Institute for Patient- and Family-Centered Care

Institute for Patient- and Family-Centered Care

The Institute for Patient- and Family-Centered Care provides leadership to advance the understanding and practice of patient- and family-centered care in hospitals and other health care settings.

The Institute for Patient- and Family-Centered Care, a non-profit organization founded in 1992, takes pride in providing essential leadership to advance the understanding and practice of patient- and family-centered care. By promoting collaborative, empowering relationships among patients, families, and health care professionals, the Institute facilitates patient- and family-centered change in all settings where individuals and families receive care and support. The Institute also serves as a central resource for policy makers, administrators, program planners, direct service providers, educators, design professionals, and patient and family leaders.

Mission: In partnership with patients, families, and health care professionals from many disciplines, the Institute for Family-Centered Care promotes the understanding and practice of patient- and family-centered care. The Institute seeks to ensure that principles of patient- and family-centered care are reflected in all systems providing care and support to individuals and families including health, education, mental health, and social services. We at the Institute envision a profound change in the way health care is provided to individuals and their families in North America. In every encounter, health and human service professionals will seek to build on the strengths of patients and families, enhancing their confidence and competence. The health care delivery system will recognize and encourage patient and family strengths, choice, and independence.

As the seminar starts to reach its end, the final task for attendees is to take the knowledge and insights gained in these past couples days and create actions plans to take back with them and implement at their respective organizations. We’re excited to follow everyone’s continued work and progress in #PFCC around the country and around the world! #IPFCCseminar2019 @ Crowne Plaza Detroit Downtown Riverfront

Thank you to those of you who came to our Networking Reception this evening after a busy yet riveting first day! We can’t wait to see everyone tomorrow for Day 2! #IPFCCseminar2019 @ Crowne Plaza Detroit Downtown Riverfront

Day One of our #IPFCCseminar2019 is well underway! Tag us in your seminar photos and posts @IPFCC and/or our hashtag to share your excitement with us and others.
#patientexperience #qualityimprovement #familycenteredcare #patientfamilycenteredcare #patientengagement #patientpartners #patientsafety #familycenteredcare #pfe #pfac #pfa #pfcc #seminar

Our Special Events team is ready to welcome all of our #IPFCCseminar2019 attendees in Detroit! Registration is open NOW until 7 PM today and again from 7-8:15 AM tomorrow. We look forward to meeting you all soon!
#seminar #patientexperience #qualityimprovement #familycenteredcare #patientfamilycenteredcare #patientengagement #pfac #pfcc #patientpartners #detroit #familycenteredcare #patientsafety @ Crowne Plaza Detroit Downtown Riverfront

This week’s #IPFCCReads is co-written by IPFCC’s president, Bev Johnson, and board member, Liz Crocker. Privileged Presence is a compilation of short stories about navigating the health care experience from a more personal perspective. Through the eyes of families, patients, and providers, this book emphasizes the need to incorporate patient- and family-centered care at all levels.

Purchase this book at If you are attending our upcoming seminar, you can also purchase them there with the seminar discount and get it signed by Liz Crocker during her book-signing session!

We are excited to announce we have a mobile app for attendees of our #IPFCCseminar2019. This app will give access to personalized schedules, seminar resources/handouts, & all seminar-related info. For those attending, check your email for download instructions & begin exploring!

Today marks exactly ONE WEEK until our seminar, Moving Forward with Patient- and Family-Centered Care: Partnerships for Quality and Safety. We are so excited for everything that we have in store for you in Michigan and can’t wait to see you all there! As you begin packing your bags, be sure to visit to check out everything the city of Detroit has to offer as well. See you soon!

Our final #FocusOnFaculty highlights Julie Moretz from Augusta University Health. Julie’s journey started after being inspired by her son’s battle with heart disease. She recognized early on that she and her husband needed to be key partners in her son’s care and has since been working to ensure that families be included as care partners for all patients. She started as a volunteer family leader over two decades ago is now AVP for Patient- and Family-Centered Care at AUMC.

Crowne Plaza Detroit Downtown Riverfront

Today is the deadline to book your hotel rooms at the Crowne Plaza Detroit Downtown Riverfront for the seminar at the discounted group rate! If you haven’t already, reserve your rooms by calling (866) 710-7531 and saying that you are part of the “IPFCC Moving Forward with Patient- and Family-Centered Care Seminar” or book online at Official site of Crowne Plaza Detroit Downtown Riverfront - read guest reviews, view photos, and get the Best Price Guarantee.

Almost Home: Stories of Hope and the Human Spirit in the Neonatal ICU |

Today’s #IPFCCReads recommendation is Almost Home by Dr. Christine Gleason. In this set of short stories, Dr. Gleason, who is a NICU doctor, recounts a few of her most memorable patients and how their fighting spirits and the love and strength of their families touched her heart and taught her to be the best doctor she could be for them.

Learn more and find your local bookseller at the link below and comment any other #IPFCCReads recommendations you may have! Birth, like death, can be a messy affair. Though we all wish for beautful, healthy nine pound babies, we know that isn't always the case. Premature births pose all sorts of problems that present medical and moral dilemas for doctors, nurses, interns and parents, as well as for the little babies stru...

With two weeks left until the #IPFCCseminar2019, we are back with another #FocusOnFaculty. Today, we spotlight IPFCC’s Pam Dardess. Pam came to us after working as a principal researcher at the American Institutes for Research and is now IPFCC’s VP of Strategic Initiatives and Operations. She recently helped develop a White Paper on Partnering with Patients and Families to Strengthen Approaches to the Opioid Epidemic. She will be presenting a session on a related topic with Dr. Darin Corell from Brigham and Women's Hospital.

Learn more about our faculty and overall seminar at

How to Talk to Your Patients about End-of-Life Care: A Conversation Ready Toolkit for Clinicians

IHI: Institute for Healthcare Improvement recently published the Conversation Ready toolkit. This resource is intended to help clinicians address end-of-life care and overcome the challenges associated with these conversations. The toolkit presents four diverse cases and follows them from the progression of the illness to the final end-of-life discussions with families. Find the toolkit at the link below. This toolkit is intended to help clinicians address some of the challenges of engaging with patients and families in end-of-life care conversations over time, with the goal of providing respectful end-of-life care that is concordant with patients’ stated goals, values, and preferences.

The Role of Leaders in Advancing Patient- and Family-Centered Practice

Last month’s webinar on The Role of Leaders in Advancing Patient- and Family-Centered Practice has been rescheduled to June 27th at 1 PM ET. Join us to learn more about hospital and executive leaders play a crucial role in ensuring a patient- and family-centered environment. Register today at the link below. The Role of Leaders in Advancing Patient- and Family-Centered Practice. Online registration by Cvent

Compassionomics: The Revolutionary Scientific Evidence that Caring Makes a Difference

Today's #IPFCCReads is a new book that has already hit the bestsellers list. In "Compassionomics: The Revolutionary Scientific Evidence that Caring Makes a Difference," physician authors Stephen Trzeciak and Anthony Mazzarelli, combine review of the science with patient stories. Their results show that compassion in health care “matters;” it not only improves patient outcomes but also benefits providers.

Learn more and purchase at the link below or search your local booksellers. A 34-year-old man fighting for his life in the Intensive Care Unit is on an artificial respirator for over a month. Could it be that his chance of getting off the respirator is not how much his nurses know, but rather how much they care?A 75-year-old woman is heroically saved by a major trauma ce...

5 strategies to breathe new life into your Patient and Family Advisory Council

Feeling like your #PFAC has been stuck in a rut recently? This article by Keesha Goodnow of University of Cincinnati College of Medicine touches on five strategies you can use to revamp your PFAC and help it flourish. Is your Patient and Family Advisory Council a checked box or a meaningful vehicle for collaboration with patients and families?

Have you been thinking about attending the seminar but have yet to register? TODAY is the FINAL day to receive Early Bird pricing on registration.

Also, if you are already registered and/or plan to register soon, the Crowne Plaza Detroit Downtown Riverfront has EXTENDED the deadline to receive the discounted group rate to May 27th.

Learn more and register today at and book your hotel at

Blog — Liz Crocker

Rather than a single book for this week's #IPFCCReads, we want to highlight IPFCC Board Member, Liz Crocker's blog. Liz is not only an author herself, but she also has previously made many great book suggestions on her blog relating to health care. Check it out at the link below, there is sure to be something for everyone! thoughts & musings {curious} {kind} {inspired}

i-HOPE Patient Engagement Study

IPFCC is privileged to have been a stakeholder network in the Society of Hospital Medicine's i-HOPE Study. The goal of this study was to "generate a priority list of general research topics and unanswered questions important to the care of the hospitalized patients."
Learn more about the study and its results at the link below. Read the Improving Hospital Outcomes through Patient Engagement (i-HOPE) Study from SHM and partners to understand how to improve care of hospitalized patients.

The #IPFCCWebinar that was scheduled for this Thursday, May 15, 2019 is being rescheduled. The exact date is not yet set, but it will be sometime in the last two weeks of June. Registration has been closed for now, but will open back up once a date is decided upon so look out for that announcement coming soon!

The Early Bird Deadline for IPFCC's upcoming seminar has been EXTENDED to May 20th! You now have an extra week to register at the best rates.

Also, be sure to book your hotel rooms while you at it. The Crowne Plaza Detroit Downtown Riverfront is offering a special group rate to attendees also until May 20th, so don't delay and join us today!

Learn more and register at

Being Mortal: Medicine and What Matters in the End |

It's time for another #IPFCCReads! Being Mortal by Atul Gawande focuses on end-of-life care and how modern medical practices can often be more harm than good. Gawande draws from research and his own experiences as a surgeon and family member to illustrate the struggles of finding the middle ground between trying to extend patients' lives vs. providing care to improve the life they have left.

Learn more and find your nearest bookseller at the link below. If you have any recommendations for our next #IPFCCReads, message us or leave them in the comments! Other Editions of This Title: Digital Audiobook (10/6/2014) Hardcover (10/7/2014) Paperback, Large Print (9/5/2017) CD-Audio (10/7/2014) Hardcover, Large Print (4/1/2015) Paperback (9/1/2015)

Happy #NationalNursesWeek to all the nurses who not only work to give great patient care, but also go the extra mile to ensure the best experience for both patients and families. We appreciate all that you do to advance patient- and family-centered care at your organizations!

The Early Bird deadline for IPFCC's seminar, Moving Forward with Patient- and Family-Centered Care, is ONE WEEK AWAY! Be sure to register within the week to take advantage of the best pricing for registration. Learn more and register for the seminar on our website at and feel free message us with any questions! #IPFCCseminar2019
#pfa #patientsafety #qualityimprovement #pfac #pfcc #patientcentered #patientengagement #patientexperience #seminar #pfac #patientfamilyadvisor #patientandfamilycenteredcare

Dreamland: The True Tale of America's Opiate Epidemic |

A belated #IPFCCReads, but one worth the wait!

Dreamland is a story about Portsmouth, a small town in Ohio, and how it became ravaged with addiction to both prescription painkillers and illegally imported heroin. Rather than just reporting on America's current opioid crisis, this book tells the full story of one town's struggle and draws readers into each escalating event until a breaking point is hit. Portsmouth's story is no different from many other cities across America, but this story also provides hope for stopping this epidemic in its tracks.

Learn more and find your nearest bookseller in the link below! Winner of the NBCC Award for General NonfictionNamed on Amazon's Best Books of the Year 2015--Michael Botticelli, U.S. Drug Czar (Politico) Favorite Book of the Year--Angus Deaton, Nobel Prize Economics (Bloomberg/WSJ) Best Books of 2015--Matt Bevin, Governor of Kentucky (WSJ) Books of the Year--Sla...

This week's #FocusonFaculty is DeeJo Miller.

Following her daughter’s battle with cancer at age 13, DeeJo became involved at Children’s Mercy Hospital in Kansas City, MO. In 2008, she was hired as one of two “parents on staff.” Ten years later, DeeJo is a Program Manager in the hospital’s Patient and Family Engagement Department. Children’s Mercy now has 15 PFACs and PFAs are members of every Hospital-Acquired Condition committee.

Learn more about the seminar, including more about our faculty and agenda, and register at

Action Collaborative on Countering the U.S. Opioid Epidemic - National Academy of Medicine

Building on its June 2018 PFA Summit on the Opioid Epidemic and the resulting White Paper, IPFCC will bring the “voice” of patients and families to the new National Academy of Medicine’s Action Collaborative on Countering the U.S. Opioid Epidemic as one of the Collaborative’s Networking Organizations. IPFCC’s President and CEO, Beverley Johnson, will serve on the Collaborative’s Health Professional Education and Training Work Group and attended today's public meeting in Washington, DC.

Check the link below to learn more about the Collaborative and to watch the session recording of today's meeting, coming soon. Every day, an estimated 130 Americans die from an opioid overdose – a grim statistic that has devastated families and communities around the nation. Due to the complex and urgent nature of the epidemic, reversing the opioid crisis will require a multi-sectoral and multi-pronged response; no organi...

Crossings: A Doctor-Soldier's Story

This week's #IPFCCReads recommendation is "Crossings: A Doctor-Solder's Story," a memoir by Jon Kerstetter, whom attended our 8th International Conference last year. He writes about his journey through every monumental crossing of his life from becoming a doctor to becoming a soldier to recovering at home after being injured in the field.

Comment below if you have read this book or if you have any other recommendations for future #IPFCCReads spotlights! Every juncture in Jon Kerstetter’s life has been marked by a crossing from one world into another: from civilian to doctor to soldier; between healing and waging war; and between compassion and hatred of the enemy. When an injury led to a stroke that ended his careers as a doctor and a sold...

This week's #FocusonFaculty spotlights two of our faculty members who bring rich experience and expertise in health disparities.

The first is Cherie Craft, MEd, who grew up in inner city Boston and now works tirelessly for underserved children and families in Boston and DC communities.

The second is Sonya Ballentine, BS, who brings her lived experience of bipolar disorder to her work in helping other vulnerable individuals and their families.

Learn more about our faculty and the sessions they will be leading at our #IPFCCseminar2019 at

On April 17, IPFCC's President and CEO, Bev Johnson (second from right), attended Anne Arundel Medical Center's Patient and Family Advisor Appreciation Dinner where she spoke on the topic, "Celebrating the Partnerships with Patients and Families and the Potential of the Future." She is pictured here with Patricia Markel, Pat Holle (PFAC co-chairs) and Monica Mewshaw on the right (PFCC Coordinator). Thank you to AAMC for a great evening!

Home Alone Revisited: Family Caregivers Providing Complex Care

A new report, Home Alone Revisited, funded by the AARP Foundation and the The John A. Hartford Foundation focuses on family caregivers and how they are managing daily tasks at home that are typically done by trained medical professionals. Findings show that many family caregivers are under physical and emotional burden of these tasks and are not given the support they need. This study builds upon the original Home Alone report released in 2012. This study builds on the landmark Home Alone study, which was the first national look at how family caregivers are managing medical/nursing tasks.

The Spirit Catches You and You Fall Down: A Hmong Child, Her American Doctors, and the Collision of Two Cultures (FSG Classics) by Anne Fadiman (2012-04-24)

For today's #IPFCCReads, we're highlighting The Spirit Catches You and You Fall Down by Anne Fadiman. This book tells the story of Lia Lee as she goes from a child with epileptic symptoms to brain dead in a matter of a few years. Rather than putting the blame on anyone, the author focuses on how cultural misunderstandings and miscommunication between a Hmong family and American doctors played a big role and how cultural competency is vital to give all patients and their families the best care. Purchase this book at the link below. Book

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