Childrens Heartbeat Trust

Childrens Heartbeat Trust

Comments

World Heart Day

Brayden Emmett Moore 🦖🦈
Hi hope this is allowed my 22mth had tapvr at birth. Had surgery and has never looked back. Currently pregnant and this wee one.has been diagnosed with single heart ventricle. Dilv. Just wondering is there many other families in n.ireland has wee one with this defect. I've some idea of what's coming due to the older 1 having had surgery. But his was a 1 off. Whereas I'm thinking this wee 1 will be 2 or 3. X
We try to do something over the winter to raise some more funds
Thank you so much for a great morning at Streamvale Farm!
So to finish the last week of mile a day in May im running 3miles everyday to finish. I've ran 4 only another 3 more runs to do. I'm doing this for my heart warrior daughter Robyn 💗💗
Someone is determined to walk a mile in may. #CHTMileaday #heartwarrior
#chtmileadayinmay day 3 completed
Super Shea raising awareness for heart month taking his meds like a boss!!❤❤
Hi, just looking some advice please. My son has to go for a cardiac MRI. As he also has Autism, I was hoping to prepare him with what to expect. Any advice is welcomed, thank you

Children's Heartbeat Trust is an local charity in Northern Ireland providing practical, emotional and financial support to children, young people and their families affected by heart disease.

Children's Heartbeat Trust is a charity in Northern Ireland that provides practical & emotional support to families of children & young people born with heart disease. We work very closely with Clark Clinic which is the children's cardiac ward at the Royal Belfast Hospital for Sick Children. As well as making regular visits to Clark Clinic, we help to fund top quality medical equipment to help ens

Operating as usual

27/10/2021

We are pleased to announce that we have a new appointment to the Children’s Heartbeat Trust Board of Directors, heart dad - Niall Parfitt. Niall is dad to Éabha & Niall and brings a wealth of personal and professional experience to this voluntary role with the charity.

We are really looking forward to working with Niall as we continue to develop services in support of children and young people living with CHD, and their families in Northern Ireland. #chd #chdawareness

We are pleased to announce that we have a new appointment to the Children’s Heartbeat Trust Board of Directors, heart dad - Niall Parfitt. Niall is dad to Éabha & Niall and brings a wealth of personal and professional experience to this voluntary role with the charity.

We are really looking forward to working with Niall as we continue to develop services in support of children and young people living with CHD, and their families in Northern Ireland. #chd #chdawareness

26/10/2021

*Reminder - our Clark Bear Christmas Support 2021*
🎄🎅🎄
Christmas 2021 is coming around very quickly and the financial impact on some families may be causing extra stress and worry. CHT wants to help Heart Families struggling this Christmas so, Clark Bear is here to help...

*Reminder - our Clark Bear Christmas Support 2021*
🎄🎅🎄
Christmas 2021 is coming around very quickly and the financial impact on some families may be causing extra stress and worry. CHT wants to help Heart Families struggling this Christmas so, Clark Bear is here to help...

James Conway hopes GAA family will come together to celebrate their 'gift from God' and raise funds for children's charities 25/10/2021

James Conway hopes GAA family will come together to celebrate their 'gift from God' and raise funds for children's charities

"We just want to raise awareness of the work of Children's Heartbeat Trust and the Children's Hospital in Crumlin and to help other families in the future” Sonia and James Conway.

Huge thanks to James and Sonia for organising this amazing fundraiser with the support of top GAA players, past and present. The 2013 Ballinderry Ulster Champion Team will play an All Star Select Panel including All Ireland Champions from across Ulster on Saturday 6th November.❤

https://www.irishnews.com/sport/2021/10/20/news/james-conway-hopes-gaa-family-will-come-together-to-celebrate-their-gift-from-god-and-raise-funds-for-children-s-charities-2483538/

James Conway hopes GAA family will come together to celebrate their 'gift from God' and raise funds for children's charities WHEN Jamie Joe came into this world last November, James and Sonia Conway were in total shock.

22/10/2021

Ask a child what superhero they want to dress up as and there is a multitude of choices: 🦸‍♀️Batwoman, Superman, Wonderwoman, Spiderman...

None of those were good enough for heart sister Evie, (pictured with her brother Harry) as for School Superhero Day she chose to be us for the day!! Meet our new CHT staff member. 😄 How honoured are we!😍

We all know who the real super heroes are. Happy Friday to all our heart warriors.

Ask a child what superhero they want to dress up as and there is a multitude of choices: 🦸‍♀️Batwoman, Superman, Wonderwoman, Spiderman...

None of those were good enough for heart sister Evie, (pictured with her brother Harry) as for School Superhero Day she chose to be us for the day!! Meet our new CHT staff member. 😄 How honoured are we!😍

We all know who the real super heroes are. Happy Friday to all our heart warriors.

22/10/2021

Our Coleraine group are meeting this coming Tuesday for a Halloween meet up. They are meeting at 6pm at Cheeky Chimps if anyone would like to come along please get in touch with Laura or Ruthanne 😊

Our Coleraine group are meeting this coming Tuesday for a Halloween meet up. They are meeting at 6pm at Cheeky Chimps if anyone would like to come along please get in touch with Laura or Ruthanne 😊

22/10/2021

📍Save the Date 01.05.22
Entries are now open for the 40th Anniversary of the Mash Direct Belfast City Marathon.

Why not make 2022 your year to run and support local children living with heart disease in N.I.

Whether you walk, run or relay, be a #racingheart for CHT.❤🥇

You can enter now at: https://belfastcitymarathon.com/
Then let us know by emailing: [email protected]

#MASHathon #StrongerTogether #40thAnniversary #BelfastCityMarathon

ENTRIES FOR 2022 ARE NOW OPEN!!

A massive welcome to our new title sponsor Mash Direct!

You can read our Official Launch release in full here: https://bit.ly/3nblIla

The Mash Direct Belfast City Marathon will take place on Sunday 1st May 2022 with Cancer Focus Northern Ireland as our Official Charity Partner.

Will you join us for our 40th year celebrations?

Entries open now at www.belfastcitymarathon.com

#MASHathon #StrongerTogether #40thAnniversary #BelfastCityMarathon

21/10/2021

Thank you to all our heart families that have booked a space for our Winter Wonderland Christmas event at Jungle NI, we are so looking forward to seeing everyone on the day.🎉🎅🎄

The Winter Wonderland at Jungle NI is now fully booked, If you are booked in and can no longer attend please let Liz know at [email protected]. 😊

Thank you to all our heart families that have booked a space for our Winter Wonderland Christmas event at Jungle NI, we are so looking forward to seeing everyone on the day.🎉🎅🎄

The Winter Wonderland at Jungle NI is now fully booked, If you are booked in and can no longer attend please let Liz know at [email protected]. 😊

21/10/2021

Did you know it's #ParentingWeek and to celebrate we wanted to give a shout out to all our fabulous parents who do an incredible job despite the challenges they are faced with.

Please know you are AWESOME and your little one's think so too (most of the time!) :-)

To mark parenting week @ParentingNI have launched their annual Big Parenting Survey. This survey aims to seek parents views from across NI to seek change.

If you can spare a few minutes, please complete your feedback:
https://www.surveymonkey.co.uk/r/R73Q586

Did you know it's #ParentingWeek and to celebrate we wanted to give a shout out to all our fabulous parents who do an incredible job despite the challenges they are faced with.

Please know you are AWESOME and your little one's think so too (most of the time!) :-)

To mark parenting week @ParentingNI have launched their annual Big Parenting Survey. This survey aims to seek parents views from across NI to seek change.

If you can spare a few minutes, please complete your feedback:
https://www.surveymonkey.co.uk/r/R73Q586

20/10/2021

🎅🌲🤶
Christmas 2021 is coming around very quickly and the financial impact on some families may be causing extra stress and worry. CHT wants to help Heart Families struggling this Christmas so, Clark Bear is here to help...

🎅🌲🤶
Christmas 2021 is coming around very quickly and the financial impact on some families may be causing extra stress and worry. CHT wants to help Heart Families struggling this Christmas so, Clark Bear is here to help...

18/10/2021

Christmas event below 🎅🎄

Here at CHT we are very excited to announce our Second Christmas face to face event. ♥♥

🚨 Please read full post before booking 🚨

The Winter Wonderland Experience at Jungle NI will take place at 11am on Sunday the 12th of December. 🎉

Spaces are limited and booking will be on a first come first serve basis from now until the 22nd of Oct.

To book, please email Liz at [email protected] with the following information:

✔Contact name/Number
✔Number of Adults
✔Number of children
✔Ages of children
✔Mobility needs

E-mail is the preferred form of booking though if you don't have access to e-mail you can text Liz on 07960238827 but please include all of the information above.

CHT Team 🥰

Christmas event below 🎅🎄

Here at CHT we are very excited to announce our Second Christmas face to face event. ♥♥

🚨 Please read full post before booking 🚨

The Winter Wonderland Experience at Jungle NI will take place at 11am on Sunday the 12th of December. 🎉

Spaces are limited and booking will be on a first come first serve basis from now until the 22nd of Oct.

To book, please email Liz at [email protected] with the following information:

✔Contact name/Number
✔Number of Adults
✔Number of children
✔Ages of children
✔Mobility needs

E-mail is the preferred form of booking though if you don't have access to e-mail you can text Liz on 07960238827 but please include all of the information above.

CHT Team 🥰

Photos from Childrens Heartbeat Trust's post 17/10/2021

#SundayShoutOut🥳
We would like to say huge congratulations and massive well done to our virtual Virgin Money London Marathon finishers, Susan, Jonny and David!

As heart parents themselves, they all had a personal reason to take part and run 26.2 miles. I can assure you they ran with all of their heart knowing that in doing so, they would make an incredible difference to other families in need of support through the funds they raised.❤️

A magnificent achievement in itself, but this was also Susan, David and Jonny's first ever marathon attempt and they all smashed it by completing the 26.2 miles in under 4 hours (WOW!) and raising thousands to support local children and young people across Northern Ireland with CHD. They are now all eagerly awaiting that much deserved London Marathon medal coming in the post.🥇

Congratulations once again from all of us at CHT, we are so incredibly proud of what you have all achieved!

"A marathon is a marathon. A 26.2-mile run is a monumental achievement no matter where in the world you are. The Mall makes for an amazing Finish Line, but the best Finish Lines are the ones where your loved ones are there waiting for you." - London Marathon❤

#LondonMarathon #WeRunTogether

Photos from Childrens Heartbeat Trust's post 15/10/2021

Wow, can you believe it’s Friday again?🥳

It’s been over a month since our last Fab Friday Fundraiser Album and lots of fundraising has been happening and so many people we are unable to catch on camera! Some of you are definitely camera shy!

Whether we have caught you on camera or not, please know we appreciate every single donation made to support our services for local children and young people living with heart disease.
We are privileged to support over 500 heart families each year in Northern Ireland and the funds you raise helps support things like:

❤Our Ante-natal Support Programme
❤Medical Equipment and Play Specialist support for Clark Clinic
❤Financial support for families in hospital and travelling outside of NI for surgery
❤Counselling Sessions
❤Teens and Young People’s Support programmes
And much, much more!🥰

Check out our album and see who we caught on camera!📸
We hope you all have a great weekend. CHT Team. x

13/10/2021

We cannot believe how fast our Twilight Abseil places have sold! The event is now FULLY BOOKED. Thank You.❤

📍HOWEVER, don't be disheartened if you still wish to abseil in aid of local children with heart disease, we have the potential to secure places for a Christmas Abseil.🎅 A sure fire way to get you into the Christmas spirit.

SUNDAY 5th DECEMBER (Day time event)
Belfast Castle

To gauge interest and demand, please comment below or email Lynn on: [email protected] if you are interested in taking part.

CHT TEAM.x

We cannot believe how fast our Twilight Abseil places have sold! The event is now FULLY BOOKED. Thank You.❤

📍HOWEVER, don't be disheartened if you still wish to abseil in aid of local children with heart disease, we have the potential to secure places for a Christmas Abseil.🎅 A sure fire way to get you into the Christmas spirit.

SUNDAY 5th DECEMBER (Day time event)
Belfast Castle

To gauge interest and demand, please comment below or email Lynn on: [email protected] if you are interested in taking part.

CHT TEAM.x

13/10/2021

Thank you to all our heart families that have booked a space for our Derry Christmas event, we are so looking forward to seeing everyone and enjoying the show 🤩

The Panto is now fully booked up, If you are booked in and can no longer attend please let Liz know at [email protected].

Please keep an eye on our socials for more upcoming events 😊

CHT Team xx

Thank you to all our heart families that have booked a space for our Derry Christmas event, we are so looking forward to seeing everyone and enjoying the show 🤩

The Panto is now fully booked up, If you are booked in and can no longer attend please let Liz know at [email protected].

Please keep an eye on our socials for more upcoming events 😊

CHT Team xx

12/10/2021

Everyone at CHT would like to send our love to the many families remembering and celebrating their very special little ones this week, during Baby loss awareness week 💞

It is very important to know that support for families bereaved through baby loss is still available throughout these challenging times, from numerous online charities/support groups, including:

•Access to our counselling service through Inspire, this is a free, confidential and Independent counselling service for families affected by heart disease in children & young people, this can be accessed 24/7, 365 days a year by calling 0800 389 5362.

• The Miscarriage Association - www.miscarriageassociation.org.uk
• CRADLE - www.cradlecharity.org
• The Ectopic Trust - www.ectopictrust.org
• Sands - www.northernireland.sands.org.uk
• Tommys - www.tommys.org.uk
• Aching Arms - www.aching.arms.co.uk
• Saying Goodbye / Mariposa Trust - www.sayinggoodbye.org.✨

Everyone at CHT would like to send our love to the many families remembering and celebrating their very special little ones this week, during Baby loss awareness week 💞

It is very important to know that support for families bereaved through baby loss is still available throughout these challenging times, from numerous online charities/support groups, including:

•Access to our counselling service through Inspire, this is a free, confidential and Independent counselling service for families affected by heart disease in children & young people, this can be accessed 24/7, 365 days a year by calling 0800 389 5362.

• The Miscarriage Association - www.miscarriageassociation.org.uk
• CRADLE - www.cradlecharity.org
• The Ectopic Trust - www.ectopictrust.org
• Sands - www.northernireland.sands.org.uk
• Tommys - www.tommys.org.uk
• Aching Arms - www.aching.arms.co.uk
• Saying Goodbye / Mariposa Trust - www.sayinggoodbye.org.✨

11/10/2021

Christmas event below 🎅🎄

Here at CHT we are very excited to announce our first Christmas face to face event. ♥♥

🚨 Please read full post before booking 🚨

Sleeping Beauty will take place at 2pm on Saturday the 4th of December at the Millennium forum Theatre in Derry/Londonderry.

Spaces are limited and booking will be on a first come first serve basis from now until the 18th of Oct.

To book, please email Liz at [email protected] with the following information:

✔Contact name/Number
✔Number of Adults
✔Number of children
✔Ages of children
✔Mobility needs
✔Dietary Needs

E-mail is the preferred form of booking though if you don't have access to e-mail you can text Liz on 07960238827 but please include all of the information above.

CHT Team 🥰

Christmas event below 🎅🎄

Here at CHT we are very excited to announce our first Christmas face to face event. ♥♥

🚨 Please read full post before booking 🚨

Sleeping Beauty will take place at 2pm on Saturday the 4th of December at the Millennium forum Theatre in Derry/Londonderry.

Spaces are limited and booking will be on a first come first serve basis from now until the 18th of Oct.

To book, please email Liz at [email protected] with the following information:

✔Contact name/Number
✔Number of Adults
✔Number of children
✔Ages of children
✔Mobility needs
✔Dietary Needs

E-mail is the preferred form of booking though if you don't have access to e-mail you can text Liz on 07960238827 but please include all of the information above.

CHT Team 🥰

Photos from Childrens Heartbeat Trust's post 08/10/2021

Happy Friday and huge congratulations to everyone who took part in the Belfast City Marathon last week.

We hope everyone had a fantastic day running to raise vital funds and awareness of congenital heart disease in children.

We were so proud to have had all your amazing support and are blown away by your fundraising efforts and donations.

We cannot wait for next year! Who's with us?

CHT Team.x

Get Well Soon - Hospital - Series 1: 1. Echocardiogram 06/10/2021

Get Well Soon - Hospital - Series 1: 1. Echocardiogram

Some children really don't like going for an ECHO, it can all be pretty scary for a child.

Here is a reminder of a child friendly video with Dr. Ranj on Echocardiogram's. This is a great visual aid to help children understand the process of going for an Echo. ❤

There is also a range of video's in the series GET WELL SOON with Dr. Ranj which may help children and parents.😀

CHT Team xx

Get Well Soon - Hospital - Series 1: 1. Echocardiogram Deep has an echocardiogram, which lets Dr Ranj check that his heart is working properly.

Videos (show all)

Mile A Day In May - Grand Total
MILE A DAY IN MAY
#CHTMileADay
Video(368595734366080)

Telephone

Address


Children's Heartbeat Trust, Twin Spires Centre, 155 Northumberland Street
Belfast
BT13 2JF

General information

Receiving a heart disease diagnosis for a child or young person within your family can be very daunting. It is common to feel isolated and scared but it helps to know that you are not alone. If you would like more details on joining our huge heart family or to receive regular updates please don't hesitate to get in touch.
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