Myasthenia Gravis Society

Myasthenia Gravis Society

Comments

Henry J. Kaminski, MD, Professor of Medicine at The George Washington University describes the value of being in the Rare Diseases Clinical Research Network (RDCRN). Dr. Kaminsky leads the Myasthenia Gravis Rare Disease Network (MGNET), a consortium in the RDCRN.

https://checkrare.com/the-value-of-the-rare-diseases-clinical-research-network-rdcrn/

The George Washington University Rare Diseases Clinical Research Network (RDCRN) Myasthenia Gravis Society Myasthenia Gravis Support Community

Henry J. Kaminski, MD, Professor of Medicine at The George Washington University describes the value of being in the Rare Diseases Clinical Research Network (RDCRN). Dr. Kaminsky leads the Myasthenia Gravis Rare Disease Network (MGNET), a consortium in the RDCRN.

https://checkrare.com/the-value-of-the-rare-diseases-clinical-research-network-rdcrn/

The George Washington University Rare Diseases Clinical Research Network (RDCRN) Myasthenia Gravis Society Myasthenia Gravis Support Community

Myasthenia Gravis Society

I just got my copy today. If you have children that are struggling to understand MG check out this free book.
https://www.facebook.com/understandinggmg/videos/641157387467797/
Myasthenia Gravis Society

I just got my copy today. If you have children that are struggling to understand MG check out this free book.
https://www.facebook.com/understandinggmg/videos/641157387467797/
Henry J. Kaminski, MD, Professor of Neurology at The George Washington University describes the value of being in the Rare Diseases Clinical Research Network (RDCRN). Dr. Kaminski leads the Myasthenia Gravis Rare Disease Network (MGNET), a consortium in the RDCRN.

https://checkrare.com/the-value-of-the-rare-diseases-clinical-research-network-rdcrn/

The George Washington University Rare Diseases Clinical Research Network (RDCRN) Myasthenia Gravis Society Myasthenia Gravis Support Community

I have had Myasthenia Gravis for over 20 years. Later in life I discovered that I have some artistic ability. So I designed these stickers for my fellow MG warriors. They are available in my Etsy shop https://ArtfulEyeArt.Etsy.com
Nearly 4,000 members in this group means we can really make people see and understand just how we are.

Here's an easy to do, no money involved, fun challenge to raise awareness of Myasthenia Gravis during Myasthenia Gravis Awareness Month this month.

It's as easy and as fun to do as the ALS challenge of a couple years back was.

https://elysebruce.com/mgchallenge

And here's a blog article by fictional 9-year-old Sevierville resident Missy Barrett that explains what MG is, and why this challenge is important when it comes to raising awareness.

https://missybarrett.wordpress.com/2021/06/04/ten-minutes-could-change-the-world/
hey everyone .. Just in time for MG Awareness Month, I have created a clubhouse room for Myasthenia Gravis.
Calling all MG WARRIORS and all allies/caregivers to come join us in support of one another. Remember, Together we are stronger!

Lets work together to create a space for all snowflakes on clubhouse ! (If you do not have CH account, you can use the link below to bypass the waitlist and join the club directly!)

To all my fellow !! I am getting this page back up and running again!! We now have an Instagram page as well! You can find it at https://www.instagram.com/myastheniagravishelp/. Please like and follow our pages. We are going to be talking about MG and how we have lived with and mitigated it while getting on with our lives! Looking forward to hearing from everyone!

Myasthenia Gravis Help Myasthenia Gravis Foundation of America, Inc. Myasthenia Gravis Society Myasthenia Gravis Unmasked Myasthenia Gravis Association Myasthenia gravis
WIN PRIZES!! Lucky Ducky Derby Fundraiser!! Ok, it's a bit goofy, but hey, we have Myasthenia Gravis, so we're there! Instead of the traditional MG walks to raise funds, this yr. MGFA is hosting a FB Live event next month, Sep. 26. You have to purchase rubber ducks to enter. This is like that carnival event we did as a kid. If your duck crosses the finish line, prizes await you & MGFA also gets needed research $$. I plan to purchase a set of ducks for our San Angelo Support Group. Will you help MGFA? Go to link below. Melayne Hendley Daniel Linda Doss Johnny Hawk Rumph Terra Kier Charlotte Buhle Myasthenia Gravis Support Group Leaders Myasthenia Gravis Foundation of America, Inc. Myasthenia Gravis Society Myasthenia Gravis Unmasked
https://www.classy.org/campaign/lucky-ducky-derby/c294694
I was Diagnosed with MG in 2016 after surgery on my upper spine. I couldn't swallow, mumbled and vertigo and shortness of breath. I get IVIG infusions every three weeks. My post request is: are there any Vietnam vets that have successfully been granted a disability because you were exposed to agent orange and it helped expose the MG. I am in the process of applying and need as much info that I can get.
Hello, is there anyone in south Georgia looking to connect, make a group based here, or know of one already?
Question about ENT scope. I have an appointment with an ENT to look at my vocal cords (my primary wants it done). Has anyone had the scope put down in an office? Did it trigger symptoms of swallowing or breathing? Any advice? Thanks 🌸
Intubation question: I am wondering if anyone who has been intubated due to an emergency, not surgery, and woke intubated prior to removal would share their experience with me even if on messenger. I have witnessed it, and do not wish it on anyone. I had another scare last night and fortunately did not decline to that point, but would like to hear from others. Thanks ❤️

Myasthenia Gravis Patient & Caregiver Support We cannot provide medical advice.

The Myasthenia Gravis Society page exists to provide patients and caregivers with timely articles, updates, support and other information related to myasthenia gravis research, treatment and ongoing efforts to find a cure. Please consult with your medical provider before starting or stopping treatment for your MG.

06/22/2023

Amidst the many questions that come with diagnoses, support from others who may have gone through similar experiences can be helpful.
We have another virtual support group coming up June 27 6:30-7:30 pm. RSVP to [email protected] for the Zoom link, and check out our website mg-mi.org for more info on support groups!

06/22/2023

argenx Announces U.S. Food and Drug Administration Approval of VYVGART Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) Injection for Subcutaneous Use in Generalized Myasthenia Gravis

argenx Announces U.S. Food and Drug Administration Approval of VYVGART Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) Injection for Subcutaneous Use in Generalized Myasthenia Gravis argenx Announces U.S. Food and Drug Administration Approval of VYVGART Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) Injection for Subcutaneous Use in Generalized Myasthenia Gravis News June 20, 2023 argenx Announces U.S. Food and Drug Administration Approval of VYVGART Hytrulo Injection for Su...

06/19/2023

Sunday encouragement for you today! Lean into those who give you support and keep fighting each day.

06/18/2023

While we celebrate the fathers in our lives, we also want to remember that MG affects them too! It is most common for men to be affected in their 60's and 70's, and they are more commonly diagnosed with ocular only MG. However, diagnoses and symptoms are variable.

06/18/2023

In the US alone roughly 70,000 people are living with MG, yet each person faces a unique manifestation of symptoms and behaviors. Snowflakes have become representative of the MG community as they both have distinct and individual qualities.

06/15/2023
06/15/2023

Sharing a photo of The Wheel at Union Station in St. Louis, MO lit up last week in support of Myasthenia Gravis Awareness Month! Thanks to argenx and MG Illuminate for making this happen.

Photo cred: Wayne Gassman

06/13/2023

Check out the special supplement in this month's Brain and Life magazine.

06/07/2023

Heat can sometimes be a trigger for MG flare ups. Be aware of how you are feeling and check out some of these ideas for beating the summer sun!

06/07/2023

June is Myasthenia Gravis Awareness month. Don’t forget to spread the word and share your story.

06/03/2023
Redding sisters fighting rare disease 02/28/2023

Redding sisters fighting rare disease

Redding sisters fighting rare disease Stephanie Madole's two daughters, ages six and nine, wake up with a life-threatening disease daily.

02/28/2023

Have you checked our clinical trials page? We recently updated available trials.

http://www.mgakc.org/clinical-trials.html

02/28/2023
11/10/2022

I just got my copy today. If you have children that are struggling to understand MG check out this free book.

https://www.facebook.com/understandinggmg/videos/641157387467797/

08/03/2022

What a powerful and authentic statement!

07/04/2022
06/30/2022

Keep spreading awareness.

06/30/2022

Today is the end of Myasthenia Gravis Awareness Month, but we can spread awareness everyday.

06/29/2022

Such a crucial distinction ❤️

06/29/2022

Help spread awareness about Myasthenia Gravis.

06/27/2022

June is Myasthenia Gravis Awareness.

Learn From A gMG Patient 06/23/2022

Learn From A gMG Patient

I am not endorsing this because I have not participated in them myself but I wanted to pass it along for anyone interested. Next event is today.

Learn From A gMG Patient Ask questions and gather information about generalized myasthenia gravis (gMG) at a free webinar or in-person event. These events are open to patients and their caregivers in the United States.

06/18/2022

Help spread awareness.

How MG can feel.
What does MG feel like to you?

06/17/2022

06/17/2022

Help spread awareness about Myasthenia Gravis. MG can affect anyone at any age.

06/16/2022

Help spread awareness about Myasthenia Gravis

06/15/2022

Truth

06/13/2022
Why Raising Awareness for Myasthenia Gravis Is Important to Me 06/12/2022

Why Raising Awareness for Myasthenia Gravis Is Important to Me

Why Raising Awareness for Myasthenia Gravis Is Important to Me *** Myasthenia Gravis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician...

06/12/2022
Want your business to be the top-listed Clinic in Birmingham?
Click here to claim your Sponsored Listing.

Videos (show all)

Category

Telephone

Address


Birmingham, AL
35259

Other Medical & Health in Birmingham (show all)
Central Alabama Spine Center Central Alabama Spine Center
7101 Happy Hollow Road, Suite 205
Birmingham, 35173

If you need an appointment, call us at 205-868-3741

homeRN homeRN
127 Oak Street
Birmingham, 35213

homeRN provides one-on-one caregiving to clients in the comfort of their own homes. Our services ran

LyfeLines Certification And Staffing, LLC LyfeLines Certification And Staffing, LLC
500 Gene Reed Road, Suite 103
Birmingham, 35215

LyfeLines Certification And Staffing, LLC is a Post Secondary School in Birmingham, Alabama. We offer

Iron City CPR Iron City CPR
Birmingham

If your group or family are interested in learning more about CPR and First Aide in life-threatening

Evocare USA Evocare USA
Birmingham, 35203

WonderMovement LLC / Jennifer Ault / Occupational Therapist WonderMovement LLC / Jennifer Ault / Occupational Therapist
Birmingham

I am an Anat Baniel Method NeuroMovement Practitioner. I have practiced Occupational Therapy since 2

Proton International at University of Alabama Birmingham - UAB Proton International at University of Alabama Birmingham - UAB
400 20th Street South
Birmingham, 35233

Proton International at University of Alabama Birmingham is the first Proton Therapy Center in Alaba

Castle Conjoined Twins Castle Conjoined Twins
Birmingham

We have created this page to allow those interested to follow along with the story of our daughters,

Self-Care WorX LLC. 1 Self-Care WorX LLC. 1
Birmingham

Recreate a better you!!@

CSL Plasma CSL Plasma
7509b Crestwood
Birmingham, 35210

Near to Me - Birmingham Near to Me - Birmingham
Birmingham, 35205

Correctional Medical Services Correctional Medical Services
Birmingham, 35234