MDA St. Louis

MDA St. Louis

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.

Thank you to the Webster Groves Fire Department & the Berkeley MO Fire Departments for taking part in a friendly MDA Fill the Boot Challenge this year. The department that brought in lesser funds for the MDA agreed to do something to give back to the other department’s community.

Congrats to Berkeley FD for bringing in over $12,500! Webster Groves FD brought in a little over $9,800 and will be collecting coats to donate to Berkeley's Coat Drive this year! See info below for donation details.

Thank you to both departments for going above and beyond in 2019, everyone who filled the boot in those communities and those who will participate in the coat drive! Everybody wins!

Have a new or gently used coat? Would you like to help out someone in need? The Webster Groves Fire Department is hosting a coat drive. We will be accepting donated coats until November 23rd. Please bring them to firehouse #1. #6 S. Elm Ave.

MDA St. Louis's cover photo

We hope to see everyone THIS Monday, November 18 from 5-7 PM at Kendra Scott in Plaza Frontenac. Please mention MDA at checkout so 20% of your total will go back to MDA STL! Please SHARE this post to help us get the best turnout possible! 💛💪

Ellen DeGeneres

Former St. Louis Ram & Fire Fighter Eric Stevens was recently diagnosed with ALS. #AXEALS

This got me.❤️❤️❤️ #AxeALS

Save the Date for MDA St. Louis' 17th Annual Muscle Team Bash on March 20,2020 at St. Louis Union Station. Right now we are looking for new committee members, sponsors,and auction items. Please contact Colleen Mattaline at 314-962-0023 or [email protected] for more information.

Join MDA St. Louis on Monday, November 18 from 5-7 PM at Kendra Scott in Plaza Frontenac. Please mention MDA at checkout so 20% of your total will go back to MDA STL! Great time to do some holiday shopping! 💛💪💍

cdc.gov

Join the National ALS Registry

The National ALS Registry is a program to collect, manage and analyze data about persons with ALS (PALS). It includes data from existing national databases and information provided by persons with ALS who choose to participate. Researchers can use Registry data to look for disease pattern changes over time and try to identify whether there are common risk factors among PALS. Additionally, the Registry provides updated links for participant resources like ALS clinical trials.
https://www.cdc.gov/als/ALSJoinALSRegistry.html

cdc.gov

The Muscular Dystrophy Association has a long standing tradition of staff costume and pumpkin decorating competitions throughout the years to celebrate Halloween. The ladies of MDA St. Louis want to wish everyone a very happy and safe Halloween!! 🖤🎃🍫🍭
Please drop your costumes and pumpkins in the comments below! 👇🏼

mda.org

MDA Engage Community Education Seminar: Kansas | Muscular Dystrophy Association

The Kansas City MDA invites you to join them at their MDA Engage conference being held on 11/16/19 at the Double Tree in Overland Park, KS. MDA Engage is a one-day educational conference aimed at empowering individuals living with neuromuscular disease and their families with knowledge and resources, drawing from experts in the neuromuscular field while also providing an opportunity for families to connect socially. Space is limited register today to reserve your space at:

https://www.mda.org/care/mda-engage/community-education-seminars/kansas

mda.org Saturday, November 16, 2019 Registration: 9:00am - 10:00am Event: 10:00am - 4:00pm (lunch included) Social Hour: 4:00pm - 5:00pm

First Responders' Day: A Moment in Search

“It’s National First Responder Appreciation Day and we want to thank ALL of our Fire, EMS, Law Enforcement and Dispatch who help keep our communities safe!”
https://www.youtube.com/watch?v=3VLJO-izWPA&feature=youtu.be

Thank you to the firefighters, EMTs, police officers, and all the first responders who never stop searching for what it takes to live a life of service. Lear...

MDA has played a large role in Katie’s life. From helping out at MDA Camp to now working as a Care Center nurse at University of Pennsylvania , Katie is dedicated to creating a brighter future for her friends and patients. Read below to Learn more about Katie’s experience and involvement with MDA. http://bit.ly/KatiePowerOfWill

Muscular Dystrophy Association

Halloween is right around the corner, buy this year’s treats from Amazon Smile and Amazonَ will donate a portion of your purchase to MDA. Learn how to shop and donate today! http://bit.ly/AmazonSmileMDA

The 2019 MDA Golden Boot Award will be awarded later this year to the Fire Department in Local 2665 who collected the most funds per union member this year! Congrats to all previous winners! Who will this years' winner be??

strongly.mda.org

Join Us for a Virtual MDA Engage BMD Symposium on Oct. 26 - Muscular Dystrophy Association

We invite you to attend an upcoming virtual MDA Engage Becker Muscular Dystrophy Symposium where we will share information from experts in the field about Becker muscular dystrophy (BMD). The online event will take place Oct. 26 from noon-4 p.m. ET.
Visit https://strongly.mda.org/join-us-for-a-virtual-mda-engage-bmd-symposium-on-oct-26/ to register.

strongly.mda.org We invite you to attend an upcoming virtual MDA Engage Becker Muscular Dystrophy Symposium where we will share information from experts in the field about Becker muscular dystrophy (BMD).  The online event will take place Oct. 26 from noon-4 p.m. ET. Event chair Dr. Paula Clemens from the Universit...

[10/21/19]   Are you a Lawyer, Attorney or a Law Professional?
Save the Date
MDA Legal Leaders
October 30, 2019

Contact Jessica Ameiss at (314) 962-0023 or [email protected] for more information.

MDA Care Center

Did you know that the Care Center at Barnes-Jewish Hospital through Washington University School of Medicine in St. Louis is one of 150+ MDA Care Centers nationwide providing care to 60,000+ individuals living with muscular dystrophy, ALS, and related neuromuscular diseases?

https://www.youtube.com/watch?v=4g_1ENEd1IY&feature=youtu.be

There are over 250,000 people living with muscular dystrophy, ALS and related neuromuscular diseases in the U.S. MDA Care Centers make up the largest network...

We have a lot of to celebrate in our office today! Executive Director Erin Anselman is getting married next month and Care and Clinical Service Specialist Rachel Claudin is expecting her first baby next month! Congrats to both!!

MDA St. Louis's cover photo

ksdk.com

Here's where you can get free flu shots in October

Flu season is fast approaching, please take action to protect you and your family against the flu. Here is a list of free walk-in clinics offered throughout the St. Louis area for this flu season.

https://www.ksdk.com/article/news/local/barnes-jewish-hospital-is-giving-free-flu-shots-in-october/63-b016d51d-c20e-4e00-bdf2-6398581cccfe

ksdk.com Flu season is approaching! Local Hospitals offering several dates and locations for free flu shots in the St. Louis area.

Did you know it is Fire Prevention Week? Now is a great time to follow your local fire departments on social media for daily tips on how you can keep your home and family safe! Thanks to all our fire fighters and fire departments for helping keep our communities safe!

We would like to thank Casey's General Stores for their hard work and dedication to the 2019 MDA Round Up Program!

Save the Date for this inclusive, accessible and sensory sensitive Halloween event!

mda.org

MDA Engage Community Education Seminar: Kansas | Muscular Dystrophy Association

The Kansas City MDA invites you to join them at their MDA Engage conference being held on 11/16/19 at the Double Tree in Overland Park, KS. MDA Engage is a one-day educational conference aimed at empowering individuals living with neuromuscular disease and their families with knowledge and resources, drawing from experts in the neuromuscular field while also providing an opportunity for families to connect socially. Space is limited register today to reserve your space at: https://www.mda.org/care/mda-engage/community-education-seminars/kansas

mda.org Saturday, November 16, 2019 Registration: 9:00am - 10:00am Event: 10:00am - 4:00pm (lunch included) Social Hour: 4:00pm - 5:00pm

genedel.com

Welcome to GENE-DEL PRINTING

Whatever your printing & copying needs are, Gene-Del Printing can accommodate you from
design and printing to bindery and mailing as seamlessly as possible.

Thank you Gene Del for your support and dedication to MDA and our mission!

Visit them at https://genedel.com.

genedel.com In September 1973, Gene and Delores Dodel decided to form their own company, one they could be proud of. They arrived at the new name of

The Fairmont City Fire Department is hosting a dine to donate this Thursday, October 4th at El Ranchito. 🌮 Make sure to stop in for dinner with this flyer, and a percentage of the proceeds will come back to MDA!

We are seeking 6 VOLUNTEERS for our Art & Soul gala this Thursday, October 3rd at The Randall Gallery from 5:30-9:30pm. If you are available, please contact Rhonda Efken at 314-962-0023 or [email protected].

There are many questions about #ALS. Learning more is essential to discovering better treatment options and prevention strategies.
When you join the #NationalALSRegistry, you give researchers information that could lead to a better understanding of the rare disease. Learn more at: https://www.cdc.gov/als/

Join the Metro West Firefighters Community Outreach on Saturday, November 2 for their annual Trivia Night to benefit MDA St. Louis. For more information on registration, volunteering or donating, please contact Matt Coppin at 314-724-9137.

Another great MDA Make A Muscle Charity Car & Bike Show! Thank you to everyone who participated!

Join us tomorrow at the St. Louis Regional Airport for the annual MDA Make A Muscle Charity Car & Bike Show! The airport will also be hosting their annual fly-in with an assortment of modern Cessna, Piper and Beach aircraft, a number of ultra lights, several helicopters, and occasionally even historic planes and specialty aircraft. There will be fun and food for all!

IAFF / MDA 65th Anniversary

Thank you to the International Association of Firefighters for 65 years of helping our families live longer and grow stronger!
https://www.youtube.com/watch?v=Qu0SxfoX9z0

Muscular Dystrophy Association and International Association of Fire Fighters Celebrate 65 Years of Fill the Boot Partnership.

NALC 343 Branch is hosting their 32nd Annual Golf Tournament for the Muscular Dystrophy Association on Sunday, October 13 at Normandie Golf Club. They are looking for teams and volunteers. Please contact John McLaughlin at 314-241-4297 for more information.

We’re committed to transforming the lives of people living with muscular dystrophy, ALS and related neuromuscular diseases. You can help kids and adults with muscular dystrophy #LiveUnlimited by stopping by your local Casey's General Store now through September 30th and Rounding Up your purchase for @MDAorg.

MDA St. Louis would like to thank everyone who made yesterday's Muscle Walk of Cape Girardeau a huge success especially: the local families who came out to walk with their teams, all the volunteers, our event sponsor-Saint Francis Healthcare System, our partners- Jimmy John's, Casey's General Store, Jackson Fire Rescue, Cape Girardeau Fire Department, United Access, Southern Bus & Mobility, Biogen, Kappa Alpha Order SEMO and Alliance Rehab and Medical Equipment.

Join us next Saturday, September 28 for the 7th Annual MDA Make A Muscle Charity Car & Bike Show!

MDA St. Louis is looking for 1-2 more artists to attend our 12th Annual MDA Art & Soul presented by Schnucks. Please contact Colleen at 314-962-0023 or [email protected] with any questions or to sign up.

Halfway to St Patrick's Day

☘️Happy Halfway to St. Patrick’s Day!☘️
As of this week, we are officially just 6 months (or 182 days) away from the iconic holiday that makes all of us Irish for a day — St. Patrick’s Day. For 37 years, more than 20,000 locations across the country take advantage of this time period between mid-February and March, including St. Patrick’s
Day, to raise money for children and adults with muscular dystrophy in their community.
This program is a powerful way to engage your employees in a meaningful activity, enhance your local customer relationships and raise funds for one of the country’s most respected health organizations — all at the same time. Please contact MDA St. Louis if you are interested in joining us in 2020!

https://www.youtube.com/watch?v=bdOlRpZbB-U&feature=youtu.be

We are only six months away from St. Patrick's Day and the iconic MDA Shamrocks campaign! Learn how you can get involved at mda.org/shamrocks.

When you give to @MDAorg, you help create unlimited opportunities for kids and adults with muscular dystrophy to defy limits. Now through September 30th, visit Casey's General Store and Round Up your purchase to help MDA families in Missouri.

Thank you Waterloo Fire Department for another successful year Filling the Boot!

Thank you to Saint Francis Healthcare System for sponsoring this years' Muscle Walk of Cape Girardeau on Saturday, September 22 at Kiwanis Park. You can still register at: https://mda.donordrive.com/event/CapeGirardeau!

For more information, please contact Rhonda Efken at 314-962-0023 or [email protected].

MDA #30DaysofStrength DIY Challenge

To honor this unprecedented time in neuromuscular research and to accelerate progress toward cures, MDA has launched #30DaysofStrength, a fundraising campaign to support critical programs for MDA families year-round. As part of the #30DaysofStrength campaign, MDA is encouraging people to start their own online fundraiser.

https://www.youtube.com/watch?v=td1wayETRtg&list=PLxofS4JHjGXX87MuAEXaNtSSCCicW3Ld1&index=1

MDA Summer Camp counselor, turned Philadelphia Phillies first baseman Rhys Hoskins, is making an impact on and off the field helping MDA kick off 30 Days of ...

MDA St. Louis is hiring! Click the link for more info:
https://mda.jobs.net/en-US/job/development-assistant/J3N2VN6TPZ9CGFY6HXK

Our Muscle Walk of Cape Girardeau Muscle Walk is just TWO weeks away on Saturday, September 22 at Kiwanis Park. Please register at: https://mda.donordrive.com/event/CapeGirardeau!

Join us for games, crafts, treats, appearances by local firefighters, sponsors, vendors and more!

For more information, please contact Rhonda Efken at 314-962-0023 or [email protected].

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Sponsors Needed - 2019 Show of Strength Telethon

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Maryland Heights, MO
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