we are stronger together!

CC: Global Genes Color The World Orange RSD/CRPS Doesn't Own Me Mirica Oska Wellness ARPwave Terrain Pharmaceuticals Abbott Medtronic Nevro HF10 WheelLove RSD/CRPS Research and Developements Surviving CRPS & Chronic Pain, Our Personal Journeys

#crps #complexregionalpainsyndrome #rsd #reflexsympatheticdystrophy #crpsstrong #crpshope #crpswarrior #crpsfighter #crpscommunity #crpsawareness #crpsforum #rsdawareness #crpsthriver #nonprofit #crpsglobalcommunityawarenessphoto #hopeisthefirststep #sudeck #crpsconvention
I just had surgery on my thumb. I severed both tendons on the top.. They decided that they were going to do a nerve block on my whole arm to try and trick my brain. They did all this in hopes that I would not have a flare up..... 3 day after surgery I got one of the worse flare up ever!! Both my arms and hand nerves were pi**ed to say the least. I'm still having small flare up. Has anyone had surgery and had flare ups days after. Thank you for taking the time to read my story.
I am responding to you because my grandson went through this and ended in a wheel chair, we found a clinic at Mercy Hospital in Kansas City, Missouri that helped him and they were wonderful. He was out of the wheelchair in about 2 weeks and back in school after 3 weeks walking. Please contact them and hopefully you can get her well again.
Has anyone here experimented with mega-dosing fish oil? I listen to Joe Rogan's podcast and heard to see any effect with fish oil you need a mega dose, so I'm trying that and seeing some help with my CRPS Type II, I think.
Need some advice...
I have a degenerative disc disease and it affects my cervical and lumbar spine. Right now I am struggling with the cervical spine. I have been feeling so much pressure in my head and neck lately. Not so bad in the morning but think the longer I'm up the worse it gets. I can't chew gum as it makes it worse.
Today I noticed that the left side of my head had more pressure but the right side felt tingles/numbness. Like it feels when you get dental work done. My tongue and teeth feel heavy.
Does any of this make sense to any one?

We are dedicated spreading awareness & helping eachother along our journey with CRPS & Chronic Pain. Instagram: crps.warrior, twitter: @CRPS_RSD_UNITED

Peer 2 peer chronic pain support group. Everyone is welcome! This page is intended for people who have CRPS & Chronic Pain. We are dedicated to providing peer to peer support, share information and help one another along #ourjourney #CRPS #chronicpain

Disclaimer: The information contained in the Surviving CRPS & Chronic Pain our Journey Support Group and website are meant to be accurate yet are

Eamonn Holmes reveals ‘hellish ten months’ with chronic pain 01/16/2022

Eamonn Holmes reveals ‘hellish ten months’ with chronic pain

“TV presenter Eamonn Holmes has spoken out again about the “hellish ten months” he has had with chronic pain following three slipped discs. The Belfast-born man revealed he receives treatment for the condition every day, but described it as “hideous”.

The new GB News presenter told The Times on some of the worst occasions he also has to rely on taking the powerful pain medication tramadol to ease the symptoms….. I get treatment every day. I get physio every day. I do exercises every day, get a bit of massage, which sounds pleasant but never is. Always love that, ‘He’s going for a massage today’ — and all you do is squeal and yell. But chronic pain is hideous.”

Eamonn Holmes reveals ‘hellish ten months’ with chronic pain via Belfast Telegraph

Eamonn Holmes reveals ‘hellish ten months’ with chronic pain TV presenter Eamonn Holmes has spoken out again about the “hellish ten months” he has had with chronic pain following three slipped discs.

Review of complex regional pain syndrome and the role of the neuroimmune axis - Amrita Prasad, MD, Krishnan Chakravarthy, MD, 2021 04/08/2021

Review of complex regional pain syndrome and the role of the neuroimmune axis - Amrita Prasad, MD, Krishnan Chakravarthy, MD, 2021

“Increasing evidence supports a role for inflammation and neuroinflammation in CRPS pathophysiology. Preliminary neurostimulation findings, together with the role of (neuro)inflammation in CRPS, seems to provide a compelling rationale for its use in CRPS pain treatment”

Research (2021): Review of complex regional pain syndrome and the role of the neuroimmune axis


https://journals.sagepub.com/doi/full/10.1177/17448069211006617

Review of complex regional pain syndrome and the role of the neuroimmune axis - Amrita Prasad, MD, Krishnan Chakravarthy, MD, 2021 Background Complex regional pain syndrome (CRPS) is a progressive and painful disease of the extremities that is characterized by continuous pain inconsistent w...

Study challenges the effectiveness of cannabis-based medicine for treating chronic pain 03/27/2021

Study challenges the effectiveness of cannabis-based medicine for treating chronic pain

“Researchers from the University of Bath's Centre for Pain Research have contributed to a major international review into the safety and efficacy of cannabinoids when used to treat pain, including chronic pain in children and adults..... Our review shows that there is limited evidence to support or refute their use for the management of any pain condition. The studies we found were poor quality (high risk of bias) and the evidence was of very low-certainty, meaning that we are very uncertain of the findings and more research is needed."

Study challenges the effectiveness of cannabis-based medicine for treating chronic pain

https://medicalxpress.com/news/2021-03-effectiveness-cannabis-based-medicine-chronic-pain.html

Study challenges the effectiveness of cannabis-based medicine for treating chronic pain Researchers from the University of Bath's Centre for Pain Research have contributed to a major international review into the safety and efficacy of cannabinoids when used to treat pain, including chronic pain in children and adults.

clinicalpainadvisor.com 01/14/2021

Psychosocial Factors Are Key to Chronic Pain and Opioid Outcomes - Clinical Pain Advisor

“Researchers found a relationship between pain-related anxiety with pain intensity, interference, and the potential for opioid overuse. These results, which included an analysis of data from 2 studies”

Psychosocial Factors Are Key to Chronic Pain and Opioid Outcomes via Clinical Pain Advisor

clinicalpainadvisor.com Transdiagnostic factors help in understanding the complex relationship between chronic pain and opioid misuse.

11/28/2020

Empaths, Old Souls & Introverts

11/25/2020
11/25/2020

Stephan Speaks Relationships

❤️ Join my FREE text community. Text "LOVE" to 770-373-4246 or click here 👉 https://my.community.com/stephanspeaks

11/24/2020

For Spoonies and friends ONLY

11/21/2020

I do not believe I remember... You?

themighty.com 11/21/2020

My COVID-19 Fears as a Chronically Ill Person Are Valid

https://themighty.com/2020/10/covid-19-fears-chronic-illness/

themighty.com "I cannot keep having the same conversations so many months into this."

11/18/2020

Beautiful BiPolar Babes

11/15/2020
11/15/2020

Blessing Manifesting

themighty.com 05/23/2020

18 Photos That Show What a Chronic Pain Flare Looks Like

“While chronic pain flares are awful on their own, it can also be difficult to have others understand what you are doing through because people cannot always “see” chronic pain”

18 Photos That Show What a Chronic Pain Flare Looks Like


https://themighty.com/2020/05/chronic-pain-flare-photos/

themighty.com "Looking totally 'normal.'"

04/04/2020

CRPS - We are always strong

04/02/2020

CRPS - We are always strong

themighty.com 03/09/2020

When Trying to Act 'Normal' With Chronic Illness Leads to 'Running on Empty'

themighty.com "I've hit a brick wall like never before."

03/03/2020

For Spoonies and friends ONLY

03/01/2020

Borderline Personality Disorder - I Hate You =Dont Leave Me

03/01/2020

CRPS - We are always strong

themighty.com 03/01/2020

When Chronic Illness Means You Don't Fit Into Any Friendship Circles

themighty.com "I am finding it increasingly more difficult to relate to people."

02/29/2020

Chronic Illness on The Mighty

"What exactly is sick supposed to look like anyway?"

burningnightscrps.org 02/28/2020

Pain Scale | CRPS Pain Management | Burning Nights

burningnightscrps.org The complex regional pain syndrome stages of pain can be seen by looking at the diagram in comparison to other pains in life. Find out more about CRPS pain scale here.

sign.moveon.org 02/28/2020

DEA vs. chronic pain patients

sign.moveon.org The DEA is forcing doctors that treat people with chronic pain to stop using opiate pain medicine. These medicines help us live a daily life with the ability to function: bathing, dressing, shopping, walking, and other normal activities. In their effort to stop illegal drug activities, the DEA is hu...

02/27/2020

Burning Nights CRPS Support

Thought of the day
When you are frustrated with me because of the things I cannot do, just imagine how frustrated I must be because I’m not able.

happyworld4u.com 02/27/2020

A strong woman

happyworld4u.com In my point of view a women become strong when she ignores that back bitching of people about her. She

themighty.com 02/26/2020

Why We Need to Include Chronic Pain in Suicide Prevention

themighty.com "No, this isn't a matter of patients needing to 'toughen up.'"

statnews.com 02/26/2020

Stop persecuting docs for legitimately prescribing opioids for chronic pain

statnews.com Government policy regarding opioid prescribing for chronic pain is a mess. Repealing the CDC guideline would help straighten things out.

02/25/2020

Surviving Borderline

02/20/2020

Color The World Orange

We are so excited to announce that the I-35W Bridge in Minneapolis Minnesota will be lit orange on November 2 for the seventh-annual Color The World Orange™ for CRPS/RSD Awareness!

The bridge will be lit for a ½ hour before sunset to ½ hour after sunrise.

02/20/2020

For Spoonies and friends ONLY

02/19/2020

Color The World Orange

We are so excited to announce that the Baltimore City Hall dome in Baltimore, Maryland will be lit orange on November 2 for the seventh-annual Color The World Orange™ for CRPS/RSD Awareness!

02/15/2020

CRPS - We are always strong

We hope everyone has a low pain day 🧡🧡

qt.com.au 02/13/2020

"Suicide disease": The most painful condition on earth

qt.com.au The worst pain ever inflicted on a human being is a disease called Complex Regional Pain Syndrome (CRPS).

02/12/2020

My Borderline Heart

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C**n Rapids, MN
55448
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