UAB Huntington's Disease Clinic

UAB HD Education day is happening soon!

Click here to register:

https://uab.zoom.us/meeting/register/tJEsc-2trDsrGNSxOpKWKoQ5FvtcN29U612d

Come join us May 15th for the Team Hope Walk!
south.hdsa.org/about/alabama-team-hope-walk

We are proud and honored to announce our very own Dr. Sung has been named Chair of HDSA's Board of Trustees! Congratulations!!
https://hdsa.org/news/dr-victor-sung-named-chair-of-hdsas-national-board-of-trustees/

Wanting more HD Education? Tune into HSG Family Day this weekend (10/31) to hear our very own Dr. Marissa Dean! Many fabulous speakers, research updates, and more. Register at https://huntingtonstudygroup.org/hsg-2020/

Hi all,

We are so excited to inform you about this year’s virtual HD Education Day. UAB has partnered with other Centers of Excellence in the Southeast to provide you the most recent updates and information in our HD world. We would love for you to join us virtually THIS Saturday October 24th from 9:00 AM – 2:30 PM. Please register ahead at the following link: https://www.bigmarker.com/huntington-study-group-hsg1/Southeast-Community-Education-Day

Please see the attached flyer and reply with any questions you have – We look forward to seeing all of you virtually!

Thank you!

Hi everyone! Take a look at the videos from convention! We hope to see you next year in Spokane, WA!

https://app.donorview.com/Communication/View?prm=tqITQp5N0w3BYK94HwsDgB1WosiCtMQprdkQ_yrGx2fJMJ-MHmXx2ZGQ8DNYz-ID95O7AnDE0R-1zUQD0mvQFQ_NKHNEzi1X7SqAthLR9N_JmVlON9oRJC1GVoUGPQKl9QyHflwU4FWPKxRhcyg26lkQa-vTOxtcCbVwSSq3fRqezP7U7hMH2ebbdrx0mVnvS39zMhuZtuexLw0GaPUcf5FzzjxPeSNETY43ohY2GJY1

Convention Videos Due to the COVID-19 pandemic, the Huntington’s Disease Society of America (HDSA) transitioned the 35th Annual HDSA Convention, which was scheduled to be in New Orleans, into a virtual event on June 4-7, 2020. In addition to overcoming the challenges of the pandemic, the unique virtual event allowe...

https://www.facebook.com/HDSofA/posts/10157035181138016

Community Update on the 35th Annual

Dear Friends of HDSA,
Thank you for your support and commitment to HDSA as we navigate this unforeseen public health event. We know that fighting Huntington’s disease is overwhelming in the most normal circumstances, and certainly the COVID-19 (coronavirus) crisis has augmented these
challenges.

HDSA is committed to continuing the resources and support that you have come to expect from our nationwide network of Chapters, Affiliates, Social Workers and Support Groups. We
encourage you to visit www.HDSA.org for more information about our online tools and virtual resources, as well as HDSA Community Updates regarding upcoming events and activities.

Unfortunately, our ability to host face-to-face meetings right now is greatly curtailed. Out of an abundance of caution and concern for our HD families, volunteers and staff, we have made the difficult decision to convert the 35th Annual HDSA Convention to a VIRTUAL event. We will not be hosting a physical Convention in 2020.

For the first time in HDSA’s history, we will be streaming our world-class presentations and much-anticipated research updates online, directly to your home – FOR FREE! The event will continue to take place in June, but the exact timing of Convention events is likely to change to
accommodate a nationwide online audience.

The HDSA Convention has been described by many as a great “family reunion” – and to play our part in flattening the curve and controlling the spread of coronavirus – the HDSA staff will work tirelessly with our presenters to produce this milestone event featuring interactive workshops filled with all of the information, support and hope that you have come to expect at the HDSA Convention. In addition to the educational sessions and keynote speakers, we’ll be integrating highlights from the more social events as well, including National Youth Alliance activities and Volunteer Awards.

Unfortunately, exercising social distancing means we will not be able to enjoy all the hugs that the HDSA Convention famously features, but we can save them for the 36th Annual HDSA Convention in 2021 in ... well, we can’t give away all our secrets! Follow us at HDSA.org/convention as we build out an incredible virtual program and reveal the location
of the 36th Annual HDSA Convention in 2021!

For those of you who had already made your travel plans for New Orleans this June, our team is committed to working with you to ensure you’re refunded.
- To receive your full registration refund, please email Robert Coffey at [email protected].
- If you booked your hotel through HDSA’s room block, your room will be cancele automatically by HDSA and the Sheraton. If you booked your room outside of HDSA’s
room block, you will need to contact the hotel directly to cancel your reservation by May 15th (though we suggest doing it sooner rather than later).
- With few exceptions, the airline industry is honoring flight cancellations. We encourage you to contact your carrier soon to request either a refund or a full credit.

Additionally, HDSA’s Leadership Day, NYA Day and Professional Training for Social Workers will be converting to virtual events. If you were planning to participate in one of those events, stay tuned for more information from the appropriate HDSA team member.

Most importantly, we continue to follow the guidance of our friends at the Centers of Disease Control & Prevention (CDC), World Health Organization (WHO) and your state and local health departments and urge you to work with your personal clinician if you have any concerns regarding your personal risks for COVID-19.

If you have additional questions or concerns related to HDSA’s work during this public health crisis, please contact your HDSA team member or write to us at [email protected]. Thank you all for your hard work and concern during this difficult time.

Please take care of one another, and be safe.

Sincerely,

Louise Vetter
President & CEO
Huntington’s Disease Society of America

LINK TO STATEMENT:https://hdsa.org/wp-content/uploads/2020/03/COVID-CONVENTION-Statement-3-20-20-final.pdf

All HDSA events (educational & fundraising) nationwide from today until April 30, 2020 have been postponed. This measure is based on an abundance of caution and the encouragement of health authorities to curtail public gatherings in order to slow the spread of COVID-19 (coronavirus).

At this time, we do not know what May and June will hold, so those events are currently proceeding as planned. This includes the 35th Annual in New Orleans scheduled for June 4th-6th. We will continue to follow the guidance of our friends at the Centers of Disease Control & Prevention (CDC), World Health Organization (WHO) and our state and local health departments throughout this situation, and we will keep you apprised of any changes.

HD Clinic Team as pictured left to right -

Jenna Smith, RN, BSN: Clinic Nurse
Fallon Brewer, MS, CGC: Genetic Counselor
Marissa Dean, MD: Neurologist
Gayle Benson, PT: Physical Therapist
Emily Anne Burns, LMSW: Social Worker
Leslie Harper, SLP: Speech Pathologist
Cindy Sargeant, OTR/L: Occupational Therapist

Not pictured:
Taylor Preston, MD: Psychiatrist
Barbara Robertson, MS, RDN, LDN, CDE: Nutritionist
Brittany Denson, PharmD: Pharmacist

We invite you and your family to be a part of our Birmingham Team Hope Walk! Please join us on Sunday, April 5th!

UAB Huntington's Disease Clinic updated their address.