We specialize in fibromyalgia, hypermobile Ehlers-Danlos Syndrome, and related conditions. Learn more at www.willowfibroclinic.com.
Accepts most insurances, including medicare, worker's comp, and auto accident PIP claims. Medicaid panel is currently full.
❄SNOW DAY PROCEDURES ❄
Happy snow day! The clinic is closed until the roads are safe, but we are still doing telemedicine visits and refills and monitoring voicemails from home. We'll update the page and website when we open again, and we'll try to post some pics of the doggos in the snow. Stay warm!
- Willow Clinic Staff
Cold Weather Pain Management Tips
With the recent cold weather we're hearing from a lot of patients that their pain levels are increased, so here are some tips on keeping your pain levels down when the temperature drops:
1. It is very important to be comfortable & warm falling asleep. Our bodies need a cooler room temperature for ideal sleep, but that doesn't mean we need an icy cold bed, so bring a hot water bottle or hot pack to bed with you. A warming pain cream applied to sore muscles might help to relax them for sleep (but don't put a hot pack over topical pain products, the combo can irritate or even burn your skin!) If you have neck pain try wearing a scarf or cowl when you sleep to keep your neck warm. Convince your pet to lay on your bed to keep you extra warm (unless you're allergic to them!) Be careful with heating pads and electric blankets: turn them off before sleep to protect yourself from burns, fire hazard, and excess exposure to electromagnetic fields.
2. It's also important to be cozy & warm when you get out of bed in the morning, especially if you tend to have joint stiffness when you wake up. Set your thermostat so the heater comes on about an hour before you wake up. Or get a portable remote control space heater that you can turn on from across the room as soon as you open your eyes. While still in your warm bed reapply your pain cream and spend a few minutes doing gentle range of motion exercises to warm up feet, ankles, and spine before you take your first steps. Here's a nifty trick we learned from a patient: tuck a sweater/scarf/fuzzy robe or other warmie under the covers by your feet the night before, and when you wake up it will be cozy warm and you can put it on while you're still in bed!
3. Keep your hands, feet, head, ears and neck warm at all times. Even the tiniest chill on face or neck can activate myofascial trigger points, so bundle up to prevent them, and apply heat to your neck immediately if you do get chilled. Keep extra hats/mittens/fingerless gloves/scarves/cowls/etc. throughout your home and in your car. (You can stock up at the dollar store!)
4. It's so important to get outside every day during the fall and winter to keep up on exercise and absorb sunlight for synthesizing Vitamin D. A great tool to help stay warm during outside activity in extra cold weather is to put something warm in your pockets or mittens. Instant hand warmers are great for this, and it's a good idea to keep some stashed at home and in the glove box of your car for power outages, outdoor exercise, and other chilly moments. Try putting them in mittens, socks, and pockets, or even tuck them in your scarf. Pocket-sized reheatable rice packs work great also. If you have the right cold weather gear there's no excuse not to get outside every day, rain or shine, and you can reward yourself with a nice epsom salt bath when you get home!
We hope these tips are helpful, and we'd love to hear any other ideas folks have come up with to fight cold weather pain flares. Stay warm everyone!
Willow Fibromyalgia and Hypermobility Clinic
Willow Fibromyalgia and Hypermobility Clinic
We're hearing very promising things about the TMS treatments for depression over at Bayview Clinic in Tacoma. We'll try to study this a bit more and post more details soon. Do any of you have any experience with TMS, or know anyone who has had it done? We'd love to hear your feedback on it!
wxyz.com Depression is a lot more than just the blues. It’s actually a mood disorder that often leads to emotional anguish.
Interesting! Hopefully we'll start to see more studies on this subject soon, so we can start putting the data into action. Our understanding of the endocannabinoid system is still in the early stages. The takeaway so far seems to be that higher levels of these markers in patients with fibromyalgia could indicate that they have a low grade inflammatory process going on. So we need to look more closely at reducing inflammation triggers in fibromyalgia patients. And sounds like they're also hoping that measuring these markers might be a way of testing for fibro someday. Can't wait to hear more!
A new study shows abnormalities in the the endocannabinoid system in fibromyalgia. This system is important for regulating pain and inflammation. The study concludes: The elevated circulating levels of endocannabinoidome lipids suggest they play a role in the complex pathophysiology of [fibromyalgia] and might be signs of ongoing low-grade inflammation. https://bit.ly/2t9FRNn
Photos from Willow Fibromyalgia and Hypermobility Clinic's post
Paralympics... these are some amazing athletes!
Paralympic athletes are breaking world records — in some cases, even beating their Olympic counterparts. So why aren't we reading about it in the news?
Laura's Paleo Hotcakes
1/4 c + 1 Tbs (or 5 Tbs) coconut flour
1/4 c + 1 Tbs (or 5 Tbs) almond flour
1 tsp baking powder
1/2 tsp ground cinnamon (optional)
1 liquid cup almond milk
Ghee or coconut oil for cooking
BUY HERE -> http://bit.ly/2c13Qrl
More shirt *STYLES* and *COLORS* available.
Very touching! And check out Mindful Moments by Dr. G on facebook, she specializes in pain psychology, and is a chronic pain warrior herself...
Look who's finished his massage training and is joining the practice... Welcome and congratulations to Tony Spezza LMP!
Some of you have already experienced his amazing manual therapy, myofascial, and trigger point work while he was completing his clinical hours at our office. He's now available to see clients, and we can bill insurance directly for either clinical manual therapy or Swedish relaxation massage, depending on your medical needs and coverage.
(In case he looks familiar, he's also Medea's husband and FibroDog's dad!)
Photo credit: Erin Hogan
FibroDog demonstrating one of his patented FibroDog moves:
Step 1, assess that patient looks sad or in pain.
Step 2, approach patient from front or back, depending on logistics.
Step 3, gently but firmly press snout into patient's axillary region, until you feel a release of pressure and your snout pokes through to the other side, forcing the patient into the standard neck hug position.
Step 4, maintain this position as long as possible, keeping in mind that hugging an animal decreases humans' anxiety and pain levels.
Step 5, bonus points earned if petting ensues.
My new hero.
For more body positivity: http://trib.al/KQXaG6z
Nice video explaining the difference between abusing medication and taking it appropriately
Here we go folks, just what we've been waiting for... please read this national petition and sign if you agree:
petitions.whitehouse.gov Costing $635 billion annually, 100 million Americans and 80% of veterans returning from Iraq and Afghanistan (and 50% of all veterans) suffer from chronic pain. Current research, education and treatment efforts are inadequate to address this epidemic, which often leads to suicide. In response, the D...
Need some inspiration today? Check out this amazing gal who survived quadruple limb amputation and now has a youtube beauty channel.... what a survivor she is!! FibroDog wonders if she has a service pet who might want to be interviewed......??????
women with no arms gives expert makeup tutorial? yes, please! #chronicbabe #superwoman #inspiration
Nailed it! Dependence and tolerance, despite what PROP keeps publically claiming, DO NOT equal addiction.
The lucrative catch-22 of the recovery industry:
Once accused of being an addict, anything you say in your defense is considered denial, which is just more evidence of your presumed addiction. Read more...
Another healthy yum!
Roasted Garlic Whipped Cauliflower
2 Heads Cauliflower, cut into florets
1/4 cup Bacon Fat, melted (approximately 3/4 pound bacon, fried)
1 head Garlic, roasted
1 tsp Kosher Salt
1/4 tsp Ground Pepper
1/2 cup Vegetable or Chicken Broth
Slow Cooker Beef Stroganoff- Great for busy lives!
1.5 lbs lean stew beef
½ large white onion, chopped
3 cloves garlic, minced
10 oz sliced mushrooms
1¼ cup beef broth
¼ cup coconut aminos or GF tamari soy sauce (coconut aminos for #21DSD)
¼ cup red wine vinegar
½ tsp onion powder
½ tsp garlic powder
½ cup canned coconut milk or coconut cream
3 tbsp arrowroot starch*
2 tbsp water
Stop the war on chronic pain patients!
There is a war on chronic pain patients that most of the country doesn't even know is happening. While the nation fights the war on opioids, a huge majority of pain patients who use opioid pain medication responsibly and as prescribed are not addicts or abusers.
We cannot reduce drug overdose deaths by denying relief for the agony of millions.
Great post on Post-Traumatic Fibromyalgia by Kristine at alifewellred.com. Many of my fibromyalgia patients experienced their first fibromyalgia symptoms, or a significant worsening of fibromyalgia symptoms, after a physically traumatic event. There is also a theory that a subtype of fibromyalgia is triggered by trauma to the cervical spine (Cervical Trauma Fibromyalgia), and studies have demonstrated that treatments that reduce inflammation in the c-spine can eliminate symptoms in some of these patients. I use FSM to reduce spinal cord inflammation in these folks with very good results.
alifewellred.com Validating Post-Traumatic Fibromyalgia lies in proving the link between physical trauma and the onset of FMS. The battle for legitimacy carries on...
Yum! Try substituting honey or agave for the brown sugar...or adding a mashed banana and skipping the sweetener altogether.
Healthy "Grab-n-Go" Breakfast - http://bit.ly/1WiPY9d
Couldn't have said it better myself!
A haiku to get you ready for this cold winter...
Inspirational video from YI contributor and model Dianne Bondy Yoga (via Penningtons)! #inspired #whatayogilookslike
Here's your chance folks - the CDC will be hosting a conference call this Thursday morning regarding the workgroup they put together to write their draft guidelines. Please note, this call is not for comments on the guidelines themselves. (The deadline to comment on the guidelines is January 13.). This call is to discuss the workgroup only. The main concerns the chronic pain community has had about this workgroup are as follows: it was created in secret, it consisted mainly of drug addiction/rehab specialists with minimal representation from pain specialists and pain patients, and the pain specialist it did include is president of PROP, which is publicly against the use of opioids in chronic pain management, and this view is not representative of the majority of experts in the pain management field. So basically the concern is that this group was biased, had an underlying agenda, and didn't accurately represent the field of pain management or include representatives from the chronic pain community. Should be interesting! They will choose 15 callers to present their comments at the end, and there will probably be an opportunity to email comments also.
CDC is hosting a public conference call on Guidelines for Prescribing Opioids for Chronic Pain, Thursday, January 7, at 9:00 am ET.
The public can participate via a conference call.
Dial-in number is: 1-888-395-7561
Participant Code is: 3954121.
Public comments will be accepted, but only related to the formation of the Opioid Guideline Workgroup.
News story on a chronic pain warrior with EDS
www.wktv.com UTICA, NY - Characterized by a lack of awareness and mis-diagnosis, Ehlers-Danlos Syndrome or EDS can wreak havoc in people's lives.
6 Ways to Survive the Holidays Without Pain http://trib.al/EIGKhD7
LDN can be very effective for certain conditions, so glad they're finally researching it and using it in mainstream pain management!
“I would say my leg pain is pretty much gone,” she said. “[LDN] has completely changed my life. I don’t know that I would be here today if it wasn’t for it. I don’t think I could go for another year in the misery I was in.”
Read her story: http://www.painnewsnetwork.org/stories/2015/12/11/naltrexone-changed-life-of-fibromyalgia-patient#.VmtO4KQL9oU.twitte
Finally, an article that accurately presents the real issues! (And tells the story of an Ehlers-Danlos patient, yay) Please share with everyone you know!
“In Florida, there was a woman who died within a month with advanced cancer who was not able to get her prescriptions filled. There was a four-year-old boy with a brain tumor who could not get his prescription filled. So it has become a real problem. We are getting those stories from all over the country now.” -- Bob Twillman, Executive Director, the American Academy of Pain Management. Read: http://thebrooklynink.com/2015/12/20/54654-who-gets-hurt-in-the-crackdown-on-pain-meds/
Loaded Cauliflower Mash from Diane Sanfilippo
2 large heads of cauliflower
5 slices bacon, chopped
½ large red onion, minced
5 crimini mushrooms, chopped
½ cup chicken broth
2 tablespoons butter, bacon fat, or coconut oil
Sea salt and black pepper to taste
1 teaspoon minced fresh parsley or cilantro
I love it - therapeutic whale sounds! Try it yourself and see if your pain goes down a notch or two...
Feeling the holiday stress? Try this breathing technique -- and get a laugh at the same time: https://www.youtube.com/watch?v=6g-wtvKO6Is
Scientists have been looking at various Parkinson's drugs off-label for certain types of chronic pain for a number of years now... In humans, not just in mice... Sounds promising!
A very touching letter to the CDC...
Bone broth - yummy and great for joints! Just like our grandmothers used to make.
Do you make your own bone broth? What bones are your favorite to use?
With depleted soils out there keeping mineral content in our produce lower than ever before, broth is a great way to get more minerals into your diet. You don't have to sip it straight up either! Use it in any recipe that calls for broth or stock - skip the boxed and canned stuff- it's SO easy to make!
Check out this easy to make Mineral-Rich Bone Broth recipe from "Practical Paleo".
Thanks again Dr. Twilman for standing up for the needs of chronic pain patients and their medical providers!
blog.aapainmanage.org Bob Twillman, the Academy’s Executive Director, wrote a piece for USA Today entitled, Don’t Tie the Hands of Clinicians: Opposing View, that explains why patients who need more medication to treat their pain will suffer under the proposed CDC opioid guidelines because they need more medication to tr…
More pressure on CDC - this time from congress!
In a letter to CDC Director, Thomas Frieden, the U.S. House Committee on Oversight and Government Reform writes it is investigating whether CDC’s “Core Expert Group,” which was responsible for drafting controversial guidelines for prescribing opioids, is compliant with the Federal Advisory Committee Act (FACA). Read more...
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