Myasthenia Gravis Society
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P. O. Box 12541
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https://checkrare.com/the-value-of-the-rare-diseases-clinical-research-network-rdcrn/
The George Washington University Rare Diseases Clinical Research Network (RDCRN) Myasthenia Gravis Society Myasthenia Gravis Support Community
https://checkrare.com/the-value-of-the-rare-diseases-clinical-research-network-rdcrn/
The George Washington University Rare Diseases Clinical Research Network (RDCRN) Myasthenia Gravis Society Myasthenia Gravis Support Community
I just got my copy today. If you have children that are struggling to understand MG check out this free book.
https://www.facebook.com/understandinggmg/videos/641157387467797/
I just got my copy today. If you have children that are struggling to understand MG check out this free book.
https://www.facebook.com/understandinggmg/videos/641157387467797/
https://checkrare.com/the-value-of-the-rare-diseases-clinical-research-network-rdcrn/
The George Washington University Rare Diseases Clinical Research Network (RDCRN) Myasthenia Gravis Society Myasthenia Gravis Support Community
Here's an easy to do, no money involved, fun challenge to raise awareness of Myasthenia Gravis during Myasthenia Gravis Awareness Month this month.
It's as easy and as fun to do as the ALS challenge of a couple years back was.
https://elysebruce.com/mgchallenge
And here's a blog article by fictional 9-year-old Sevierville resident Missy Barrett that explains what MG is, and why this challenge is important when it comes to raising awareness.
https://missybarrett.wordpress.com/2021/06/04/ten-minutes-could-change-the-world/
Calling all MG WARRIORS and all allies/caregivers to come join us in support of one another. Remember, Together we are stronger!
Lets work together to create a space for all snowflakes on clubhouse ! (If you do not have CH account, you can use the link below to bypass the waitlist and join the club directly!)
Myasthenia Gravis Help Myasthenia Gravis Foundation of America, Inc. Myasthenia Gravis Society Myasthenia Gravis Unmasked Myasthenia Gravis Association Myasthenia gravis
https://www.classy.org/campaign/lucky-ducky-derby/c294694
Myasthenia Gravis Patient & Caregiver Support We cannot provide medical advice.
The Myasthenia Gravis Society page exists to provide patients and caregivers with timely articles, updates, support and other information related to myasthenia gravis research, treatment and ongoing efforts to find a cure. Please consult with your medical provider before starting or stopping treatment for your MG.

Amidst the many questions that come with diagnoses, support from others who may have gone through similar experiences can be helpful.
We have another virtual support group coming up June 27 6:30-7:30 pm. RSVP to [email protected] for the Zoom link, and check out our website mg-mi.org for more info on support groups!
argenx Announces U.S. Food and Drug Administration Approval of VYVGART Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) Injection for Subcutaneous Use in Generalized Myasthenia Gravis
argenx Announces U.S. Food and Drug Administration Approval of VYVGART Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) Injection for Subcutaneous Use in Generalized Myasthenia Gravis argenx Announces U.S. Food and Drug Administration Approval of VYVGART Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) Injection for Subcutaneous Use in Generalized Myasthenia Gravis News June 20, 2023 argenx Announces U.S. Food and Drug Administration Approval of VYVGART Hytrulo Injection for Su...

Sunday encouragement for you today! Lean into those who give you support and keep fighting each day.

While we celebrate the fathers in our lives, we also want to remember that MG affects them too! It is most common for men to be affected in their 60's and 70's, and they are more commonly diagnosed with ocular only MG. However, diagnoses and symptoms are variable.

In the US alone roughly 70,000 people are living with MG, yet each person faces a unique manifestation of symptoms and behaviors. Snowflakes have become representative of the MG community as they both have distinct and individual qualities.


Sharing a photo of The Wheel at Union Station in St. Louis, MO lit up last week in support of Myasthenia Gravis Awareness Month! Thanks to argenx and MG Illuminate for making this happen.
Photo cred: Wayne Gassman

Check out the special supplement in this month's Brain and Life magazine.

Heat can sometimes be a trigger for MG flare ups. Be aware of how you are feeling and check out some of these ideas for beating the summer sun!

June is Myasthenia Gravis Awareness month. Don’t forget to spread the word and share your story.


Redding sisters fighting rare disease
Redding sisters fighting rare disease Stephanie Madole's two daughters, ages six and nine, wake up with a life-threatening disease daily.

Have you checked our clinical trials page? We recently updated available trials.
http://www.mgakc.org/clinical-trials.html


I just got my copy today. If you have children that are struggling to understand MG check out this free book.
https://www.facebook.com/understandinggmg/videos/641157387467797/

What a powerful and authentic statement!


Keep spreading awareness.

Today is the end of Myasthenia Gravis Awareness Month, but we can spread awareness everyday.

Such a crucial distinction ❤️

Help spread awareness about Myasthenia Gravis.

June is Myasthenia Gravis Awareness.

Learn From A gMG Patient
I am not endorsing this because I have not participated in them myself but I wanted to pass it along for anyone interested. Next event is today.
Learn From A gMG Patient Ask questions and gather information about generalized myasthenia gravis (gMG) at a free webinar or in-person event. These events are open to patients and their caregivers in the United States.

Help spread awareness.
How MG can feel.
What does MG feel like to you?


Help spread awareness about Myasthenia Gravis. MG can affect anyone at any age.

Help spread awareness about Myasthenia Gravis

Truth


Why Raising Awareness for Myasthenia Gravis Is Important to Me
Why Raising Awareness for Myasthenia Gravis Is Important to Me *** Myasthenia Gravis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician...

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