Hidden Innovations in Disguise

Earlier this year, I had the opportunity to attend Rare Disease Day at the NIH in Washington DC 💛

The event brings together patients, researchers, advocates, and families to raise awareness about rare diseases and the real impact they have on people’s lives.

One of the most inspiring parts was hearing personal stories from patients like Lindsay Guentzel, who shared how a clinical trial helped put her disease into remission, and Olivia Kania’s family, who talked about how research and partnerships led to life-changing treatment options for juvenile myositis.

Moments like this are such an important reminder of why advocacy, research, and clinical trials matter so much. Behind every treatment and breakthrough is a real person, a real family, and real hope ✨

Earlier this spring, I visited the Vietnam Veterans Memorial in Washington DC.
Seeing all the names was already emotional, but finding veterans with the same last name as mine made the experience feel even more personal.
Today on Memorial Day, I’m thinking about the people and families behind those names and honoring the sacrifices they made ❤️

The Disability Leadership Banquet at University of Notre Dame was such a special night 💛
It was amazing being surrounded by people working to make campus more inclusive and supportive for students with disabilities through groups like Access-ABLE, Accessibility Leadership Fellows, Active Minds, Supporting Transitions After Returning, and the Department of Disability Advocacy. We also got to hear from Notre Dame alum Matt Swinton and learn more about the impact he and his family continue to make through the Swinton Scholars Program.

I was honored to receive a Mentee of the year award and cannot thank my mentor, Devine, enough for how much she’s helped me during my first year at Notre Dame.

Messages like this are what keep me going 💛

Knowing that something created from my own experience can now help other kids feel more confident and less stressed means everything to me.

That’s always been the goal - turning challenges into solutions that make life a little easier for someone else.

Kids Underwear Our underwear is designed with discretion in mind, made especially for children with incontinence problems. Take comfort in knowing that these un**es and accessories will save the day, with hidden pockets to carry emergency supplies and back up underwear. Buy yours today!

Getting ready for summer travel? ✈️☀️

My Private Pocket Underwear is designed to give kids extra confidence and peace of mind on the go - from airports and airplanes to long commutes and transfers. 💛

The hidden pockets make it easy to carry small travel essentials like wipes, liners, or other “just in case” items discreetly and comfortably.

Because adventures are better when kids can focus less on stress and more on making memories ✨

Hidden Innovations in Disguise

This Mother’s Day feels extra special now that I’m finally back home with my mom for summer 💛
Happy Mother’s Day!

One of the best parts of Rare Disease Week on Capitol Hill was the people. Parents, researchers, and advocates all came together to share stories and experiences. It reminded me how powerful this community is when we support each other.
EveryLife Foundation for Rare Diseases