Rare Connection

I started another page on my other account. This one was created when that account got hacked. Follow me at Rare Connection podcast. I will likely be shutting this account down.

https://www.youtube.com/watch?v=C-LNMKuh0wc&t=1785s

https://www.youtube.com/watch?v=uXq4vtGZysA&t=2084s

Nutrition Equity episode 12: Cobalamin Heather parent of Kodi In this episode I talk with Heather, a parent of Kodi, a patient with Cobalamin G. Cobalmin G is one of the Homocystinurias. This is HCU Awareness Month an...

https://www.youtube.com/watch?v=w_u7QEFdGaA&t=29s

Rare Connection Episode 1: Classical Homocystinuria (HCU) With Jenifer from 🇨🇦 Nutrition Equity is now Rare connection. This is my first episode under the new name. I will be talking with Jenifer from Canada. She is one of the older ...

https://www.youtube.com/watch?v=gcsXkNuUJC4

Rare Connection Psoriatic Arthritis and Celiac Disease With Wendy In this episode of Rare Connection I will be Talking with former Special Education teacher and Yoga instructor about her experiences with psoriatic Arthritis...

https://www.youtube.com/watch?v=q8_lrxZ5gOw&t=43s

Rate Connection Episode 3 Gastroparesis and POTS Join me as I talk to Charliegh Patient and author about her battles with Gastroparesis and POTS. Charliegh is a student and author at Pratt University in Ne...

https://www.youtube.com/watch?v=4_DFtzQ8hoM&t=7s

Rare Connection Live: Pyrvate Dehydrogenase Complex Deficiency tomorrow 11:00AM Eastern Join me tomorrow April 7th as I talk with Layna about Pyruvate Dehydrogenase Complex Deficiency (PDCD) Layna is the parent of Piper a child with PDCD and ad...

Rare Connection Episode 6: Calciphylaxis Join me as I talk with Kevin a patient who died twice from Calciphylaxis and was brought back to life to tell about it. His story was featured in 45 UK nati...

Rare Connection Formerly  Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act.   Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medica...

Rare Connection:Congenital Central Hypoventilation Syndrome This video is a live podcast I do on YouTube asi can find guest.it is on rare diseases if you have a rare diseaseandwojld like to e on the podcast you can c...