Alabama Muscular Dystrophy Association

Alabama Muscular Dystrophy Association

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Hello everyone,
My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including deelopemntal diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it.
English survey: https://www.surveymonkey.com/r/PQFSMVV
Spanish survey:https://es.surveymonkey.com/r/2DXD5TX
Thank you and we appreciate all your help
Hello everyone,
My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including developmental diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it.
English survey: https://www.surveymonkey.com/r/PQFSMVV
Spanish survey:https://es.surveymonkey.com/r/2DXD5TX
Thank you and we appreciate all your help
This is JC Higginbotham, the 2009 State of Alabama Goodwill Ambassador. He was busy tending to his farm animals but he wanted to send a big Thank You to everyone who has and will support the MDA Shamrock program. God bless you and buy them and post them proud please! 🍀
We want to extend a huge thank you to everyone who came out to support Guardian’s Inaugural Clays for a Cause Tournament today! Through this tournament we were able to raise money that will go toward research, screenings, and sending children to MDA Summer Camp! We are proud to support Alabama Muscular Dystrophy Association and the efforts they make towards care and research for those affected by neuromuscular disease. Special thanks to Lower Wetumpka Shotgun Sports Club for hosting and helping making this event a success!
The Muscular Dystrophy Association supports those with neuromuscular diseases such as Muscular Dystrophy and ALS. They raise money for medical procedures like newborn screenings and visits to MDA Care Centers, along with sponsoring kids to attend MDA Summer Camp. Funds from our Inaugural Clays for a Cause Tournament will benefit Alabama Muscular Dystrophy Association and their efforts to help those afflicted with neuromuscular disease. Visit https://www.myguardiancu.com/clays-for-a-cause for more information.
Thank you, Montgomery!! 🎉🙌🙏👍

Thanks to the overwhelming generosity of the citizens of Montgomery, Montgomery Fire/Rescue was able to present the Alabama Muscular Dystrophy Association with a total donation of $79,000! In our 21 year partnership with MDA, MF/R has donated over 1.4 million dollars. That’s absolutely amazing!!

Collections from the #filltheboot campaign totaled $73,100. Fire Chief Jordan raised $5,900 on his own through the “30 Days of Strength” campaign. Additionally, Mayor Stange donated $1,000 of his own money to allow us to present MDA with $80,000!! 👀🙌

These funds benefit families all over Alabama including right here at home. The donations allow children to attend summer camp, provide assistance to families dealing with treatment, and also go to research for new medications to treat muscular dystrophy.

Again, all of this is possible because of you, the citizens of Montgomery who give openly to such an amazing cause. Thank you!
Thank you, Montgomery!! 🎉🙌🙏👍

Thanks to the overwhelming generosity of the citizens of Montgomery, Montgomery Fire/Rescue was able to present the Alabama Muscular Dystrophy Association with a total donation of $79,000! In our 21 year partnership with MDA, MF/R has donated over 1.4 million dollars. That’s absolutely amazing!!

Collections from the #filltheboot campaign totaled $73,100. Fire Chief Jordan raised $5,900 on his own through the “30 Days of Strength” campaign. Additionally, Mayor Stange donated $1,000 of his own money to allow us to present MDA with $80,000!! 👀🙌

These funds benefit families all over Alabama including right here at home. The donations allow children to attend summer camp, provide assistance to families dealing with treatment, and also go to research for new medications to treat muscular dystrophy.

Again, all of this is possible because of you, the citizens of Montgomery who give openly to such an amazing cause. Thank you!
Thank you, Montgomery!! 🎉🙌🙏👍

Thanks to the overwhelming generosity of the citizens of Montgomery, Montgomery Fire/Rescue was able to present the Alabama Muscular Dystrophy Association with a total donation of $79,000! In our 21 year partnership with MDA, MF/R has donated over 1.4 million dollars. That’s absolutely amazing!!

Collections from the #filltheboot campaign totaled $73,100. Fire Chief Jordan raised $5,900 on his own through the “30 Days of Strength” campaign. Additionally, Mayor Stange donated $1,000 of his own money to allow us to present MDA with $80,000!! 👀🙌

These funds benefit families all over Alabama including right here at home. The donations allow children to attend summer camp, provide assistance to families dealing with treatment, and also go to research for new medications to treat muscular dystrophy.

Again, all of this is possible because of you, the citizens of Montgomery who give openly to such an amazing cause. Thank you!
Thank you, Montgomery!! 🎉🙌🙏👍

Thanks to the overwhelming generosity of the citizens of Montgomery, Montgomery Fire/Rescue was able to present the Alabama Muscular Dystrophy Association with a total donation of $79,000! In our 21 year partnership with MDA, MF/R has donated over 1.4 million dollars. That’s absolutely amazing!!

Collections from the #filltheboot campaign totaled $73,100. Fire Chief Jordan raised $5,900 on his own through the “30 Days of Strength” campaign. Additionally, Mayor Stange donated $1,000 of his own money to allow us to present MDA with $80,000!! 👀🙌

These funds benefit families all over Alabama including right here at home. The donations allow children to attend summer camp, provide assistance to families dealing with treatment, and also go to research for new medications to treat muscular dystrophy.

Again, all of this is possible because of you, the citizens of Montgomery who give openly to such an amazing cause. Thank you!
Thank you, Montgomery!! 🎉🙌🙏👍

Thanks to the overwhelming generosity of the citizens of Montgomery, Montgomery Fire/Rescue was able to present the Alabama Muscular Dystrophy Association with a total donation of $79,000! In our 21 year partnership with MDA, MF/R has donated over 1.4 million dollars. That’s absolutely amazing!!

Collections from the #filltheboot campaign totaled $73,100. Fire Chief Jordan raised $5,900 on his own through the “30 Days of Strength” campaign. Additionally, Mayor Stange donated $1,000 of his own money to allow us to present MDA with $80,000!! 👀🙌

These funds benefit families all over Alabama including right here at home. The donations allow children to attend summer camp, provide assistance to families dealing with treatment, and also go to research for new medications to treat muscular dystrophy.

Again, all of this is possible because of you, the citizens of Montgomery who give openly to such an amazing cause. Thank you!
How about a Chief climbing the 110’ aerial ladder?👀🚒

That’s exactly what District Chief Stuart (Car 34) did today at the Walmart on Ann Street while Truck 42 was #fillingtheboot for #MDA. Listen in as he shows us his view from the top. #firefighter #laddertruck #districtchief #firetruck #firefighters #community #thankyou Muscular Dystrophy Association Alabama Muscular Dystrophy Association
There's still an hour left to get to the Alabama Muscular Dystrophy Association's Ability Meet Up at Mobile's Hank Aaron Stadium.

MDA is fighting to free individuals — and the families who love them — from the devastating effects of muscular dystrophy, ALS and related diseases.

Operating as usual

11/17/2021

Our long-time partner’s at International Association of Fire Fighters have you covered for all your recipe needs this Thanksgiving! These buttermilk biscuits from Chattanooga Fire Fighters Association, Local 820 are a firehouse favorite, and when you donate to MDA, you can access this recipe and more in the IAFF recipe book!

Donate now: https://filltheboot.donordrive.com/event/firefightercookbook

Our long-time partner’s at International Association of Fire Fighters have you covered for all your recipe needs this Thanksgiving! These buttermilk biscuits from Chattanooga Fire Fighters Association, Local 820 are a firehouse favorite, and when you donate to MDA, you can access this recipe and more in the IAFF recipe book! Donate now: https://filltheboot.donordrive.com/event/firefightercookbook

11/10/2021

MDA National Gala - Thank You

Thank you to everyone who gathered together in support of MDA’s mission for our Toast to Life Gala evening! There’s still time to donate or bid on incredible gifts in the auction here: https://one.bidpal.net/mdatoast/welcome
Thank you National Seating & Mobility for your support!

11/09/2021

We can't wait to see you TONIGHT for the Virtual Toast to Life Gala! Tickets are free! Sit back, relax, and bid on some amazing silent auction items (who needs a vacation?) while you hear updates on research, advocacy, care and more! Join us here at 7:45PM EST!
http://bidpal.net/mdatoast

We can't wait to see you TONIGHT for the Virtual Toast to Life Gala! Tickets are free! Sit back, relax, and bid on some amazing silent auction items (who needs a vacation?) while you hear updates on research, advocacy, care and more! Join us here at 7:45PM EST!
http://bidpal.net/mdatoast

10/28/2021

Be an #MDAWalkStar! MDA Muscle Walk is back in 2022! Register your #MDA #MuscleWalk Team today and together we can empower people living with neuromuscular disease to achieve their full potential. Visit mda.org/musclewalk to register for any in-person or virtual walk Muscular Dystrophy Association

Be an #MDAWalkStar! MDA Muscle Walk is back in 2022! Register your #MDA #MuscleWalk Team today and together we can empower people living with neuromuscular disease to achieve their full potential. Visit mda.org/musclewalk to register for any in-person or virtual walk Muscular Dystrophy Association

10/25/2021

National Seating & Mobility is a proud sponsor of the MDA Toast for Life Event. At NSM, we honor our clients’ journeys of independence and help them get where they deserve to go; at home, in their community and throughout their lives.

Learn more about NSM here: https://bit.ly/3ngb4tx

National Seating & Mobility is a proud sponsor of the MDA Toast for Life Event. At NSM, we honor our clients’ journeys of independence and help them get where they deserve to go; at home, in their community and throughout their lives.

Learn more about NSM here: https://bit.ly/3ngb4tx

10/20/2021

Join MDA for the virtual 2021 MDA National Toast to Life Gala, hosted by April Warnecke, on November 9th at 8pm ET! Register or donate today to empower families living with muscular dystrophy, ALS, and related neuromuscular diseases. Learn more: https://www.mda.org/.../mda-to-host-toast-to-life...
Thank you to our supporters DTE Energy, Hanover Life Reassurance Co, and Medical Properties Trust.

Join MDA for the virtual 2021 MDA National Toast to Life Gala, hosted by April Warnecke, on November 9th at 8pm ET! Register or donate today to empower families living with muscular dystrophy, ALS, and related neuromuscular diseases. Learn more: https://www.mda.org/press-releases/mda-to-host-toast-to-life-national-virtual-gala-on-november-9-at-8pm-et-on-youtube

Thank you to our supporters DTE Energy, Hanover Life Reassurance Co, and Medical Properties Trust.

10/12/2021

Join us on November 9th for the 2021 National Toast to Life Gala and help raise funds for research, care and advocacy for families like Amber Joi-Watkins and her daughter Celine, who lives with #SMA. Register or donate today to empower families living with muscular dystrophy, ALS, and related neuromuscular diseases: https://one.bidpal.net/mdatoast/welcome
Thank you to Outback Bowl, Structure Tone Organization, and Cigna Together for their support

Join us on November 9th for the 2021 National Toast to Life Gala and help raise funds for research, care and advocacy for families like Amber Joi-Watkins and her daughter Celine, who lives with #SMA. Register or donate today to empower families living with muscular dystrophy, ALS, and related neuromuscular diseases: https://one.bidpal.net/mdatoast/welcome

Thank you to Outback Bowl, Structure Tone Organization, and Cigna Together for their support!

10/08/2021

Sponsor Shout out! We want to give a big thank you to Control Southern for joining us as an ALS Champion Sponsor!

Over the last 14th years of Night of Hope Gala the generosity of our community has helped raise over $9 million for ALS research! Each one of our sponsors and partners helps us get closer to better treatments and a cure for ALS.

Thank you Control Southern for your support
!
bidpal.net/atlantanightofhope2022
#MDA #ALS #NightofHope2022

Sponsor Shout out! We want to give a big thank you to Control Southern for joining us as an ALS Champion Sponsor!

Over the last 14th years of Night of Hope Gala the generosity of our community has helped raise over $9 million for ALS research! Each one of our sponsors and partners helps us get closer to better treatments and a cure for ALS.

Thank you Control Southern for your support
!
bidpal.net/atlantanightofhope2022
#MDA #ALS #NightofHope2022

10/07/2021

We are proud to announce Accenture as the 15th Anniversary Night of Hope Gala presenting sponsor!

We are grateful for this partnership and the generosity to help us continue to drive research for ALS!

bidpal.net/atlantanightofhope2022
#MDA #ALS #NightofHope2022

We are proud to announce Accenture as the 15th Anniversary Night of Hope Gala presenting sponsor!

We are grateful for this partnership and the generosity to help us continue to drive research for ALS!

bidpal.net/atlantanightofhope2022
#MDA #ALS #NightofHope2022

09/30/2021

We are proud to announce April Warnecke as host for this year’s national virtual gala! Go to https://one.bidpal.net/mdatoast/welcome to get registered and make sure to tune in on November 9th at 8:00PM ET. We will also feature heartwarming stories from Amber-Joi and her daughter Celine from Philadelphia, Doug from Arizona, and of course our national ambassadors Ethan and Reagan!
Huge thank you to our event sponsors National Seating & Mobility, Numotion, and Sarepta Therapeutics!

We are proud to announce April Warnecke as host for this year’s national virtual gala! Go to https://one.bidpal.net/mdatoast/welcome to get registered and make sure to tune in on November 9th at 8:00PM ET. We will also feature heartwarming stories from Amber-Joi and her daughter Celine from Philadelphia, Doug from Arizona, and of course our national ambassadors Ethan and Reagan!

Huge thank you to our event sponsors National Seating & Mobility, Numotion, and Sarepta Therapeutics!

09/09/2021

Thank You Jiffy L**e

08/31/2021

MDA Takes Vegas Stream-a-thon - Terroriser

08/30/2021

MDA Takes Vegas Stream-a-thon - Alpharad

08/29/2021

Join us on Saturday, September 4, at 4:00 p.m. ET, for the MDA Takes Vegas Stream-a-thon, an eight-hour live-streaming show on Twitch featuring top creators, gamers, and athletes including Alpharad, Terroriser, and Nyheim Hines. Streaming live from the HyperX eSport Arena Streamer Studio at the Luxor Hotel, the MDA Let’s Play channel on Twitch will host hours of competitions, giveaways, and celebrity and surprise guest appearances. Funds raised from the stream-a-thon will support research and care for people living with muscular dystrophy, ALS, and related neuromuscular diseases. Don’t miss out! Learn more here: https://www.mda.org/press-releases/mda-announces-its-inaugural-mda-takes-vegas-stream-a-thon-labor-day-weekend

08/28/2021

MDA Takes Vegas Stream-a-thon

08/28/2021

MDA Takes Vegas Stream-a-thon

08/23/2021

Thank you to all that have supported MDA & Jiffy L**e’s Drive2DoMore campaign so far! There’s still time to Drive2DoMore for MDA families - donate today to support MDA’s programs and services for children and adults living with muscular dystrophy, ALS and related neuromuscular diseases: https://bit.ly/JiffyL**e21

08/16/2021

MDA is teaming up with long time partner Jiffy L**e for the Drive2DoMore campaign to support research, care and advocacy for children and adults living muscular dystrophy, ALS and related neuromuscular diseases. Find a participating Jiffy L**e and donate today! https://bit.ly/JiffyL**e21

08/11/2021

Mark your calendars for the 2021 National Toast to Life Gala on November 9th, 2021! You can help MDA continue funding our mission by registering for the event today and inviting your friends, colleagues, and family to save the date! Visit http://bidpal.net/MDAToast to register and check out our sponsorship opportunities for this unforgettable event! #MDA Cigna DTE Energy Outback Bowl Structure Tone

Mark your calendars for the 2021 National Toast to Life Gala on November 9th, 2021! You can help MDA continue funding our mission by registering for the event today and inviting your friends, colleagues, and family to save the date! Visit http://bidpal.net/MDAToast to register and check out our sponsorship opportunities for this unforgettable event! #MDA Cigna DTE Energy Outback Bowl Structure Tone

08/07/2021

Today is the Virtual Muscle Walk! Thank you to all our donors, participants, sponsors and MDA families who have helped us advance our mission to find a cure for neuromuscular diseases! Check out this video from one of our top Walk teams, The Preston Project, who've raised almost $17K this year for Muscle Walk! Comment below with a photo of how you're celebrating today!

08/02/2021

Nyheim Hines for Jiffy L**e Drive2DoMore Campaign

08/02/2021

Kristine Welker, Chief of Staff of Muscular Dystrophy Association says, “My family connection to Somerville Local 76, Cambridge Local 30, Boston Local 718 fire fighter communities runs deep, and I was grateful to meet with the man whose family started filling the boot for MDA families over 67 years ago! I had the honor of thanking Tom Graney, retired Deputy Chief, in-person! His father, George, started the Fill the Boot program in Boston Local 718 from where the new IAFF General President, Edward “Edzo” Kelly hails, to help out a friend whose children were diagnosed with Duchenne muscular dystrophy -- and the IAFF have been indefatigable in their efforts to never stop filling the boot until cures are found. Today, MDA family members are living longer, fulfilling lives, thanks to the IAFF’s unwavering commitment which has led to 12 FDA approved treatments in the past 6 years! Together, we will continue to find breakthrough treatments and cures.”

International Association of Fire Fighters

Photo (L to R): Kristine's husband, Bill Welker; Jay Colbert, Lt. & IAFF District 3 DVP; Tom Graney, Retired Deputy Chief; Kristine Welker, MDA Chief of Staff; Michael Jefferson, Union President L76; Barry Hamilton, Acting/Lieutenant; Kristine's father, Lawrence Lowe.
Photo credit: Ruby Souza

08/02/2021

Thank you, Blue Cross and Blue Shield of Alabama for sponsoring the 2021 Muscle Walk. With your support, we can continue to provide support for people living with muscular dystrophy, ALS and related neuromuscular diseases, through research, care and advocacy.

Thank you, Blue Cross and Blue Shield of Alabama for sponsoring the 2021 Muscle Walk. With your support, we can continue to provide support for people living with muscular dystrophy, ALS and related neuromuscular diseases, through research, care and advocacy.

07/28/2021

MDA is partnering with Payce, a program that will donate to MDA every time you shop at more than 400 online retailers or with a linked card at participating national stores and restaurants. Sign up today and start shopping for MDA at paycepays.com/MDA

MDA is partnering with Payce, a program that will donate to MDA every time you shop at more than 400 online retailers or with a linked card at participating national stores and restaurants. Sign up today and start shopping for MDA at paycepays.com/MDA

07/27/2021

Throughout the month of August, you can help Jiffy L**e change more than oil. For 10 years our partnership continues to fund MDA’s mission to transform the lives of children and adults living with muscular dystrophy, ALS and related neuromuscular diseases, through research, care and advocacy. With a donation of $3 or more at your local Jiffy L**e, you can Drive2DoMore and receive a savings book on Jiffy L**e services! Find a participating Jiffy L**e and donate today! https://www.mda.org/press-releases/jiffy-lube-and-muscular-dystrophy-association-celebrate-10th-annual-fundraising-campaign-to-support-the-neuromuscular-community

07/15/2021

Join us on July 22nd at 7PM ET for a conversation around accessibility and inclusion in STEM education and careers. Engineers, designers, and innovators from General Motors will share their experiences pursuing a career in STEM and how they are now using their skills and creativity to solve challenges around accessibility and sustainability.

Some of the panelists will also share their personal experiences living with a disability and how they advocated for their needs in higher education and employment. This panel will be co-moderated by MDA Ambassadors Justin Moy and Amanda Zurek, who are currently pursuing careers in STEM. Register today! https://mda.secure.force.com/eventRegistration/?id=7015G0000013hcb

07/13/2021

MDA staff member, Colleen Vineer, ran the Run Disney 2017 Super Heroes Half Marathon with MDA Team Momentum and now is back for the 2021 Disney Wine & Dine Half Marathon Weekend.
“I run with MDA team to show my support for my sister, Laney, who lives with mitochondrial myopathy. Laney never lets a challenge get her down and she doesn’t give up, even when the circumstances seem impossible. I’ll continue to run with MDA to show her that I’ll never give up my commitment to helping fund research and clinical care to help her live her best life.”

Visit https://www.mdateam.org/wad2021 to join Colleen at Walt Disney World for Wine & Dine Weekend! Thank you to CITGO Fueling Good for their support.

Inclusion in STEM: A Discussion with General Motors - Muscular Dystrophy Association 07/08/2021

Inclusion in STEM: A Discussion with General Motors - Muscular Dystrophy Association

Join us on July 22nd at 7PM ET for a conversation around accessibility and inclusion in STEM education and careers. Engineers, designers, and innovators from General Motors will share their experiences pursuing a career in STEM and how they are now using their skills and creativity to solve challenges around accessibility and sustainability. Some of the panelists will also share their personal experiences living with a disability and how they advocated for their needs in higher education and employment. This panel will be co-moderated by MDA Ambassadors Justin Moy and Amanda Zurek, who are currently pursuing careers in STEM. https://strongly.mda.org/inclusion-in-stem-a-discussion-with-general-motors/

Inclusion in STEM: A Discussion with General Motors - Muscular Dystrophy Association According to the National Science Foundation, individuals living with a disability, such as neuromuscular disease, are underrepresented in the fields of science, technology, engineering, and math (STEM). Yet STEM-based careers are growing exponentially, and diversity is needed to drive innovation ...

07/01/2021

National Postal Worker Day,

We love our postal workers and long-time partners at National Association of Letter Carriers! Today, on National Postal Worker Day, we kick off the Branch Challenge to fund research and care for people living with muscular dystrophy, ALS, and related neuromuscular diseases. Join us and donate today in honor of your postal worker! http://bit.ly/NALC_2021

Muscular Dystrophy Association Announces Family Access Programming to Address Barriers for 300,000+ People Living Neuromuscular Diseases Nationwide | Muscular Dystrophy Association 06/09/2021

Muscular Dystrophy Association Announces Family Access Programming to Address Barriers for 300,000+ People Living Neuromuscular Diseases Nationwide | Muscular Dystrophy Association

Announcing the MDA Access series to support people living with neuromuscular diseases throughout their lives. Programming includes access to equipment, assistive devices, K-12, higher education, insurance coverage and therapies. Read more: https://www.mda.org/.../muscular-dystrophy-association.

Muscular Dystrophy Association Announces Family Access Programming to Address Barriers for 300,000+ People Living Neuromuscular Diseases Nationwide | Muscular Dystrophy Association NEW YORK, NY – June 8, 2021 – The Muscular Dystrophy Association (MDA) today announced a new series of programming called MDA Access Workshops. The educational workshops will be on-demand and focus on providing resources for over 300,000 families in the U.S. living with muscular dystrophy, ALS, ...

05/21/2021

Dan Polizzi, member of Aurora Firefighters Local 99, is making his move for Movement Month! In addition to being an #IAFF fire fighter, Dan has also appeared on American Ninja Warrior. He is excited to show how you can #MakeYourMove like a fire fighter and Ninja Warrior.

Videos (show all)

Mollie Beth misses all our awesome Fire Fighters!
Thank you from Joey!
THANK YOU to ALL our fire fighters and first responders! We appreciate you!
☘️ Happy St. Patrick’s Day and THANK YOU from Gabe and Charlie - two Alabama Shamrock Ambassadors #MDA #Shamrocks
Mollie Beth - Alabama MDA Ambassador says Thank You!
Andrew - Shamrock Ambassador, Thank You Shamrock Supporters!
Jaxon -  Shamrock Ambassador, Thank you Shamrock Partners!
We have a winner! Check out which schools won one of these great MDA Shamrock prize boxes 🍀If you want to see your schoo...
We have a Contest Winner! The team kicking off the Montgomery Muscle Walk is.....
An inside look at VIP tent winners and sponsors before the Muscle WalkOf Birmingham kicked off!
It is time for our BIGGEST Muscle Walk Challenge of the year!

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